Seen the following article recently shortly after a sibling participated in a similar study...
Developing, optimising and implementing a blended digital self-management tReatmEnt for FatigUe in multiplE scLerosis (REFUEL-MS)...
A thread to collate studies and reports on the historical (or current) level of ME/CFS research funding in the UK. I'm primarily interested in...
Pre-print https://osf.io/tfbnd/ Vivian V. Altiery De Jesús (MBE)1 Nisreen Alwan (PhD) 2 3 4 Felicity Callard (PhD) 5 Zackary Berger ( M.D.) 6,7...
Horrified that Crawley is co-author with Terence Stephenson on the CLoCk Study for kids with long COVID, meanwhile DECODE and many other...
Introduction The aim of the Health Technology Assessment (HTA) Programme is to ensure that high quality research information on the clinical...
I thought it could be of interest to some people here, though I only had a very quick look myself. 172 pages....
Funded study in progress. Abstract: Background: Paediatric Chronic Fatigue Syndrome or Myalgic Encaphalistis (CFS/ME) is disabling and...
How is the NIHR supporting patient and public involvement? NIHR has re-launched key resources and guidance that support patient and public...
Persistent Physical Symptoms Research and Treatment Unit - Kings College London; South London and Maudsley NHS Trust The Persistent Physical...
An ME/CFS workshop has been announced by the MRC and NIHR. The UK CFS/ME Research Collaborative (CMRC) and the CureME research team - UK ME/CFS...
I was recently sent a free book from NIHR as a 'thank you' for the past work I had done for them as a patient rep. The book is entitled, 'Testing...
Abstract The UK is one of the largest funders of health research in the world, but little is known about how health funding is spent. Our study...
I received an email today that the NIHR (England) is seeking new committee members. I haven't had a chance to read through the details so am...
" Applications for all levels of Round 11 of the Fellowships Programme have now closed. Five levels of NIHR Fellowship awards were available:...
I didn't know where to put this, but thought it of interest. From a Bristol Uni magazine in 2013 an article by Esther Crawley. [ATTACH]...
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