#meaction

  1. D

    MEAction Responds to Attacks on ME Community in the Guardian and Psychology Today

    https://www.meaction.net/2019/08/01/meaction-responds-to-attacks-on-me-community-in-the-guardian-and-psychology-today/?mc_cid=0039916b6f&mc_eid=ee635de468
  2. ahimsa

    Postcards to Doctors - new project from ME Action

    A new project from ME Action: Note: Since the current CME is only available in the U.S., we are only providing addresses for doctors in the U.S. at this time. Read full details at https://www.meaction.net/postcards-to-doctors/
  3. Andy

    ME Advocacy Network Australia (formerly MEAction Australia)

    From their Facebook post https://www.facebook.com/MEAdvocacyNetworkAustralia/posts/2263143953753957
  4. rvallee

    Congressman Jack Bergman becomes Champion for ME

    https://www.meaction.net/2019/06/14/congressman-jack-bergman-becomes-champion-for-me/ Always good to thank those fighting for us. They are rare and appreciation always leads to more advocacy.
  5. ahimsa

    Introducing #MEAction’s 2019 ME Research Summary

    Full article = https://www.meaction.net/2019/06/12/meaction-releases-an-updated-me-research-summary/ Direction link to PDF file = http://www.meaction.net/wp-content/uploads/2019/06/19_MEA_Revised_2019_Research_Summary_190610.pdf Many thanks to @JaimeS and the whole ME Action team!
  6. ahimsa

    Need help with poster for Millions Missing event

    Hi, I have everything ready for the Sunday Millions Missing event except one item. I want to create a poster to put up near our table. I ended up getting a tri-fold display board that will stand on its own (Digression - I was going to use plain piece of poster board but when I tried leaning it...
  7. ahimsa

    Need some input for a #MillionsMissing event in Beaverton, OR

    My husband and I are planning a small #MillionsMissing event at our local library in Beaverton, Oregon. We plan to set up a small table in front of the library for a couple of hours on the afternoon of May 12. We'll hand out pamphlets and answer questions. I thought having some bookmarks made...
  8. Andy

    #MEAction: Celebrating Our Wins for ME!

    https://www.meaction.net/2019/04/11/celebrating-our-wins-for-me/
  9. Sly Saint

    Article in 'Philly voice' - This 'invisible illness' doesn't have a known cause or effective treatment

    Not a particularly bad article that quotes #MEAction a lot (The Myalgic Encephalomyelitis Action Network). However, I question the bit at the end re Lady Gaga being an ME/CFS sufferer (I thought she had Fibromyalgia(?)) @JaimeS But then looking through it again, in the middle of the article is...
  10. Andy

    #MEAction Medical Travel Scholarship Award Winners

    A little late but still worth posting I think. https://www.meaction.net/2019/04/04/awardwinners/
  11. ahimsa

    USA: ME/CFS Advocacy Week - Call or email your senators

    Most of us are not able to go to Washington, DC for this advocacy week. But there are still ways to make your voices heard! Today I called both of my senators and then tweeted about it: https://twitter.com/ahimsa_pdx/status/1113509333101187073...
  12. R

    #MEAction: A response to Dr Mark Porter’s article about ME in The Times

    https://www.meaction.net/2019/03/25/a-response-to-dr-mark-porters-article-about-me-in-the-times/ I actually started writing the article as a post on S4ME but as it got longer I decided to submit it as an article for #MEAction. If you feel I’ve overlooked anything I should have mentioned, or...
  13. Andy

    MEAction: Our Community will Not Suffer Stigma and Distortion

    https://www.meaction.net/2019/03/23/our-community-will-not-suffer-stigma-and-distortion/
  14. Andy

    Are You a Young Person Affected by ME? How do you Visualize Health Equity? Join a National Contest

    https://www.meaction.net/2019/01/11/are-you-a-young-person-affected-by-me-how-do-you-visualize-health-equity-join-a-national-contest/
  15. Andy

    David Tuller: Trial By Error: “Talk is Cheap,” Patients Tell NIH

    http://www.virology.ws/2018/12/26/trial-by-error-talk-is-cheap-patients-tell-nih/
  16. Andy

    MEAction: " All I want for Christmas is #ScienceNotStigma"

    https://www.meaction.net/2018/12/05/all-i-want-for-christmas-is-sciencenotstigma/
  17. Andy

    #MEAction: "Let's start the values and policies process!"

    From an #MEAction email: A few months ago, #MEAction Executive Director Jennifer Brea released an open letter, outlining the importance of forming #MEAction's values and policies as a community. #MEAction's community-based model utilizes the strengths of our staff to support, organize, and...
  18. Andy

    Solve ME/CFS Initiative: "Congress to HHS: What's replacing CFSAC?" [easy form to fill in to contact your reps]

    https://solvecfs.secure.force.com/actions/kwac__takeaction?actionId=AR00042&cid=
  19. ahimsa

    USA advocacy: Ask Congress to sign letter to HHS - NEW deadline Dec. 12

    I got an alert via email a couple days ago requesting folks in the USA to contact their congressional representatives. Signature deadline has been extended (again) to Wednesday, December 12 Email text: Here's the link I found on the ME Action website...
  20. JaimeS

    #MEAction ideas for Giving Tuesday

    A few things have begun to aggregate, so I figured I would start a new thread and post them here. First, #MEAction's general article on how to donate on #GivingTuesday: https://www.meaction.net/2018/11/16/givingtuesday/ Right now, Facebook is matching donations, so consider clicking on the...
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