treatment

  1. Andy

    Favourable outcome without psychotherapy in patients with functional neurologic disorder, 2019, Vermeulen and de Haan

    Paywall, https://www.jocn-journal.com/article/S0967-5868(19)31448-1/fulltext Sci hub, not available via.
  2. Stuart

    Treatment of mitochondria with antioxidants SS-19 and SS-31

    Moderator note: This post and several following have been moved from this thread: 3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019 ________________________________________ Hillary Johnson‏ @oslersweb 9h9 hours ago Ron...
  3. Samuel

    US ME/CFS Clinician Coalition: Guideline - Diagnosing and Treating ME/CFS, 2019, and new website 2020

    omf sent this out: vvv NEW GUIDELINES FOR DIAGNOSING AND TREATING ME/CFS A resource for clinicians and patients. The U.S. ME/CFS Clinician Coalition, a group of U.S. ME/CFS experts, has authored a handout on the basics of diagnosis and management of ME/CFS. This handout is being made...
  4. Kalliope

    The New York Times: Why Doctors Still Offer Treatments That May Not Help

    The New York Times: Why Doctors Still Offer Treatments That May Not Help by Austin Frakt Even when we learn something doesn’t make us better, it’s hard to get the system to stop doing it. It takes years or even decades to reverse medical convention. Some practitioners cling to weak evidence of...
  5. B

    Private UK Consultants not using the psycho-social model recommendations

    Hey there, I'm looking for recommendations for consultants that can be seen privately in the UK who are not subscribed to the psycho-social model. Those who don't just offer GET and CBT, and who offer medical responses. By scouring these forums so far I have identified: Dr. William Weir...
  6. Sly Saint

    Treatment for Gulf War Illness (GWI) with KPAX002 (methylphenidate hydrochloride + GWI nutrient formula) - Holodniy, Kaiser Aug 2019

    Full title Treatment for Gulf War Illness (GWI) with KPAX002 (methylphenidate hydrochloride + GWI nutrient formula) in subjects meeting the Kansas case definition: A prospective, open-label trial (revision 2) https://www.sciencedirect.com/science/article/abs/pii/S0022395619302651 (not...
  7. Binkie4

    Public Nice guidelines and Cannabis treatment for epilepsy and MS

    https://www.theguardian.com/society/2019/aug/08/watchdog-declines-to-back-nhs-cannabis-treatment-for-epilepsy There seem to be some worrying parallels with Nice’s review of guidelines for ME. If only clinical trials are considered as evidence, where do we stand? Also if the guidelines committee...
  8. Simbindi

    Testing Treatments: Better Research for Better Healthcare - book endorsed by NIHR

    I was recently sent a free book from NIHR as a 'thank you' for the past work I had done for them as a patient rep. The book is entitled, 'Testing Treatments - Better Research for Better Healthcare' and is authored by Imogen Evans, Hazel Thornton, Iain Chalmers and Paul Glazziou. I haven't had...
  9. Andy

    Effect of Treatment Preference in Randomized Controlled Trials: Systematic Review of the Literature and Meta-Analysis, 2019, Delevry and Le

    Paywall, https://link.springer.com/article/10.1007%2Fs40271-019-00379-6 Sci hub, https://sci-hub.se/10.1007/s40271-019-00379-6
  10. JemPD

    EFT (Emotional Freedom Technique)...coming to a CFS clinic near you? & a possible advocacy opportunity?

    Wasn't sure where to post this, but i was watching a tv drama & someone was recommended EFT - Emotional Freedom Technique.... which is tapping on the so called 'meridians', to get rid of unwanted emotional distress & also physical pain/ailments especially 'MUS' etc. I seemed to remember some...
  11. Sly Saint

    Behavioural modification interventions for medically unexplained symptoms in primary care: systematic reviews & economic evaluation, 2020, White et al

    Have set this up on a thread on it's own (was previously on https://www.s4me.info/threads/mus-services-in-uk-and-other-mus-related-issues.8318/ ) University of Sheffield. https://www.sheffield.ac.uk/scharr/sections/heds/mus/info...
  12. rvallee

    Cognitive Behavioral Therapy "Evidence-Base" Is Exaggerated (Psychology Today)

    Not about ME but the general evidence basis for CBT. This aligns with work by Keith Laws, who regularly reports on CBT trials failing left and right and being shown to be no better than, well, nothing. There is growing evidence that ALL the evidence for the efficacy and safety of CBT is...
  13. Daisymay

    New Therapy Targets Gut Bacteria to Prevent and Reverse Food Allergies

    https://www.brighamandwomens.org/about-bwh/newsroom/press-releases-detail?id=3352 New Therapy Targets Gut Bacteria to Prevent and Reverse Food Allergies Study finds altered gut microbiota in infants with food allergy; oral therapy to replenish bacteria prevented food allergy and suppressed...
  14. Hutan

    Response to Vitamin B12 and Folic Acid in ME and Fibromyalgia, 2015, Regland et al

    https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0124648 Abstract Background Patients with myalgic encephalomyelitis (ME, also called chronic fatigue syndrome) may respond most favorably to frequent vitamin B12 injections, in vital combination with oral folic acid. However...
  15. D

    Possible Treatment For Bourbon Virus

    A new study points to a successful antiviral, at least in mice, for the Bourbon virus, a deadly TBD spreading in the US...
  16. MeSci

    Gravity-induced exercise intervention in an individual with CFS/ME and POTS, 2019, Ballantine, Srassheim, Newton

    I thought I'd put this in 'News' rather than 'Research' as it looks a bit amateurish. (Maybe Julia Newton was in a teaching capacity?) (He repeatedly misspells 'encephalomyelitis'.) Source: International Journal of Therapy and Rehabilitation Vol 26, #5 Date: June 6, 2019 URL...
  17. Saz94

    Wessely & Smith (2015): "Linking benefits to treatment is unethical and probably illegal"

    I just came across this, from 2015: https://www.theguardian.com/commentisfree/2015/jul/29/coercing-people-mental-health-problems-work-treatment Which I completely agree with, but was surprised to see Wessely saying it. Isn't it his sort of work that gets used to refuse benefits to ME/CFS...
  18. Sly Saint

    Magical treatments and (lack of) peer review

    eta:hmm, maybe he draws a magic circle and says stop?
  19. Andy

    Cognitive behavioural therapy for ME/chronic fatigue syndrome is not effective. Re-analysis of a Cochrane review, 2019, Vink & Vink-Niese

    Open access at https://journals.sagepub.com/doi/full/10.1177/2055102919840614
  20. Andy

    The ‘cognitive behavioural model’ of chronic fatigue syndrome: Critique of a flawed model, 2019, Geraghty et al

    Open access at https://journals.sagepub.com/doi/full/10.1177/2055102919838907
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