I thought it might be useful to get an overview of medical guidelines on ME/CFS that have been influenced by the Cochrane review on graded exercise therapy (GET).
I’m mostly interested in official government positions or influential medical authorities that have referred to the Cochrane review...
I’ve recently started a treatment with Disulfiram. My doctor thinks there is a possibility that I have Lyme and put me on antibiotics. After reading a lot about it, I’ve decided I didn’t want to go that route. Meanwhile, I learned about a new Lyme treatment with Disulfiram that was supposedly...
Service based comparison of group cognitive behavior therapy to waiting list control for chronic fatigue syndrome with regard to symptom reduction and positive psychological dimensions
Heald, Adrian PhDa,*; Barber, Louise PhDb; Jones, Helen Lyon PhDb; Farman, Sanam MDc; Walther, Andreas PhDd...
Full title: The Efficacy and Safety of Myelophil, an Ethanol Extract Mixture of Astragali Radix and Salviae Radix, for Chronic Fatigue Syndrome: A Randomized Clinical Trial
Open access, https://www.frontiersin.org/articles/10.3389/fphar.2019.00991/full
I'm dubious about the value of this paper...
https://www.ncbi.nlm.nih.gov/pubmed/25362239
http://sci-hub.tw/10.1002/14651858.CD011142.pub2#
Of note
curious that this Cochrane review doesn't get so much 'attention'o_O
eta: see also Cochrane Clinical Answers
https://www.cochrane.org/news/cochrane-clinical-answers
Question:
What are...
According to this Medscape report https://www.medscape.com/viewarticle/916994
Unfortunately for me, lifting my arms is never therapeutic. Strong floral odors can be unpleasant also.
Surely the more severe cases (who couldn't reliably turn up at the venue) dropped out.
Chronic Fatigue Syndrome: Progress Towards Diagnosis And Treatment, Finally?
Article is written by Henry I. Miller, physician and Senior Fellow at the Pacific Research Institute. He has also been a Research Fellow at the National Institutes of Health and the founding director of the Office of...
I know that fatigue≠ME/CFS but maybe the study might be of some use, possibly (I doubt it but you never know).
Paywall, https://www.sciencedirect.com/science/article/abs/pii/S0965229919301542
Sci hub, https://sci-hub.se/10.1016/j.ctim.2019.05.027
I wonder if this will impact some of the treatments marketed to treat ME/CFS..
A new policy on advertising for speculative and experimental medical treatments
September 6, 2019
Today, we’re announcing a new Healthcare and medicines policy to prohibit advertising for unproven or experimental...
Moderator note:
This post and several following have been moved from this thread:
3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019
________________________________________
Hillary Johnson @oslersweb 9h9 hours ago
Ron...
omf sent this out:
vvv
NEW GUIDELINES FOR DIAGNOSING AND TREATING ME/CFS
A resource for clinicians and patients.
The U.S. ME/CFS Clinician Coalition, a group of U.S. ME/CFS experts, has authored a handout on the basics of diagnosis and management of ME/CFS.
This handout is being made...
The New York Times: Why Doctors Still Offer Treatments That May Not Help by Austin Frakt
Even when we learn something doesn’t make us better, it’s hard to get the system to stop doing it. It takes years or even decades to reverse medical convention. Some practitioners cling to weak evidence of...
Hey there, I'm looking for recommendations for consultants that can be seen privately in the UK who are not subscribed to the psycho-social model. Those who don't just offer GET and CBT, and who offer medical responses.
By scouring these forums so far I have identified:
Dr. William Weir...
Full title
Treatment for Gulf War Illness (GWI) with KPAX002 (methylphenidate hydrochloride + GWI nutrient formula) in subjects meeting the Kansas case definition: A prospective, open-label trial (revision 2)
https://www.sciencedirect.com/science/article/abs/pii/S0022395619302651
(not...
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