pots

Source: Autonomic Neuroscience Preprint Date: February 22, 2018 URL: https://www.sciencedirect.com/science/article/pii/S1566070217303284 http://www.autonomicneuroscience.com/article/S1566-0702(17)30328-4/fulltext Managing fatigue in postural tachycardia syndrome (PoTS): The Newcastle approach...

Increased Endogenous Sulfur Dioxide Involved in the Pathogenesis of Postural Tachycardia Syndrome in Children: A Case‐Control Study Hong‐Xia Li1, Xiao‐Chun Zheng1, Si‐Yao Chen2, Ying Liao1, Zhen‐Hui Han3, Pan Huang1, Chu‐Fan Sun1, Jia Liu1, Jing‐Yuan Song1, Chao‐Shu Tang4, Jun‐Bao Du1...

In the Netherlands I know of only 1 ME / POTS / Fybro specialist. His name is Professor Dr. Frans Visser. His clinic is called Stichting Cardiozorg. He is a professor in cardiology and has specialised in ME and POTS. He was the first to diagnose me correctly with ME and POTS. Google translated...

Paywalled at https://link.springer.com/article/10.1007%2Fs10067-018-4009-2

FAINTING BY NUMBERS: DYSAUTONOMIA PART 1 https://thechronicelephant.blogspot.co.uk/2017/10/fainting-by-numbers-dysautonomia-part-1.html

Paywalled at https://link.springer.com/article/10.1007%2Fs40256-017-0252-1

Open access at https://rd.springer.com/article/10.1186/s12967-018-1397-7

Posted today (Jan 24 2018) by the ME Association. I thought this forum was a good one for discussion but if this thread should be posted elsewhere then please feel free to ask for it to be moved. I have not yet read this. And I can't join in any debate. No medical expertise plus "brain fog"...

From the Stakeholders meeting of NICE:- So, my experience from 2017. I asked my GP to refer me for a tilt table test as I have had varying symptoms when standing, climbing stairs, any uphill walk (not exactly hills, you understand, but we do live on a slope and I do walk a slow dog and...

http://www.bbc.co.uk/newsbeat/article/42556222/stansted-airport-staff-told-me-i-dont-look-ill-enough-to-be-disabled

Mods, this article straddles a couple of categories so please go ahead and transfer it if it's not the right place. It's a long read describing the onset of m.e. following hard upon a vaccination with Gardisil. Its focus is primarily on the problematic collection of data during the clinical...

http://www.dysautonomiainternational.org/page.php?ID=225

I thought I'd start a thread where folks can post links to documents, videos or websites that have treatment suggestions for Orthostatic Intolerance. I hope this is not duplicating any existing thread that is in one of the library sections. I looked but did not see one. Also, by having this...

This video by Dysautonomia International gives a basic overview of POTS (Postural Orthostatic Tachycardia Syndrome). The video is on Facebook but you don't have to have an account to view it. Patients with POTS or other types of Orthostatic Intolerance may not find much useful information here...

Videos and PDFs of lectures that took place in Newcastle (two by Pr. Julia Newton): http://www.potsuk.org/lectures