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Listening to Long Covid: Epistemic injustice and Covid-19 morbidity, 2021, Jesus, Alwan, et al

Discussion in 'Long Covid research' started by Hutan, Jan 6, 2023.

  1. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,529
    Location:
    Aotearoa New Zealand
    Pre-print
    https://osf.io/tfbnd/

    Vivian V. Altiery De Jesús (MBE)1
    Nisreen Alwan (PhD) 2 3 4
    Felicity Callard (PhD) 5
    Zackary Berger ( M.D.) 6,7
    1. University of Puerto Rico School of Medicine
    2. School of Primary Care, Population Sciences and Medical Education, Faculty of Medicine, University of Southampton, Southampton, UK
    3. NIHR Southampton Biomedical Research Centre, University of Southampton and University Hospital Southampton NHS Foundation Trust, Southampton, UK
    4.NIHR Applied Research Collaboration (ARC) Wssex, UK
    5.University of Glasgow
    6. Johns Hopkins Berman Institute of Bioethics
    7. Johns Hopkins School of Medicine

    Abstract
    In Long Covid, symptoms do not resolve within several weeks after acute infection with SARS-CoV-2. Patients with COVID-19 and long COVID face stigma and discrimination. One important type of discrimination is epistemic injustice which includes testimonial and hermeneutical injustices. Testimonial injustices occur when healthcare professional disregard or discount patients’ symptoms. This worsens healthcare outcomes and exacerbates challenges to adequate healthcare access at the individual level. Furthermore, testimonial injustices may lead to hermeneutical injustices –systemic underrepresentation of the experiences of the marginalized and minoritized. Healthcare professionals play an essential role in mitigating injustices and have a duty to reduce harms done to patients with long COVID. It is crucial that the clinician avoid multiplying associated harms by not engaging in epistemic injustices.

    We suggest the disability model as an approach to improve clinicians’ response to long covid.
    Epistemic injustice leads to systemic inequities that affect those with chronic disease in general, particularly in populations suffering from structural inequities. The COVID-19 pandemic provides an opportunity for solidarity with those suffering from other chronic diseases that have been marginalized and stigmatized.
     
    Last edited: Jan 6, 2023
    RedFox, alktipping, Lilas and 2 others like this.
  2. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,529
    Location:
    Aotearoa New Zealand
    A 2021 pre-print (it's been on our list of things to do for a while, to make a thread for it). I'm not sure if it was ever published.

    Of note is Nisreen Alwan being a co-author, with her NIHR connections.
     
    MEMarge, RedFox, alktipping and 2 others like this.

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