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pots

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  1. chelby
    Thread

    Does PEM contribute to POTS?

    Wondering if PEM itself contributes to POTS. I remember reading Prof Neil McGregor's studies showing PEM involves a hypermetabolic state where...
    Thread by: chelby, Oct 18, 2019, 7 replies, in forum: Treating POTS and Orthostatic Intolerance
  2. Subtropical Island
    Thread

    Can POTS come and go? Variability of POTS degree with PEM

    I’ve previously considered myself to be unlikely to have POTS. I can be almost normally active on very good days (paid for later). But a recent...
    Thread by: Subtropical Island, Jun 19, 2019, 6 replies, in forum: Cardiovascular and Respiratory
  3. Remi
    Thread

    Anyone with dysautonomia but no OI?

    With a sports watch I found out my HR goes up with more than 30 bpm withon 10 minutes when I move my limbs, but not on standing still. I can put...
    Thread by: Remi, May 25, 2019, 9 replies, in forum: Cardiovascular and Respiratory
  4. Sly Saint
    Thread

    Current trial: Reducing Orthostatic Intolerance With Oral Rehydration in ME/CFS Patients 2019 - New York Medical College

    Brief Summary: We and others have shown that many younger patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) have...
    Thread by: Sly Saint, May 8, 2019, 1 replies, in forum: BioMedical ME/CFS Research
  5. wingate
    Thread

    How to distinguish between Dysautonomia and ME/CFS?

    Hello, I'm interested in learning more about how one can distinguish between POTS (or another variant of dysautonomia) and ME/CFS, and how a...
    Thread by: wingate, May 8, 2019, 17 replies, in forum: Post-Exertional Malaise, Fatigue, and Crashes
  6. PaulaKnight
    Thread

    Mestinon UK

    Does anybody know of a UK cardiologist prescribing Mestinon? I was hoping to be referred to Dr Jamie Fulton in Plymouth from Bristol but I've just...
    Thread by: PaulaKnight, Feb 20, 2019, 0 replies, in forum: Treating POTS and Orthostatic Intolerance
  7. strategist
    Thread

    Hypocapnic cerebral hypoperfusion: A biomarker of orthostatic intolerance (2018), Novak

    The objective of the study was to identify markers of hypocapnic cerebral hypoperfusion (HYCH) in patients with orthostatic intolerance (OI)...
    Thread by: strategist, Feb 4, 2019, 1 replies, in forum: BioMedical ME/CFS Research
  8. Liessa
    Thread

    Video: Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders

    Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders [MEDIA] First 20 minutes are an introduction and...
    Thread by: Liessa, Feb 1, 2019, 0 replies, in forum: Immune: Autoimmune and Mast Cell Disorders
  9. Milo
    Thread

    The Neuropsychological Profile of Postural Orthostatic Tachycardia Syndrome: Sibling Case Study (2018) Loughan et al.

    The Neuropsychological Profile of Postural Orthostatic Tachycardia Syndrome: Sibling Case Study (Note: there is no category for research related...
    Thread by: Milo, Dec 24, 2018, 0 replies, in forum: Health News and Research unrelated to ME/CFS
  10. Milo
    Thread

    Moving from the present to the future of Postural Tachycardia Syndrome – What we need 2018, Raj

    Moving from the present to the future of Postural Tachycardia Syndrome – What we need This is sort of related to ME as many, many of us have POTS...
    Thread by: Milo, Dec 14, 2018, 2 replies, in forum: Treating POTS and Orthostatic Intolerance
  11. Andy
    Thread

    Issue of Autonomic Neuroscience dedicated to POTS

    The issue contains 19 journal articles summarizing what we know about POTS to date, each written by leading experts in the field. Includes an...
    Thread by: Andy, Dec 7, 2018, 4 replies, in forum: Treating POTS and Orthostatic Intolerance
  12. Andy
    Thread

    Dysautonomia International: $500,000 in POTS Research Grants Available

    Received as an email so quoting all of it. CALL FOR PROPOSALS $500,000 in POTS Research Grants Available Letter of Intent Due February 1, 2019...
    Thread by: Andy, Dec 6, 2018, 1 replies, in forum: Treating POTS and Orthostatic Intolerance
  13. Patient4Life
    Thread

    Autonomic dysfunction and HPV immunization: an overview. (2018) Blitshetyn et al.

    Autonomic dysfunction and HPV immunization: an overview. Abstract This article reviews the case series reported from several countries describing...
    Thread by: Patient4Life, Nov 29, 2018, 0 replies, in forum: Health News and Research unrelated to ME/CFS
  14. Kalliope
    Thread

    Frontiers in Pediatrics: Blood volume status in ME/CFS correlates with the presence or absence of orthostatic symptoms (2018) Van Campen et al

    Frontiers in Pediatrics: Blood volume status in CFS/ME correlates with the presence or absence of orthostatic symptoms Introduction: Conflicting...
    Thread by: Kalliope, Nov 1, 2018, 13 replies, in forum: BioMedical ME/CFS Research
  15. Matt (@DondochakkaB)
    Thread

    Re-Hydration

    I'm interested if anyone has any improved, cheap to make, hydration solutions, compared to Dr Bell's Gookinaid (mix of Salt and Potassium in...
    Thread by: Matt (@DondochakkaB), Oct 14, 2018, 16 replies, in forum: Treating POTS and Orthostatic Intolerance
  16. Andy
    Thread

    $100,000 Research Grant to Study Brain Fog in POTS

    Dysautonomia International is pleased to issue a $100,000 grant to Dr. Jessica Eccles, NIHR Clinical Lecturer at Brighton and Sussex Medical...
    Thread by: Andy, Oct 12, 2018, 1 replies, in forum: Neurological/Cognitive: Brain Fog, Concentration
  17. rvallee
    Thread

    Dr David M. Systrom at BWH has evidence of SFPN in some patients

    Dr. David M. Systrom of Brigham and Women’s Hospital (Boston) is confident that his team has objective evidence of small-fiber polyneuropathy...
    Thread by: rvallee, Jul 3, 2018, 71 replies, in forum: BioMedical ME/CFS Research
  18. Andy
    Thread

    Dysautonomia International Webinar: Sleep Disorders in POTS

    Dr. Mitch Miglis and Dr. Fiona Barwick from Stanford University presented on sleep disorders in POTS during this May 2018 Dysautonomia...
    Thread by: Andy, Jun 4, 2018, 0 replies, in forum: Sleep Disturbance
  19. Milo
    Thread

    Angiotensin II Type 1 Receptor Autoantibodies in Postural Tachycardia Syndrome (2018) Yu et al

    Angiotensin II Type 1 Receptor Autoantibodies in Postural Tachycardia Syndrome Authors:Xichun Yu, Hongliang Li, Taylor A. Murphy, Zachary Nuss,...
    Thread by: Milo, May 13, 2018, 9 replies, in forum: BioMedical ME/CFS Research
  20. Snowdrop
    Thread

    Angiotensin II type 1 receptor autoantibodies in POTS (2018) Yu et al

    This is related to ME but I didn't see where else this might belong. So it's here: https://www.ncbi.nlm.nih.gov/pubmed/29618472 I would like to...
    Thread by: Snowdrop, Apr 28, 2018, 8 replies, in forum: Health News and Research unrelated to ME/CFS
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