research

I wasn't sure where to put the news about this group's July 9 webinar. So I created a new thread for the Patient-Led Research Fund organization. Please move this post if it belongs elsewhere. Website for Patient-Led Research Collaborative Linktree for Patient-Led Research Collaborative...

The Guardian view on bias in medical research: disregard for women’s health belongs in the past

Action alert for US citizens: Action Alert! Tell your Senators to VOTE NO on proposed 57% cut to Research Programs The link above goes to an automated tool for contacting your US senators to ask them to vote NO. Details:

full article Revolutionising Biomarker Discovery: The Role of High-Performance Liquid Chromatography

Introduction Long COVID is a life-limiting condition that affects 65 million people worldwide. It devastates lives with uncertain illness trajectories, and yet, there are many research uncertainties as there is a lack of understanding of its causes, effective treatments and management plans. We...

“I feel like a ghost.” How included to children and young people with chronic conditions feel in their education, and what can we learn from their lived experiences? As a parent of a young person with ME/CFS, as well as a special education teacher, I bring these two aspects of my identity...

Hello, As part of my psychology Masters at Oxford Brookes University I'm conducting research into the motivations for complementary and alternative medicine use in those with chronic illness. One of the subcategories I'm particularly looking at are those with ME/CFS. If you're a UK resident...

Link Medford MA, February 22, 2024 – PolyBio Research Foundation, a global collaboration convening the world’s leading chronic disease scientists, today announced the second phase of its LongCovid Research Consortium (LCRC), including the distribution of $15M to fund scientific research...

Hi everybody, I finally have the ethics in place to begin recruiting for our recently funded Mason Foundation study. ICC criteria. Healthy controls and pwME in VIC, Australia. Involves some questionaires and a blood and feces collection. We will home visit severely affected people. Primary...

There's a new program that will pay folks who have found errors in scientific papers. I immediately thought of this forum, and all the smart folks here who have found errors! So I thought I'd share it here. I heard about it on this Science Friday segment (about the last 2 minutes)...

NYC To Study Long-Term Outcomes of COVID-19 Among New Yorkers https://www.nyc.gov/site/doh/about/press/pr2024/nyc-to-study-long-term-outcomes-of-covid-19.page The Department of Health and Mental Hygiene is launching a multi-year research study of long-term outcomes among adults infected with...

Muscle Abnormalities Contribute to Post-Exertional Malaise in Long COVID A poster presentation of the very soon to be published work by Rob Wüsts team has been uploaded to Twitter. Paper now published, see post #8

by Ong, et al in Innov Aging. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10714916/pdf/igad070.pdf Five weeks of positive affect training vs a control group of reporting emotions. 43 in each group, mostly female, older than 50, 80% white. Internet training modules: identifying personal...

Effect of the subjective intensity of fatigue and interoception on perceptual regulation and performance during sustained physical activity Aaron Greenhouse-Tucknott , Jake B. Butterworth, James G. Wrightson, Neil A. Harrison, Jeanne Dekerle Abstract Background The subjective experience of...

Reduced diversity and altered composition of the gut microbiome in individuals with myalgic encephalomyelitis/chronic fatigue syndrome Abstract Background Gastrointestinal disturbances are among symptoms commonly reported by individuals diagnosed with myalgic encephalomyelitis/chronic fatigue...

Developing, optimising and implementing a blended digital self-management tReatmEnt for FatigUe in multiplE scLerosis (REFUEL-MS) https://fundingawards.nihr.ac.uk/award/NIHR203290 https://www.refuel-ms.com/ Chief Investigator(s): Professor Rona Moss-Morris Co-investigators Start Date...

A thread to collate studies and reports on the historical (or current) level of ME/CFS research funding in the UK. I'm primarily interested in public funding, but reports and studies on charity funding can also be included here. I'll start with the UberResearch/Action for ME report from 2016.

Long COVID: The impact on language and cognition Louise Cummings Abstract COVID-19 continues to have profound health and economic consequences around the world. Aside from the large number of deaths from this viral infection, there is a growing population of individuals who have not made a good...

Paywalled Financial Times link Source blogs (first 2 published entries of 4) — [109] Data Falsificada (Part 1): "Clusterfake" [110] Data Falsificada (Part 2): "My Class Year Is Harvard"

New thread created by collecting posts from a number of other threads If someone's in a listening mood, there's no transcript. 30 minutes with the NIH Recover initiative lead: Direct link: https://www.nejm.org/action/showMediaPlayer?doi=10.1056/NEJMdo006435&aid=10.1056/NEJMe2201619&area=.