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Third Force News: If the government won’t take ME seriously who will?

Discussion in 'General ME/CFS News' started by Eagles, Aug 29, 2018.

  1. Eagles

    Eagles Senior Member (Voting Rights)

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    Third Force News: If the government won’t take ME seriously who will?

    http://thirdforcenews.org.uk/blogs/if-the-government-wont-take-me-seriously-who-will

    Lesley Scott argues ME can't be fixed through psychological interventions and the authorities need to take a different tact

    29 August 2018

    What happens to patients’ rights when there is no accountability in the system?

    Myalgic encephalomyelitis (ME) is categorised by the World Health Organisation under diseases of the nervous system. The Scottish Government supports this categorisation and it underpins the current Scottish good practice statement on ME.

    However, information obtained through Freedom of Information legislation revealed that all five medical schools in Scotland teach ME as if it were a behavioural problem that can be ‘fixed’ through psychological interventions and management regimes such as cognitive behavioural therapy (CBT) and graded exercise therapy (GET). The Scottish Government was recently asked “what action it can take to prevent harm being caused to ME patients as a result of any inaccurate or outdated teaching regarding the condition.”…
     
  2. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    Looks interesting. Will read.
     
  3. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    Didn’t we have a new member early in the summer, a doctor with ME, who was interested in tackling teaching about ME in the medical schools? She may have attended Forward ME- unsure about that.
     
  4. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Don't know if there are any Scottish Gaelic speakers here(?); there was a radio program on ME on Sunday:
    "
    Anna NicRisnidh
    CiorramACH
    Tha Anna NicRisnidh air a bhith a' fulang le ME (Myalgic Encephalomyelitis) airson còrr is fichead bliadhna.

    'S ann an dèidh dhith a bhith tinn le bhìoras a' "flu" a bhuin ME rithe an toiseach agus b' fheudar dhith a h-obair ann an coimpiutaireachd a leigeil dhith. Chan eil Anna air obrachadh on uairsin. Tha an tinneas ga fàgail le sgìths do-chreidsinneach, gun lùths na fèithean agus duilgheadasan le a cuimhne is le a cadal. An dèidh ùine cho fada a' fulang le ME, tha i air fàs cleachdte ri pàtran an tinneis is tha i a' dèanamh mar as urrainn dhith a-rèir mar a bhios i a' faireachdainn bho là gu là.

    Bhruidhinn Anna ri Catriona Mhoireach mun bhuaidh a tha ME air toirt air a beatha."

    tried to get a translation but it doesn't make much sense!
    https://www.bbc.co.uk/programmes/b09g8cps
     
  5. Amw66

    Amw66 Senior Member (Voting Rights)

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    Afraid i can' t help. Sadly.
     
    MEMarge, Trish and Invisible Woman like this.

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