treatment

  1. Andy

    The effects of warm water immersion on blood pressure, heart rate and heart rate variability in people with CFS, 2018, Parker et al

    Open access at https://sajp.co.za/index.php/SAJP/article/view/442
  2. J

    Lofepramine/phenylalanine for fatigue

    Hello, There was some research into looking at a combination of lofepramine and phenylalanine to treat fatigue in MS. It looks like it had a marginal effect https://www.ncbi.nlm.nih.gov/pubmed/12185153 and https://www.ncbi.nlm.nih.gov/pubmed/12376086. Anyway a company called Multicell...
  3. Hip

    Name and shame list of institutions and psychiatrists/psychologists/pediatricians coercing exercise therapy on unwilling ME/CFS patients

    A few years ago I had the idea of starting up a website in which hospitals, institutions or individual psychiatrists and psychologists who coerce exercise therapy upon unwilling ME/CFS patients could be named and shamed. I was just recently reminded of the idea after reading this thread of an...
  4. Sly Saint

    Unraveling the Molecular Determinants of Manual Therapy: An Approach to Integrative Therapeutics for the Treatment of Fibromyalgia and CFS/ME

    Unraveling the Molecular Determinants of Manual Therapy: An Approach to Integrative Therapeutics for the Treatment of Fibromyalgia and Chronic Fatigue Syndrome/Myalgic Encephalomyelitis Received: 2 July 2018 / Revised: 4 September 2018 / Accepted: 7 September 2018 / Published: 9 September 2018...
  5. R

    How Might Benzodiapines (Ativan, Clonazapem) help with ME/CFS?

    I read where for Whitney Dafoe ativan increases his strength for a short period. I am also interested in this as clonazapem does the same for me. I am completely bed bound and have had periods of months at a time when I am too weak to talk at all. I can currently talk in short sentences but only...
  6. Esther12

    [Time for commenting has passed]Birmingham UK CCG DRAFT Policy for the treatment of Chronic Fatigue Syndrome (CFS) / Myalgic Encephalomyelitis (ME)

    Just came upon this, published 10 May 2018: https://sandwellandwestbhamccg.nhs.uk/publications/harmonised-treatment-policies/1713-draft-policy-for-treatment-of-cfs-me-engagement-09-05-2018/file Their public engagement page says that the time for commenting has passed, so maybe not worth posting...
  7. Kalliope

    Low-dose Naltrexone articles and experiences

    Threads about articles and people's experiences with LDN have been merged into this single thread. Medscape: Low-dose Naltrexone Explored as Option for Chronic Pain (by Miriam Tucker) Miriam Tucker's third article from the recent 2- day summit at the Bateman-Horne Center Low-dose Naltrexone...
  8. Andy

    The Effect of Curcumin on Patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: An Open Label Study, 2018, Visser et al

    Open access at http://www.scirp.org/journal/PaperInformation.aspx?PaperID=84389&#abstract
  9. Melanie

    BCG Tuberculosis vaccine - and related testing - EpicGenetics

    EpicGenetics just contacted me and left me a message about a vaccine they are offering for Fibromyalgia patients which they have had very good success with and are trying to get FDA approval for a formal research project. They have been using a Fibromyalgia blood test that is covered by Medicare...
  10. Andy

    Effects of a short-term aquatic exercise intervention on symptoms and exercise capacity in individuals with CFS/ME, 2018, Broadbent et al

    Paywalled at https://link.springer.com/article/10.1007%2Fs00421-018-3913-0
  11. T

    House of Commons Library: Myalgic Encephalomyelitis treatment and research. Debate pack. (June 2018)

    http://researchbriefings.parliament.uk/ResearchBriefing/Summary/CDP-2018-0155#fullreport
  12. Andy

    Current treatment approaches for paediatric CFS/ME, 2017, Loades, Bridgen and Crawley

    If you really want to, the rest can be read at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5939995/
  13. Webdog

    FDA approves first treatment for Pediatric MS

    https://www.nationalmssociety.org/About-the-Society/News/FDA-Expands-Use-of-Gilenya®-(fingolimod)-for-Child (bolding in original)
  14. adreno

    Successful treatment of POTS and MCAS using LDN, immunoglobulin and antibiotics

    Abstract A patient with severe postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS) received immunotherapy with low-dose naltrexone (LDN) and intravenous immunoglobulin (IVIg) and antibiotic therapy for small intestinal bacterial overgrowth (SIBO). A dramatic...
  15. C

    Department of health quoting £3.5m investment in CFS/ME to look at new approaches to treatment - misleads public

    hi I've just been listening to radio Solent at 7:40am BBC local radio. Great advocacy by local lady regarding millions missing but the main drive from her was lack of funding which was responded to at the end by the same statement from the DOH given to the newsbeat documentary about £3.5m...
  16. I

    N-acetyl cysteine (NAC)

    I have recently received my order of Jarrow N-Acetyl-L-Cysteine 600mg sustained release tablets. I am mainly hoping they will improve sleep and help stop the old wired, but tired kind of feeling. I know some take one tablet 3 times per day: am, afternoon and evening. The instructions on the...
  17. Sly Saint

    Are probiotic treatments useful on fibromyalgia syndrome or chronic fatigue syndrome patients? A systematic review - Roman P +

    Are probiotic treatments useful on fibromyalgia syndrome or chronic fatigue syndrome patients? A systematic review. Roman P1,2, Carrillo-Trabalón F3, Sánchez-Labraca N1, Cañadas F4, Estévez AF4, Cardona D1. https://www.ncbi.nlm.nih.gov/pubmed/29695180
  18. Marco

    Drinking baking soda could be an inexpensive, safe way to combat autoimmune disease

    Not addressing the underlying cause of course but by reducing inflammation associated with autoimmune diseases such as rheumatoid arthritis or lupus. It's a little bit garbled but as far as I can tell baking soda appears to reduce inflammation by inducing the cholinergic anti-inflammatory...
  19. Webdog

    New Guidelines for MS Treatment: Start Treatment Early

    https://www.everydayhealth.com/multiple-sclerosis/treatment/new-guidelines-ms-treatment-start-treatment-early/
  20. Sly Saint

    New MRT Imaging Biomarkers and Treatment With Kinetic Oscillatory Stimulation (KOS) in Nasal Cavity for ME/CFS, underway, Karolinska University

    New MRT Imaging Biomarkers and Treatment With Kinetic Oscillatory Stimulation (KOS) in Nasal Cavity for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Source: http://clinicaltrials.gov/show/NCT03502044 ClinicalTrials.gov processed this data on April 18, 2018 Published on...
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