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London Centre for Functional Medicine: Chronic fatigue

Discussion in 'UK clinics and doctors' started by Sly Saint, Aug 2, 2022.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    8,296
    Location:
    UK
    Based in Harley Street so guaranteed to be pricey.

    conflates chronic fatigue with Chronic fatigue syndrome

    common symptoms

    Insomnia
    • Chronic Fatigue
    • Persistent Cough
    • Sleep Disturbances
    • Reoccurring Infections
    • Congnitive Diffciulties
    • Weight Gain
    • Urefreshed sleep
    • Muscle Weakness
    • Depression
    "Congnitive Diffciulties"

    https://londoncfm.co.uk/chronic-fatigue/
     
  2. chrisb

    chrisb Senior Member (Voting Rights)

    Messages:
    4,602
    I suppose that the name does at least distinguish them from all the centres of disfunctional medicine, which seem to proliferate.

    We need a duck emoji.
     
    DigitalDrifter, Ali, MEMarge and 9 others like this.
  3. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

    Messages:
    11,823
    Location:
    London, UK
    :emoji_duck:
     
    Last edited: Aug 2, 2022
    FMMM1, Ali, MEMarge and 12 others like this.
  4. ukxmrv

    ukxmrv Senior Member (Voting Rights)

    Messages:
    756
    The blurb sort of gives the impression that there is a medical doctor there somewhere but uses the word practitioner instead.
    Looking at the team they seem to be dieticians of some sort.
     
    Hutan, hellytheelephant, Sean and 3 others like this.
  5. dave30th

    dave30th Senior Member (Voting Rights)

    Messages:
    1,801
    Is this "functional medicine," which is an alternative medicine movement in the US at least that uses "functional" with a different meaning than in the phrase "functional symptom" or "functional neurological disorder"?
     
    MEMarge, livinglighter, Hutan and 6 others like this.
  6. Lou B Lou

    Lou B Lou Senior Member (Voting Rights)

    Messages:
    183


    The London Centre for Language Plasticity
     
    Medfeb, MEMarge, EzzieD and 9 others like this.
  7. It's M.E. Linda

    It's M.E. Linda Senior Member (Voting Rights)

    Messages:
    857
    I have emailed the MEA to ask whether this is another example where Dr Shepherd might be able to complain to the Advertising Standards Agency.
     
    CRG, Trish, EzzieD and 7 others like this.
  8. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

    Messages:
    3,082
    The ‘health conditions’ they list under purview are:
    • Digestive Health
    • Women’s Health
    • Long Covid
    • Men’s Health
    • Autoimmune Conditions
    • Chronic Fatigue
    • Thyroid Disorders
    • Stress Management
    • Children’s Health
    • Brain Health
    Under Long Covid they say:

     
    Trish and hellytheelephant like this.
  9. Sean

    Sean Senior Member (Voting Rights)

    Messages:
    5,268
    Location:
    Australia
    Torture the words until they confess.
     
    alktipping, MEMarge, Trish and 4 others like this.
  10. It's M.E. Linda

    It's M.E. Linda Senior Member (Voting Rights)

    Messages:
    857
    Swift response from Russell of ME Association received today:

    “As you can imagine, the more letters that Dr Shepherd writes, the more requests we receive from the community about other health websites in the UK (and abroad!). For now, we are prioritising NHS websites and continuing to work positively with ME/CFS specialist services personnel and healthcare commissioners to get the Guideline's recommendations implemented. We hope to announce that we will soon have dedicated new resource in place to help us in these efforts because improving health and social care is vital. But I will keep this request (as well as all the others) on file until we can review them.”

    Any “spots” please email:

    feedback@meassociation.org.uk

    with the name of the organisation/Health Service/Clinic as the heading.

    I will add more information here, if I get any.
     
  11. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    10,984
    Location:
    UK West Midlands
    Hi Linda Maybe worth suggesting to Russell that it would be simpler for someone from ME A folks to just check on here a couple of times a week to see what people have posted rather than people here having to duplicate efforts sending emails and clogging up their inbox. There are quite a few threads highlighting problems and they don’t want multiple emails about the same service.

    also if they are looking for people to work with on writing letters maybe a couple of us here would be able/willing to do that as part of a collaborative effort??
     
    Last edited: Aug 3, 2022
  12. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
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    Location:
    UK
    isn't there a way that Russell could receive an email from here when tagged? I've had a look in account settings but I can't see it, but I seem to vaguely remember getting email alerts for something until I turned it off......?
     
  13. DigitalDrifter

    DigitalDrifter Senior Member (Voting Rights)

    Messages:
    752
    psyence.jpg
     
  14. It's M.E. Linda

    It's M.E. Linda Senior Member (Voting Rights)

    Messages:
    857
    Thanks both, I will suggest that to @Russell Fleming, especially if some Technical Wizard* can confirm that an email alert can go to a member when they are tagged?

    * @NelliePledge / Moderators - May we have assistance in whether this alert could work please?
     
    Peter Trewhitt likes this.
  15. Trish

    Trish Moderator Staff Member

    Messages:
    44,485
    Location:
    UK
    As far as I can see on the preferences I can set for my alerts, there is not a option to ask for emails when tagged.
    I think it would be better to suggest to Russell that he check the forum at least once a week. If he has his preferences set to receive an alert whenever he is tagged, then he will be able to find them quickly. I think it quite likely someone at the MEA is checking the section of the forum on UK ME services regularly anyway.
     
  16. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
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    Location:
    UK

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