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[Time for commenting has passed]Birmingham UK CCG DRAFT Policy for the treatment of Chronic Fatigue Syndrome (CFS) / Myalgic Encephalomyelitis (ME)

Discussion in 'Advocacy Projects and Campaigns' started by Esther12, Jul 30, 2018.

  1. Esther12

    Esther12 Senior Member (Voting Rights)

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    Just came upon this, published 10 May 2018:
    https://sandwellandwestbhamccg.nhs....reatment-of-cfs-me-engagement-09-05-2018/file

    Their public engagement page says that the time for commenting has passed, so maybe not worth posting here.... but there's not much to lose.


    https://sandwellandwestbhamccg.nhs.uk/public-engagement
     
    Dolphin, Trish and adambeyoncelowe like this.
  2. Trish

    Trish Moderator Staff Member

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    ''it is characterised by long term tiredness''
    ''out-patient therapy in the form of a PACE programme comprising of CBT/exercise therapy''

    Oh dear. Now they are even naming it a PACE programme. When did that start happening? And they have no idea what ME/CFS is.
    I haven't dared look at what my local CCG says about ME.
     
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  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    this was retweeted by MP Tom Watson (one of the four MPs for Sandwell area)
    might be worth tweeting back and linking to the parl debate tweet (with MP holding PACE edition of JHP, its on David Marks twitter feed); asking why is the NHS pushing a debunked treatment.



    he also retweeted this:
     
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