hi I've just been listening to radio Solent at 7:40am BBC local radio. Great advocacy by local lady regarding millions missing but the main drive from her was lack of funding which was responded to at the end by the same statement from the DOH given to the newsbeat documentary about £3.5m being invested past six years looking at new treatments. I'm really troubled by this because obviously what patients are protesting is the lack of money for biomedical research whereas I'm pretty confident the research that doh is referencing is the type of behavioural research we haven't wanted, such as the NIHR funding Crawley and Collins to look at CBT & GET. Can anyone think of anything else to account for that money? This ofcourse isn't going to be understood by the public so what the government is trotting out completely undermines the "there's been virtually no money invested in biological research " message that people are trying to get out this week. Knowing how government spins on other matters to obsfucate and create false impressions, I think this is what's happening now , or even if it's innocent it's having a completing neutralising effect in the media AFAIC. What can we do, we can reply to counter But in just responding to the media as we hear it as I've done for eg on newsbeat Facebook, it's too late, the message is already out there. DOH statement on research funding "Chronic fatigue syndrome is a debilitating and poorly understood condition. That's why over the past six years we have invested £3.35 m in research to improve understanding of the condition and to look at new approaches to treatment....." Whereas my understanding the past six years is that in terms of biomedical research may 2012 to May 2018, there's been the mark Edwards study possibly getting around £200 000 and some funding has been quoted for further biomedical research, perhaps Newton or mitochondrial I cant remember, that's it.