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Scotland - National Action Plan on Neurological Conditions (Draft for consultation) 2019-2024

Discussion in 'Advocacy Action Alerts' started by Sly Saint, Jan 16, 2019.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    "This draft plan sets out our vision for driving improvement in the care, treatment and support available to people living with neurological conditions – and their carers - in Scotland. Our Vision is that everyone with a neurological condition will be able to access the care and support they need to live well, on their own terms. We are consulting on the draft plan, and the commitments it contains."

    https://www2.gov.scot/Publications/2018/11/3402

    A consultation on the draft National Action Plan on Neurological Conditions (2019-2024)
    link to consultation paper and how to participate can be found here:
    https://consult.gov.scot/healthcare-quality-and-improvement/neurological-conditions/

    The consultation started in Nov 2018.

    (Found this on AfME website:
    "Action for M.E. are taking the time to respond to this plan and highlight areas where this plan will affect the lives of people with M.E./CFS. In particular, we would like to see the introduction of specialist services for people with M.E./CFS and trained healthcare professionals who can take a lead in its delivery." )

    Are any of the other charities responding to this?
    @Russell Fleming @Emsho @chicaguapa
     
    Last edited: Jan 16, 2019
    Andy, Hutan, MEMarge and 4 others like this.
  2. Esther12

    Esther12 Senior Member (Voting Rights)

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    At the moment, the introduction of 'specialist services' could well do more harm than good. Of those being paid to run such service in the UK, how many have spoken out about the sort of problems we've seen from PACE? How many have just cashed their cheques while misleading patients about the value of the services they provide?
     
    Hutan, Dolphin, MEMarge and 2 others like this.
  3. Emsho

    Emsho Established Member (Voting Rights)

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    Yes, will try and remember to post here when published.
     

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