treatment

https://www.theguardian.com/society/2019/aug/08/watchdog-declines-to-back-nhs-cannabis-treatment-for-epilepsy There seem to be some worrying parallels with Nice’s review of guidelines for ME. If only clinical trials are considered as evidence, where do we stand? Also if the guidelines committee...

I was recently sent a free book from NIHR as a 'thank you' for the past work I had done for them as a patient rep. The book is entitled, 'Testing Treatments - Better Research for Better Healthcare' and is authored by Imogen Evans, Hazel Thornton, Iain Chalmers and Paul Glazziou. I haven't had...

Paywall, https://link.springer.com/article/10.1007%2Fs40271-019-00379-6 Sci hub, https://sci-hub.se/10.1007/s40271-019-00379-6

Wasn't sure where to post this, but i was watching a tv drama & someone was recommended EFT - Emotional Freedom Technique.... which is tapping on the so called 'meridians', to get rid of unwanted emotional distress & also physical pain/ailments especially 'MUS' etc. I seemed to remember some...

Have set this up on a thread on it's own (was previously on https://www.s4me.info/threads/mus-services-in-uk-and-other-mus-related-issues.8318/ ) University of Sheffield. https://www.sheffield.ac.uk/scharr/sections/heds/mus/info...

Not about ME but the general evidence basis for CBT. This aligns with work by Keith Laws, who regularly reports on CBT trials failing left and right and being shown to be no better than, well, nothing. There is growing evidence that ALL the evidence for the efficacy and safety of CBT is...

https://www.brighamandwomens.org/about-bwh/newsroom/press-releases-detail?id=3352 New Therapy Targets Gut Bacteria to Prevent and Reverse Food Allergies Study finds altered gut microbiota in infants with food allergy; oral therapy to replenish bacteria prevented food allergy and suppressed...

https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0124648 Abstract Background Patients with myalgic encephalomyelitis (ME, also called chronic fatigue syndrome) may respond most favorably to frequent vitamin B12 injections, in vital combination with oral folic acid. However...

A new study points to a successful antiviral, at least in mice, for the Bourbon virus, a deadly TBD spreading in the US...

I thought I'd put this in 'News' rather than 'Research' as it looks a bit amateurish. (Maybe Julia Newton was in a teaching capacity?) (He repeatedly misspells 'encephalomyelitis'.) Source: International Journal of Therapy and Rehabilitation Vol 26, #5 Date: June 6, 2019 URL...

I just came across this, from 2015: https://www.theguardian.com/commentisfree/2015/jul/29/coercing-people-mental-health-problems-work-treatment Which I completely agree with, but was surprised to see Wessely saying it. Isn't it his sort of work that gets used to refuse benefits to ME/CFS...

eta:hmm, maybe he draws a magic circle and says stop?

Open access at https://journals.sagepub.com/doi/full/10.1177/2055102919840614

Open access at https://journals.sagepub.com/doi/full/10.1177/2055102919838907

Hi, My question is has anybody tried fludrocortisone and has it made any difference? My M. E. is very severe I am bedbound does anybody know whether this would assist in enabling me to sit up in bed? I realise that you have to increase salt intake and wear compression stockings but I just...

This discussion has been split from the 2019 NIH conference thread I don't understand that. Orthostatic intolerance is the inability to tolerate standing up. By definition you know you have that if you have it. Maybe Dr Bateman is referring to haemodynamic changes that might be thought to...

hi I have a very low dose of Lyrica aka Pregabalin for neuropathic pain which I get in hands and feet most noticeably at night. I had a bad experience with it when I first started taking it because I’m one of those who are knocked out by medications. I’ve stopped taking amitryptiline or...

I haven't looked at this, but it sounds interesting and relevant. It is accepted by the CBT-GET promoters that there are biological changes in patients with ME. A key part of their argument has always been that psychotherapy can bring about or reverse biological changes. Here is a study that...

https://johnthejack.com/2019/03/16/toxic-numbers/

Paywalled at https://www.cambridge.org/core/journals/behavioural-and-cognitive-psychotherapy/article/implementation-of-stepped-care-for-patients-with-chronic-fatigue-syndrome-in-communitybased-mental-health-care-outcomes-at-posttreatment-and-longterm-followup/842DB10C681E7D7A8725BE0DB8848B07