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scotland

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  1. Andy
    Thread

    Report: (ME/CFS) Services in Scotland: Findings from an analysis of surveys issued to NHS Boards in Autumn 2022

    "This report analyses survey responses from ten NHS Health Boards in Scotland to understand delivery of ME/CFS services, implementation of the...
    Thread by: Andy, May 19, 2023, 3 replies, in forum: UK clinics and doctors
  2. Sly Saint
    Thread

    "Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS)"

    Published 28 February 2023 This guidance is intended to support the diagnosis and management of ME/CFS in primary care, and was originally...
    Thread by: Sly Saint, Mar 1, 2023, 8 replies, in forum: Resources
  3. Sly Saint
    Thread

    Website 'neurosymptoms.org' founded by Jon Stone, funded by the Scottish Government promoting Recovery Norge

    I didn't know how to title this as there are so many problematic issues. This is a website called neurosymptoms.org There are pages dealing with...
    Thread by: Sly Saint, Oct 31, 2022, 46 replies, in forum: General ME/CFS news
  4. Andy
    Thread

    Outcomes among confirmed cases and a matched comparison group in the Long-COVID in Scotland study 2022 Hastie et al

    Abstract With increasing numbers infected by SARS-CoV-2, understanding long-COVID is essential to inform health and social care support. A...
    Thread by: Andy, Oct 12, 2022, 1 replies, in forum: Long Covid research
  5. Amw66
    Thread

    MEAction Scotland - Stakeholder review of NICE 2021 ME/CFS Guideline to prepare for Scottish implementation - deadline 1 March 2022

    Copied from UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion From what I know about MEAction Scotland, they...
    Thread by: Amw66, Feb 23, 2022, 1 replies, in forum: Advocacy Projects and Campaigns
  6. Andy
    Thread

    Open Using activity tracking and just-in-time messaging to improve adaptive pacing in people with long COVID: a pragmatic randomised control trial

    Be Part Of Designing UWS [University of the West of Scotland] Research Into ME And Long COVID "Researchers at the University of the West of...
    Thread by: Andy, Feb 4, 2022, 10 replies, in forum: Recruitment into current ME/CFS research studies
  7. Sly Saint
    Thread

    NHS Scotland website not yet updated Nov 2021

    This website is in need of updating. The first page isn't too bad but...... Chronic fatigue syndrome (CFS) GET and CBT stuff is still there and...
    Thread by: Sly Saint, Nov 1, 2021, 7 replies, in forum: UK clinics and doctors
  8. daftasabrush
    Thread

    United Kingdom: NIHR Long Covid research funding decisions 2021-2

    Horrified that Crawley is co-author with Terence Stephenson on the CLoCk Study for kids with long COVID, meanwhile DECODE and many other...
    Thread by: daftasabrush, Feb 26, 2021, 62 replies, in forum: Long Covid news
  9. Kalliope
    Thread

    News from Scotland

    The Scottish Health Department has posted an interim statement advising caution over the suitability of Graded Exercise Therapy (GET) in treating...
    Thread by: Kalliope, Oct 15, 2020, 82 replies, in forum: Regional news
  10. Amw66
    Thread

    United Kingdom: Scotland NHS Lothian ME/CFS clinic

    From Twitter tonight. It is very much a case of be careful what you wish for. Seems to be GET through the back door via " activity management"....
    Thread by: Amw66, Jul 17, 2020, 34 replies, in forum: UK clinics and doctors
  11. Eagles
    Thread

    Edinburgh News: Edinburgh SNP councillor Ian Campbell stands down for health reasons

    Edinburgh News: Edinburgh SNP councillor Ian Campbell stands down for health reasons...
    Thread by: Eagles, Feb 21, 2020, 1 replies, in forum: General ME/CFS news
  12. Sly Saint
    Thread

    Scottish Health Council:Gathering public experience of Myalgic Encephalomyelitis (ME) survey: Feb 2020

    I just came across this survey but I can't see when it's from or how it came about. North Ayrshire HSCP @NAHSCP Are you living with a...
    Thread by: Sly Saint, Feb 11, 2020, 24 replies, in forum: General ME/CFS news
  13. Helen
    Thread

    Lyme: another sad story, but a new app for areas with infected ticks

    BBC interview with a Lyme victim who has a story that too many of us recognize. It also triggered ME/CFS in her case. The good news is that there...
    Thread by: Helen, Oct 9, 2019, 1 replies, in forum: Infections: Lyme, Candida, EBV ...
  14. Sly Saint
    Thread

    Scottish Parliament hearings and report on #MEAction Scotland petition - 2019/20

    Scottish Petitions Committee discussion on M.E./CFS [MEDIA]
    Thread by: Sly Saint, May 31, 2019, 23 replies, in forum: Advocacy Projects and Campaigns
  15. Hutan
    Thread

    TheWEL courses - David Reilly

    There are a range of courses branded under the TheWEL banner. David Reilly, a Glasgow doctor, is the developer of the courses. My local health...
    Thread by: Hutan, Apr 19, 2019, 26 replies, in forum: Other treatments
  16. Andy
    Thread

    BBC Radio Scotland with Stuart Murdoch and Dr Charles Shepherd, 30 January 2019

    M.E. to feature on BBC Radio Scotland with Stuart Murdoch and Dr Charles Shepherd. The Kay Adams programme will be broadcast on Wednesday, 30...
    Thread by: Andy, Jan 28, 2019, 11 replies, in forum: General ME/CFS news
  17. Sly Saint
    Thread

    Scotland - National Action Plan on Neurological Conditions (Draft for consultation) 2019-2024

    "This draft plan sets out our vision for driving improvement in the care, treatment and support available to people living with neurological...
    Thread by: Sly Saint, Jan 16, 2019, 2 replies, in forum: Advocacy Action Alerts
  18. Andy
    Thread

    #MEAction Scotland launch their Manifesto

    After many, many months of writing, editing and revising, #MEAction Scotland is finally ready to launch its manifesto! Thank you to all the...
    Thread by: Andy, Oct 29, 2018, 4 replies, in forum: Advocacy Projects and Campaigns
  19. Eagles
    Thread

    Third Force News: If the government won’t take ME seriously who will?

    Third Force News: If the government won’t take ME seriously who will?...
    Thread by: Eagles, Aug 29, 2018, 4 replies, in forum: General ME/CFS news
  20. Jonathan Edwards
    Thread

    Submission to the Scottish Parliament by Jonathan Edwards

    This post and subsequent discussion have been moved from this thread. For no particular reason I am posting here a document that will be made...
    Thread by: Jonathan Edwards, Jul 7, 2018, 104 replies, in forum: Open Letters and Replies
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