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Low sensitivity of abbreviated tilt table testing for diagnosing postural tachycardia syndrome in adults with ME/CFS, 2018, van Campen, Rowe & Visser

Discussion in 'BioMedical ME/CFS Research' started by Andy, Nov 2, 2018.

  1. Andy

    Andy Committee Member & Outreach

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    Abstract only at moment, https://www.frontiersin.org/articles/10.3389/fped.2018.00349/abstract
     
  2. Mithriel

    Mithriel Senior Member (Voting Rights)

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    So the 35 seconds I managed to stand in the GPs surgery were not a good reason for the cardiologist to say confidently that I didn't have POTS? Well, there's a shock!
     
  3. Sasha

    Sasha Senior Member (Voting Rights)

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    Pity this doesn't address NMH (another form of OI), which requires a considerably longer test.
     
  4. Sasha

    Sasha Senior Member (Voting Rights)

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    Same happened to me, but in a cardiologist's office, who dismissed the published criteria that I mentioned. Took me five years to get my OI diagnosed via a longer test.
     
  5. Inara

    Inara Senior Member (Voting Rights)

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    Well, that is quite interesting. Thanks @Andy. I would also be interested in the comparison of poor man's tilt table test with tilt table test (or does that exist?).
     
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  6. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Coincides with their paper
    Passive standing tests for the office diagnosis of postural tachycardia syndrome: New methodological considerations (Peter Rowe team 2018) discussed in this thread.

    I was recently turned down for an assessment for POTS from my local hospital and am considering trying the NASA 10 minutes lean test myself at home. https://batemanhornecenter.org/wp-content/uploads/2016/09/NASA-Lean-Test-Instructions.pdf

    Seems very few doctors here in Norway have heard about POTS. The first patient who got diagnosed was in 2015. I got the impression that my local hospital turns down referrals because they believe this is just a fad among people having read about it on internet.
     
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  7. obeat

    obeat Senior Member (Voting Rights)

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    There is a paper by S R Raj comparing TTT and standing tests but I can't get it to upload to site.
     
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  8. andypants

    andypants Senior Member (Voting Rights)

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    I did the poor mans ttt at home and qualified for POTS in the first minute of standing. I’m now pushing for a referral to Riksen, where they apparently have a tilt table, but of course GP haven’t heard of POTS or OI so doesn’t see the point.
     
  9. Andy

    Andy Committee Member & Outreach

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