pots

Moderator note: Use this thread to discuss the possibility of an ME/CFS or ME/CFS-like illness following Covid-19. Initial posts have been moved from the Coronavirus - world-wide spread and control thread. (Up to post #840 so far) *************** It's interesting that in the 2003 SARS...

Heart rate and heart rate variability comparison between postural orthostatic tachycardia syndrome versus healthy participants; a systematic review and meta-analysis Joel Swai, Zixuan Hu, Xiexiong Zhao, Tibera Rugambwa & Gui Ming...

The Benefits of Oral Rehydration on Orthostatic Intolerance in Children with Postural Tachycardia Syndrome Marvin S. Medow, PhD, Kenneth Guber, BSm Shilpan Chokshi, BS, Courtney Terilli, BSN, Paul Visintainer, PhD, Julian M. Stewart, MD, PhD...

Paradigme shift to disequilibrium in the genesis of orthostatic intolerance in patients with chronic fatigue syndrome K Miwa European Heart Journal, Volume 40, Issue Supplement_1, October 2019 https://doi.org/10.1093/eurheartj/ehz746.0311

Wondering if PEM itself contributes to POTS. I remember reading Prof Neil McGregor's studies showing PEM involves a hypermetabolic state where we urinate out metabolites. Does anyone know if this contributes to orthostatic intolerance / lowered blood volume?

Open access here: www.ahajournals.org/doi/10.1161/JAHA.119.013006 Editorial here: www.ahajournals.org/doi/10.1161/JAHA.119.014084 Funded by Dysautonomia International. From their press release:

https://www.ahajournals.org/doi/10.1161/JAHA.119.013602

Open access at www.sciencedirect.com/science/article/pii/S2589909019300061

I’ve previously considered myself to be unlikely to have POTS. I can be almost normally active on very good days (paid for later). But a recent experience of tachycardia (110-135bpm when normal resting was 58-70) for days on end, and repeated instances in the days before and after that of...

I thought I'd put this in 'News' rather than 'Research' as it looks a bit amateurish. (Maybe Julia Newton was in a teaching capacity?) (He repeatedly misspells 'encephalomyelitis'.) Source: International Journal of Therapy and Rehabilitation Vol 26, #5 Date: June 6, 2019 URL...

With a sports watch I found out my HR goes up with more than 30 bpm withon 10 minutes when I move my limbs, but not on standing still. I can put on a sweater lying down and have HR of 120, and can stand with normal HR as long as I keep still. I have many other symptoms of dysautonomia, such as...

https://clinicaltrials.gov/ct2/show/study/NCT02854683

Hello, I'm interested in learning more about how one can distinguish between POTS (or another variant of dysautonomia) and ME/CFS, and how a doctor could determine whether a patient had one vs. the other condition. The symptoms required to diagnose ME/CFS (using Canadian Consensus as an...

In addition to ME/CFS, do you have a diagnosis of any of the following conditions? Endometriosis Fibromyalgia Hypermobility/Ehlers Danlos syndrome Interstitial Cystitis Irritable Bowel Syndrome Jaw pain - Temperomandibular Jaw Dysfunction Migraine Multiple Chemical Sensitivities Postural...

I convinced my GP to let me try Mestinon about 18 months ago, but never got as far as actually trying it until now. I have been holding off because I didn't want to muddle the results by starting it too close to my last rtx dose or while I was starting out on LDN. While LDN is extremely...

https://doi.org/10.1371/journal.pone.0204419 My take away from this: patients with hypocapnic cerebral hypoperfusion present the same symptoms as patients with POTS but can fail a tilt test due to absence of tachycardia. ME/CFS is also mentioned.

Dr. Peter Vadas - CME Presentation: Mast Cells Gone Wild - Mast Cell Activation Disorders First 20 minutes are an introduction and offsetting MCAS against mastocytosis. After that he focuses on the type of MCAS that overlaps with POTS and EDS, mentioning the following article: JJ Lyons et...

The Neuropsychological Profile of Postural Orthostatic Tachycardia Syndrome: Sibling Case Study (Note: there is no category for research related to ME. POTS is co-morbid to ME, so it is related to ME but not ME only research) This is potentially important research to prove disability...

Moving from the present to the future of Postural Tachycardia Syndrome – What we need This is sort of related to ME as many, many of us have POTS as comorbidity. This article discusses the needs of the disease and as simple as this artile is, it is also very relevant for ME. In fact you could...

Includes an article co-written by Julia Newton. All articles open access for 12 months. https://www.sciencedirect.com/journal/autonomic-neuroscience/vol/215/suppl/C ETA: Taken out reference to open access editorial, the only open access part is the list of board members. ETA2: All articles...