pots

  1. Andy

    Improvement of severe myalgic encephalomyelitis/chronic fatigue syndrome symptoms following surgical treatment of cervical spinal stenosis, 2018, Rowe

    Open access at https://rd.springer.com/article/10.1186/s12967-018-1397-7
  2. ahimsa

    MEA Summary Review: The dysfunctional autonomic nervous system in ME/CFS

    Posted today (Jan 24 2018) by the ME Association. I thought this forum was a good one for discussion but if this thread should be posted elsewhere then please feel free to ask for it to be moved. I have not yet read this. And I can't join in any debate. No medical expertise plus "brain fog"...
  3. It's M.E. Linda

    Orthostatic Intolerance in PwME (POTS?/NMH?) - discussion thread

    From the Stakeholders meeting of NICE:- So, my experience from 2017. I asked my GP to refer me for a tilt table test as I have had varying symptoms when standing, climbing stairs, any uphill walk (not exactly hills, you understand, but we do live on a slope and I do walk a slow dog and...
  4. Andy

    BBC Newsbeat: " Stansted Airport staff told me I 'don't look ill enough' to be disabled "

    http://www.bbc.co.uk/newsbeat/article/42556222/stansted-airport-staff-told-me-i-dont-look-ill-enough-to-be-disabled
  5. akrasia

    What the Gardasil Testing May Have Missed

    Mods, this article straddles a couple of categories so please go ahead and transfer it if it's not the right place. It's a long read describing the onset of m.e. following hard upon a vaccination with Gardisil. Its focus is primarily on the problematic collection of data during the clinical...
  6. Andy

    Enrolling Now [Dec 2017] - Droxidopa in POTS and VVS, New York Medical College

    http://www.dysautonomiainternational.org/page.php?ID=225
  7. ahimsa

    Treatment suggestions for Orthostatic Intolerance (POTS or NMH)

    I thought I'd start a thread where folks can post links to documents, videos or websites that have treatment suggestions for Orthostatic Intolerance. I hope this is not duplicating any existing thread that is in one of the library sections. I looked but did not see one. Also, by having this...
  8. ahimsa

    News from Dysautonomia International

    This video by Dysautonomia International gives a basic overview of POTS (Postural Orthostatic Tachycardia Syndrome). The video is on Facebook but you don't have to have an account to view it. Patients with POTS or other types of Orthostatic Intolerance may not find much useful information here...
  9. Cheshire

    POTS, Lectures Newcastle May 2017

    Videos and PDFs of lectures that took place in Newcastle (two by Pr. Julia Newton): http://www.potsuk.org/lectures
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