Hello,
There was some research into looking at a combination of lofepramine and phenylalanine to treat fatigue in MS. It looks like it had a marginal effect https://www.ncbi.nlm.nih.gov/pubmed/12185153 and https://www.ncbi.nlm.nih.gov/pubmed/12376086. Anyway a company called Multicell...
A few years ago I had the idea of starting up a website in which hospitals, institutions or individual psychiatrists and psychologists who coerce exercise therapy upon unwilling ME/CFS patients could be named and shamed.
I was just recently reminded of the idea after reading this thread of an...
Unraveling the Molecular Determinants of Manual Therapy: An Approach to Integrative Therapeutics for the Treatment of Fibromyalgia and Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
Received: 2 July 2018 / Revised: 4 September 2018 / Accepted: 7 September 2018 / Published: 9 September 2018...
I read where for Whitney Dafoe ativan increases his strength for a short period. I am also interested in this as clonazapem does the same for me. I am completely bed bound and have had periods of months at a time when I am too weak to talk at all. I can currently talk in short sentences but only...
Just came upon this, published 10 May 2018:
https://sandwellandwestbhamccg.nhs.uk/publications/harmonised-treatment-policies/1713-draft-policy-for-treatment-of-cfs-me-engagement-09-05-2018/file
Their public engagement page says that the time for commenting has passed, so maybe not worth posting...
Threads about articles and people's experiences with LDN have been merged into this single thread.
Medscape: Low-dose Naltrexone Explored as Option for Chronic Pain (by Miriam Tucker)
Miriam Tucker's third article from the recent 2- day summit at the Bateman-Horne Center
Low-dose Naltrexone...
EpicGenetics just contacted me and left me a message about a vaccine they are offering for Fibromyalgia patients which they have had very good success with and are trying to get FDA approval for a formal research project. They have been using a Fibromyalgia blood test that is covered by Medicare...
Abstract
A patient with severe postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS) received immunotherapy with low-dose naltrexone (LDN) and intravenous immunoglobulin (IVIg) and antibiotic therapy for small intestinal bacterial overgrowth (SIBO). A dramatic...
hi
I've just been listening to radio Solent at 7:40am BBC local radio. Great advocacy by local lady regarding millions missing but the main drive from her was lack of funding which was responded to at the end by the same statement from the DOH given to the newsbeat documentary about £3.5m...
I have recently received my order of Jarrow N-Acetyl-L-Cysteine 600mg sustained release tablets. I am mainly hoping they will improve sleep and help stop the old wired, but tired kind of feeling.
I know some take one tablet 3 times per day: am, afternoon and evening.
The instructions on the...
Not addressing the underlying cause of course but by reducing inflammation associated with autoimmune diseases such as rheumatoid arthritis or lupus.
It's a little bit garbled but as far as I can tell baking soda appears to reduce inflammation by inducing the cholinergic anti-inflammatory...
New MRT Imaging Biomarkers and Treatment With Kinetic Oscillatory Stimulation (KOS) in Nasal Cavity for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
Source: http://clinicaltrials.gov/show/NCT03502044
ClinicalTrials.gov processed this data on April 18, 2018
Published on...
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