treatment

  1. Andy

    KPAX002 as a treatment for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): a prospective, randomized trial, 2018, Montoya et al

    Full article in PDF format here, http://www.ijcem.com/files/ijcem0065685.pdf
    • Andy
    • Thread
    • 2018 kpax002 me/cfs montoya paper treatment
    • Replies: 28
    • Forum: ME/CFS research
  2. A

    Notes on Flaws of the Biopsychosocial Model for Treating Myalgic Encephalomyelitis

    From July 2017 with brief background, bullet points and references: http://www.investinme.org/Documents/Fact%20Sheets/Invest%20in%20ME%20Research%20-%20Flaws%20in%20BPS%20Theory%20for%20ME%20Fact%20Sheet.pdf
  3. JemPD

    Telegraph front page: Wessely photo wth Duchess of Cambridge & BPS back pain treatment

    Ugh, as i checked the headlines this morning i was greeted by a large photo of Prof Sir Simon smiling with Kate.... right above an article declaring that "Gps too soft on back pain", bemoaning the painkillers & surgery given out, when really pwback pain need psychosocial treatments of therapy &...
  4. T

    Press release and full paper available to journalists for important paper being published in a few days

    If any journalists would like a copy of this press release and the embargoed paper, just send me an email at tomkindlon at irishmecfs dot org or private message me (but I will need your full name) Please share widely on social media, by email, et cetera
  5. Indigophoton

    Treating patients suffering from myalgic encephalopathy/chronic fatigue syndrome (ME/CFS) with sodium dichloroacetate, Comhaire 2018

    The new paper mentioned later on in this thread, authored by Frank Comhaire, @ME/CFS, has been published, http://www.medical-hypotheses.com/article/S0306-9877(18)30105-1/fulltext
    • Indigophoton
    • Thread
    • 2018 comhaire dichloroacetate me/cfs nutriceutical paper sodium dichloroacetate treatment
    • Replies: 113
    • Forum: ME/CFS research
  6. Nancy Blake

    Neurolinguistic programming (NLP)

    This thread has been split from here There is a thread elsewhere discussing my Radical Care Pathway for ME/CFS, (now only available via Positive Health e journal). Because in my work as a psychotherapist, I have used NLP, I have come under the suspicion which NLP seems to arouse generally. I...
  7. Sly Saint

    Care Quality Commission - what are they doing re CBT/GET treatment for ME patients

    raised on another thread by @MEMarge. The CQC only deals with services in England but from briefly looking at their website the only ME/CFS service they seem to have inspected is Leeds which currently has an amber 'Requires Improvement' warning having been inspected in 2016. The various checks...
  8. H

    Investigating the effectiveness ... of FITNET-NHS compared to Activity Management to treat paediatric CFS/ME, 2018, Crawley et al. Protocol

    https://www.ncbi.nlm.nih.gov/pubmed/29471861 https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-018-2500-3
  9. H

    A Systematic Review of Probiotic Interventions for Gastrointestinal Symptoms and Irritable Bowel Syndrome in CFS/ME (2018) Marshall-Gradisnik et al

    https://www.ncbi.nlm.nih.gov/pubmed/29464501 https://link.springer.com/article/10.1007%2Fs12602-018-9397-8
    • hixxy
    • Thread
    • 2018 ibs marshall-gradisnik me/cfs ncned paper probiotics systematic review treatment
    • Replies: 21
    • Forum: ME/CFS research
  10. Sasha

    Trial of CT38 for ME/CFS by Cortene Inc.: big claims being made...

    The claim that met my eye, on Cortene's website, was, 'We believe that a short course of treatment with CT38 may be curative.' OTOH, this seems to be some sort of commercial enterprise, being (I think) a drug company, or at least one that looks for uses for drugs (?), so maybe a bit of a pinch...
    • Sasha
    • Thread
    • cortene ct38 discussion thread me/cfs pereira treatment trial
    • Replies: 169
    • Forum: ME/CFS research
  11. Andy

    Open-label pilot for treatment targeting gut dysbiosis in ME/CFS: neuropsychological symptoms and sex comparisons, 2018, Wallis et al

    Open access at https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-018-1392-z
    • Andy
    • Thread
    • 2018 antibiotics gut lactate me/cfs microbiome paper treatment wallis
    • Replies: 2
    • Forum: ME/CFS research
  12. NelliePledge

    A molecular neurobiological approach to understanding the aetiology of CFS/ME/SEID and treatment implications. Paper by Monro & Puri

    https://link.springer.com/article/10.1007/s12035-018-0928-9 Picked up from Twitter Paper by Dr Monro and Prof Puri (Breakspear). I have only skimmed through seems to be a summary setting out their take on ME with references. Not sure how good/useful it is.
  13. Sly Saint

    SAYING NO CAN BE POSITIVE - Info for Those who wish to refuse psychological therapies

    Taken from the Grace Charity for ME (updated 2017) "This document was originally written in response to the Chief Medical Officer’s report in 2002 which triggered the current NHS Chronic Fatigue Syndrome/Myalgic Encephalomyelitis clinics, set up across the country. These clinics consist mainly...
  14. Sly Saint

    Biopsychosocial risk factors of persistent fatigue after acute infection: A systematic review to inform interventions, 2017, Moss-Morris

    Abstract OBJECTIVES: Fatigue is a prevalent and debilitating symptom, preceded by an acute infectious episode in some patients. This systematic review aimed to identify risk factors for the development of persistent fatigue after an acute infection, to develop an evidence-based working model of...
  15. Vertical

    Pain Relief w/o Narcotics

    A recent randomized study reports that pain patients in emergency room setting taking Advil and Tylenol together got the same relief as those taking a narcotic pain reliever. News: https://www.nytimes.com/2017/11/08/well/live/alternatives-to-opioids-for-pain-relief.html Study...
  16. H

    Tutorial: The Practical Application of Longitudinal Structural Equation Mediation Models in Clinical Trials (2017) Chalder et al

    https://www.ncbi.nlm.nih.gov/pubmed/29283590 http://psycnet.apa.org/fulltext/2017-57776-001.pdf
  17. Esther12

    Chronic fatigue syndrome (CFS/ME) symptom-based phenotypes & 1-year treatment outcomes in two clinical cohorts of adult patients.., 2017, Collin et al

    http://www.jpsychores.com/article/S0022-3999(17)30841-3/pdf posted by @Sly Saint in another thread, so it's getting it's own thread here.
  18. H

    A randomised controlled trial of the monoaminergic stabiliser (-)-OSU6162 in treatment of ME/CFS (2017) Nilsson et al.

    https://www.ncbi.nlm.nih.gov/pubmed/29212562
    • hixxy
    • Thread
    • 2017 me/cfs osu6162 paper rct treatment
    • Replies: 23
    • Forum: ME/CFS research
  19. ahimsa

    Treatment suggestions for Orthostatic Intolerance (POTS or NMH)

    I thought I'd start a thread where folks can post links to documents, videos or websites that have treatment suggestions for Orthostatic Intolerance. I hope this is not duplicating any existing thread that is in one of the library sections. I looked but did not see one. Also, by having this...
  20. Sasha

    Migraine treatments

    30 Nov 2017 | BBC: Migraine therapy that cut attacks hailed as 'huge deal' [antibody treatment] Interesting to those of us who get migraines: Read the rest: http://www.bbc.co.uk/news/health-42154668
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