pots

http://www.dysautonomiainternational.org/blog/wordpress/100000-research-grant-to-study-brain-fog-in-pots/

Paywalled at https://www.karger.com/Article/Abstract/493531#tab4

Video talk https://powerhealthtalk.com/pots-more-evidence-that-it-is-autoimmune.htm

Dr. David M. Systrom of Brigham and Women’s Hospital (Boston) is confident that his team has objective evidence of small-fiber polyneuropathy (SFPN) in 40-50% of ME patients. Dr Systrom was interviewed by Llewelyn King in this video: . I put the timestamp at the part involved with SFPN but the...

https://edition.cnn.com/2018/06/26/health/pots-tori-nick-foles-dysautonomia/index.html

Abstract A patient with severe postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS) received immunotherapy with low-dose naltrexone (LDN) and intravenous immunoglobulin (IVIg) and antibiotic therapy for small intestinal bacterial overgrowth (SIBO). A dramatic...

Angiotensin II Type 1 Receptor Autoantibodies in Postural Tachycardia Syndrome Authors:Xichun Yu, Hongliang Li, Taylor A. Murphy, Zachary Nuss, Jonathan Liles, Campbell Liles, Christopher E. Aston, Satish R. Raj, Artur Fedorowski, David C. Kem (from Oklahoma, Sweden and Calgary) Abstract...

American Journal of Respiratory and Critical Care Medicine 2018;197:A6146 Exercise Intolerance in Preload Failure Treated with Pyridostigmine M. Faria Urbina 1, R. Oliveira 2, A.L. Oaklander 3, A.B. Waxman 1, D.M. Systrom 1...

This is related to ME but I didn't see where else this might belong. So it's here: https://www.ncbi.nlm.nih.gov/pubmed/29618472 I would like to have some thoughts on this research if anyone is able. @Jonathan Edwards perhaps? POTS is such a huge co-morbid issue for many of us. Though I...

https://www.ncbi.nlm.nih.gov/pubmed/29618472 other authors include Dr. Satish Raj and Dr. Kem of the University of Oklahoma.

http://www.journal-of-cardiology.com/article/S0914-5087(18)30058-3/fulltext#.WrzVHiFZs-E.twitter

Available in PDF format here

I’m currently crashing and I’m just curious about how you would describe your crashes/flares/PEM/bust phases? What does it feel like? (Bearing in mind I won’t be able to read long answers ;)) To me it feels like the top of my spine is inflamed and also the area which is likely my spleen. Light...

Source: Autonomic Neuroscience Preprint Date: February 22, 2018 URL: https://www.sciencedirect.com/science/article/pii/S1566070217303284 http://www.autonomicneuroscience.com/article/S1566-0702(17)30328-4/fulltext Managing fatigue in postural tachycardia syndrome (PoTS): The Newcastle approach...

Increased Endogenous Sulfur Dioxide Involved in the Pathogenesis of Postural Tachycardia Syndrome in Children: A Case‐Control Study Hong‐Xia Li1, Xiao‐Chun Zheng1, Si‐Yao Chen2, Ying Liao1, Zhen‐Hui Han3, Pan Huang1, Chu‐Fan Sun1, Jia Liu1, Jing‐Yuan Song1, Chao‐Shu Tang4, Jun‐Bao Du1...

In the Netherlands I know of only 1 ME / POTS / Fybro specialist. His name is Professor Dr. Frans Visser. His clinic is called Stichting Cardiozorg. He is a professor in cardiology and has specialised in ME and POTS. He was the first to diagnose me correctly with ME and POTS. Google translated...

Paywalled at https://link.springer.com/article/10.1007%2Fs10067-018-4009-2

FAINTING BY NUMBERS: DYSAUTONOMIA PART 1 https://thechronicelephant.blogspot.co.uk/2017/10/fainting-by-numbers-dysautonomia-part-1.html

Paywalled at https://link.springer.com/article/10.1007%2Fs40256-017-0252-1