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USA: ME/CFS Advocacy Week - Call or email your senators

Discussion in 'Advocacy Action Alerts' started by ahimsa, Apr 3, 2019.

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  1. ahimsa

    ahimsa Senior Member (Voting Rights)

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    Most of us are not able to go to Washington, DC for this advocacy week. But there are still ways to make your voices heard!

    Today I called both of my senators and then tweeted about it:
    Code:
    https://twitter.com/ahimsa_pdx/status/1113509333101187073
    Code:
    https://twitter.com/ahimsa_pdx/status/1113551379820236801


    I've attached two PDF files. One has instructions on making calls, including a call script. The other has info on making posts on social media.

    The main hashtags I've seen are #CongressFight4ME and #StormDC4ME

    I hope I've posted all the right info. If anyone sees errors/typos/etc please let me know or just post corrections. Thanks!
     

    Attached Files:

    ahimsa, Apr 3, 2019
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  2. ahimsa

    ahimsa Senior Member (Voting Rights)

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    By the way, the call script says

    "If you are up for it, you can even call each day during the week and repeat the same important
    message!"

    So I hope to make calls again tomorrow! :)
     
    ahimsa, Apr 3, 2019
    #2
    MyalgicE, Andy and Trish like this.
  3. ahimsa

    ahimsa Senior Member (Voting Rights)

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    Also, anyone can call their senators, not just folks with ME!

    I'm hoping to recruit some friends and family members to make more calls.
     
    ahimsa, Apr 3, 2019
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    MyalgicE, rvallee, Andy and 1 other person like this.
  4. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    A side comment, but I was just thinking that it is so useful to read about what is happening in countries other than our own. Where things are going well it provides examples of good practice to use with our own countries, and where things are going badly we can offer information and support internationally.

    Also it helps us deal with international issues, for example though the US [is] not getting so drawn into the MUS blind alley it does seem potentially to be a pan European problem requiring response at both national and international levels.
     
    Last edited: Apr 4, 2019
    Peter Trewhitt, Apr 4, 2019
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  5. WillowJ

    WillowJ Senior Member (Voting Rights)

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    I emailed mine with the super easy fill-in form. I know it's not as good as calling, but it's something that I could do.
     
    WillowJ, Apr 5, 2019
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    ahimsa, Trish and MyalgicE like this.
  6. MyalgicE

    MyalgicE Senior Member (Voting Rights)

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    Go @ahimsa!

    I agree with @Peter Trewhitt, it is heartening to see this happening in other countries.

    I’m full of admiration for the people calling and visiting.

    For the last few years I met with lots of politicians and it is seriously hard work and extremely draining, even with lots of help.
     
    MyalgicE, Apr 5, 2019
    #6
    ahimsa, Wonko and Peter Trewhitt like this.
  7. Andy

    Andy Committee Member & Outreach

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    https://solvecfs.org/statement-by-s...te-resolution-and-labor-hhs-education-markup/
     
    Andy, May 16, 2019
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