A thread to collate studies and reports on the historical (or current) level of ME/CFS research funding in the UK. I'm primarily interested in public funding, but reports and studies on charity funding can also be included here. I'll start with the UberResearch/Action for ME report from 2016.
Also, I have a question for anyone in the know: the above report details 1 grant from the Wellcome Trust and 1 grant from the Chief Scientist Office in Scotland. Does anyone know what these grants were? I know the Wellcome Trust provided funds for the CMRC research conference in 2015(?), but I'm not sure if that is what is being referenced.
Ok thanks. Not sure I knew that. Any more info on this—e.g, size of their award contribution—would be welcome. EDIT: This FOI response gives the figure: https://www.gov.scot/publications/foi-18-00619/
Probably this one: https://wellcome.org/press-release/chronic-fatigue-syndrome-not-caused-xmrv-virus-study-shows Chronic fatigue syndrome not caused by XMRV virus, study shows
Hmm not sure. It seems the link to the WT there is that one of the authors of the paper being reported on works (or worked) at the Wellcome Trust's Sanger Institute. But you may be right.
I found this article (https://www.bmj.com/content/346/bmj.f2630.full) on the formation of the CMRC and it apparently mentions Wellcome Trust (who provided £10,000) but I can't access the paper. Has anyone got access?
Thanks. Forgot about that thread. It overlaps with this one but much of that thread's discussion is about getting info together for advocacy.
Two questions: Does anyone have information on funding for the PSP and how much each org gave? And would you include any contributions from the MRC and NIHR and Chief Scientist Office for Scotland in UK ME/CFS research spending? The project is not included in either the UKRI or NIHR databases, but I think there's an argument for including it.
