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United Kingdom: Bedfordshire Chronic Fatigue Service

Discussion in 'UK clinics and doctors' started by Barry, Nov 7, 2021.

  1. Barry

    Barry Senior Member (Voting Rights)

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    ME Association - "Bedfordshire Chronic Fatigue Service and the new NICE guideline – feedback required"

    https://meassociation.org.uk/2021/1...and-the-new-nice-guideline-feedback-required/

    Reporting about this sly bit of rebranding:

    https://www.elft.nhs.uk/service/419/Bedfordshire-Chronic-Fatigue-Service
    The new guideline makes no mention of anything called GAM nor Graded Activity Management, but this ambiguous statement, "NICE recommended Cognitive Behaviour Therapy (CBT) and Graded Activity Management" slyly tries to make it seem like it does; they would of course try to argue that it really means "NICE recommended Cognitive Behaviour Therapy (CBT), and also our own Graded Activity Management". But these people cannot be allowed to get away with this, because they know full well how people really interpret such ambiguities.

    If they really do intend to stick faithfully to the new guideline, then why try to dress it up.

    And also there seems to be a sly hint to medics to not diagnose people with CFS. And in any case, what about those whose time criterion has not yet been met.

    ETA: Realise I misread/misunderstood the bit about those not diagnosed with CFS; was thinking it was saying this service was not being offered to them. But it is actually the complete opposite - it is being specifically offered to them. So I struck through the bit of my post regarding that.
     
    Last edited by a moderator: Jul 4, 2022
  2. Simbindi

    Simbindi Senior Member (Voting Rights)

    Messages:
    2,350
    Location:
    Somerset, England
    This is the information I received from the Bedford clinic when I made some inquiries about their service in August this year (before the NICE guideline pause was announced). [I have left in their grammar mistakes]

    See attached docs.
     

    Attached Files:

  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    8,299
    Location:
    UK
    Bedfordshire also have a 'Chronic fatigue' service
    the information on the website was very problematic before and raised with the MEA see
    https://meassociation.org.uk/2021/1...and-the-new-nice-guideline-feedback-required/

    I don't know what the feedback was, but, given that there is now no information at all, and no mention of ME or ME/cfs doesn't inspire confidence.

    I think that calling the clinics 'Chronic fatigue clinics' is very unhelpful,to put it mildly, and wish something could be done about it.
     

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