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  1. SNT Gatchaman
    Thread

    US: Announcement of Intent To Establish Federal Advisory Committee on Long COVID

    I'm not sure this has been posted yet (it's dated 17th Nov 2023)....
    Thread by: SNT Gatchaman, Nov 21, 2023, 2 replies, in forum: Long Covid news
  2. InitialConditions
    Thread

    Studies and reports on the level of UK ME/CFS research funding

    A thread to collate studies and reports on the historical (or current) level of ME/CFS research funding in the UK. I'm primarily interested in...
    Thread by: InitialConditions, Jul 13, 2023, 9 replies, in forum: ME/CFS research news
  3. CRG
    Thread

    The NHS productivity puzzle: Why has hospital activity not increased in line with funding and staffing?, 2023, Freedman & Wolf

    Institute for Government "This report – written jointly report by the Institute for Government and Public First, and funded by the Health...
    Thread by: CRG, Jun 14, 2023, 15 replies, in forum: Other health news and research
  4. mango
    Thread

    Sweden - Government announcements about Long Covid, 2023

    Moved from News from Scandinavia Pressträff med socialministern och sjukvårdsministern om regeringsuppdrag relaterade till postcovid...
    Thread by: mango, Apr 19, 2023, 11 replies, in forum: Long Covid news
  5. ahimsa
    Thread

    UK: Campaign called #MPDoYourJobForME

    I saw this post by @MEFoggyDog on Mastodon so I thought I'd share. This same hashtag - #MPDoYourJobForME - is also being used on twitter so you...
    Thread by: ahimsa, Mar 22, 2023, 0 replies, in forum: Advocacy Projects and Campaigns
  6. Sly Saint
    Thread

    "Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS)"

    Published 28 February 2023 This guidance is intended to support the diagnosis and management of ME/CFS in primary care, and was originally...
    Thread by: Sly Saint, Mar 1, 2023, 8 replies, in forum: Resources
  7. CRG
    Thread

    UK:(England)Department of Health & Social Care, Ministers 12/2022

    Westminster (England only) Dept of H&SC Ministerial Responsibilities as of December 2022 full detail pdf=...
    Thread by: CRG, Dec 15, 2022, 1 replies, in forum: General Advocacy Discussions
  8. Sly Saint
    Thread

    UK Government announces £800m boost to support innovation and improve patient safety

    The UK Government has announced it will inject over £800m of funding to support specialist research facilities across the country to undertake...
    Thread by: Sly Saint, Oct 18, 2022, 5 replies, in forum: Other health news and research
  9. ahimsa
    Thread

    Solve M.E. Presents: Legislative Cafe Chat on Thursday, Jan. 21

    I found the following announcement at the bottom of this page -...
    Thread by: ahimsa, Jan 16, 2021, 2 replies, in forum: General Advocacy Discussions
  10. Hoopoe
    Thread

    MEAction UK has sent an open letter to Matt Hancock asking him to recognise the harm caused by GET

    Please email your MP and ask them to write to Matt Hancock, Secretary of State for Health and Social Care calling on him to: Request NICE adds...
    Thread by: Hoopoe, Jul 15, 2020, 6 replies, in forum: General ME/CFS news
  11. Sly Saint
    Thread

    US: Sen. Cramer, Bipartisan Group of Colleagues Call for ME/CFS Medical Research Funding in Any COVID-19 Relief Package 28 May 2020

    "Senator Kevin Cramer joined a bipartisan letter led by Senator Ed Markey (D-MA) today calling on Senate Leadership to prioritize medical research...
    Thread by: Sly Saint, May 29, 2020, 2 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  12. ahimsa
    Thread

    USA: Register now for ME/CFS Advocacy Week and DC Lobby Day 2020

    The Solve M.E. group is organizing another ME/CFS Advocacy Week this year for April 19 – 26, 2020. ME/CFS Advocacy week returns from April 19 –...
    Thread by: ahimsa, Jan 17, 2020, 0 replies, in forum: Advocacy Projects and Campaigns
  13. Sly Saint
    Thread

    Wales (UK) - Govt petition P-05-926 To Provide a Chronic Fatigue Department in Wales

    07/01/2020 - Agenda item, Petitions Committee P-05-926 To Provide a Chronic Fatigue Department in Wales P-05-926 To Provide a Chronic Fatigue...
    Thread by: Sly Saint, Jan 3, 2020, 12 replies, in forum: General ME/CFS news
  14. Sly Saint
    Thread

    Ireland - Positive Preliminary Meeting with Minister re Future of Care for M.E. Dec 2019

    On Wed 4th December 2019 members of ME Advocates Ireland (MEAI) met with Minister for Health, Simon Harris TD. By Joan Byrne Background We...
    Thread by: Sly Saint, Dec 18, 2019, 0 replies, in forum: Advocacy Projects and Campaigns
  15. NelliePledge
    Thread

    United Kingdom: National Health Service (NHS) news

    Some threads have bene merged to create this news thread The future of the NHS: no longer the envy of the world? Picked up from social media....
    Thread by: NelliePledge, Mar 17, 2018, 76 replies, in forum: News from organisations
  16. Sly Saint
    Thread

    BBC 'Humanitarian crisis' for ME sufferers in Wales 11 May 2019

    "People thought I'd moved away or joined a nunnery", said Marian Gray, who admits going "missing from life". She disappeared because she was one...
    Thread by: Sly Saint, May 11, 2019, 6 replies, in forum: General ME/CFS news
  17. Dolphin
    Thread

    Rogue company Unum’s profiteering hand in the government’s work, health and disability green paper (2016) (ME mentioned)

    Rogue company Unum’s profiteering hand in the government’s work, health and disability green paper...
    Thread by: Dolphin, Apr 30, 2019, 6 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  18. large donner
    Thread

    Steve Brine Health minister resigns

    BBC just reporting Brine has resigned.
    Thread by: large donner, Mar 25, 2019, 5 replies, in forum: General ME/CFS news
  19. Andy
    Thread

    A Glorious Moment for the Dutch Government to Step Up to the Plate

    In 2005, the same year I got ill with an unknown viral infection from which I failed to recover, a council of The Ministry of Health in The...
    Thread by: Andy, Mar 21, 2019, 0 replies, in forum: General ME/CFS news
  20. MyalgicE
    Thread

    Australia: Medical research council asking for feedback on draft report

    Released on the Friday before Christmas, the Australia’s National Health and Medical Research Advisory Commission’s draft report on Myalgic...
    Thread by: MyalgicE, Jan 22, 2019, 1 replies, in forum: Advocacy Action Alerts
Showing results 1 to 20 of 21
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