pots

  1. Patient4Life

    Autonomic dysfunction and HPV immunization: an overview. (2018) Blitshetyn et al.

    Autonomic dysfunction and HPV immunization: an overview.
  2. Andy

    Review: Postural orthostatic tachycardia syndrome: clinical presentation, aetiology and management, 2018, Fedorowski

    Open access at https://onlinelibrary.wiley.com/doi/full/10.1111/joim.12852
  3. Andy

    Verification of exercise-induced transient postural tachycardia phenotype in Gulf War Illness, 2018, Garner, Rayhan and Baraniuk

    Open access at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6220213/
  4. Andy

    Low sensitivity of abbreviated tilt table testing for diagnosing postural tachycardia syndrome in adults with ME/CFS, 2018, van Campen, Rowe & Visser

    Abstract only at moment, https://www.frontiersin.org/articles/10.3389/fped.2018.00349/abstract
    • Andy
    • Thread
    • 2018 campen cardiology me/cfs orthostatic intolerance paper pots rowe tilt table test visser
    • Replies: 8
    • Forum: ME/CFS research
  5. Kalliope

    Frontiers in Pediatrics: Blood volume status in ME/CFS correlates with the presence or absence of orthostatic symptoms (2018) Van Campen et al

    Frontiers in Pediatrics: Blood volume status in CFS/ME correlates with the presence or absence of orthostatic symptoms Introduction: Conflicting data have been published on the reduction of circulating blood volume in adults with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The...
    • Kalliope
    • Thread
    • 2018 blood volume cardiology dual isotope scan me/cfs orthostatic intolerance paper pots van campen
    • Replies: 13
    • Forum: ME/CFS research
  6. M

    Re-Hydration

    I'm interested if anyone has any improved, cheap to make, hydration solutions, compared to Dr Bell's Gookinaid (mix of Salt and Potassium in water). Ideally I'd want something less reliant on lots of sugar. The classic WHO recommendation was 1 tspn salt, 6 tspn of sugar in 1 litre of water...
  7. Andy

    $100,000 Research Grant to Study Brain Fog in POTS

    http://www.dysautonomiainternational.org/blog/wordpress/100000-research-grant-to-study-brain-fog-in-pots/
  8. Andy

    Theory article: Chronic Fatigue Syndrome: From Chronic Fatigue to More Specific Syndromes, 2018, Blitshteyn & Chopra

    Paywalled at https://www.karger.com/Article/Abstract/493531#tab4
    • Andy
    • Thread
    • 2018 blitshetyn connective tissue criteria diagnosis ehlers-danlos syndrome fibromyalgia mast cell activation syndrome me/cfs paper pots small fiber neuropathy
    • Replies: 5
    • Forum: ME/CFS research
  9. John Mac

    POTS – More Evidence That it is Autoimmune

    Video talk https://powerhealthtalk.com/pots-more-evidence-that-it-is-autoimmune.htm
  10. T

    "Passive standing tests for the office diagnosis of postural tachycardia syndrome: New methodological considerations" (Peter Rowe team 2018)

  11. rvallee

    David Systrom, researcher, Brigham and Women's Hospital, USA

    Dr. David M. Systrom of Brigham and Women’s Hospital (Boston) is confident that his team has objective evidence of small-fiber polyneuropathy (SFPN) in 40-50% of ME patients. Dr Systrom was interviewed by Llewelyn King in this video: . I put the timestamp at the part involved with SFPN but the...
    • rvallee
    • Thread
    • cpet mestinon pem plasmapheresis pots preload failure pyridostigmine sfpn small fiber neuropathy systrom
    • Replies: 96
    • Forum: ME/CFS research news
  12. C

    CNN POTS article: “A doctor said it was all in her head“

    https://edition.cnn.com/2018/06/26/health/pots-tori-nick-foles-dysautonomia/index.html
  13. adreno

    Successful treatment of POTS and MCAS using LDN, immunoglobulin and antibiotics

    Abstract A patient with severe postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS) received immunotherapy with low-dose naltrexone (LDN) and intravenous immunoglobulin (IVIg) and antibiotic therapy for small intestinal bacterial overgrowth (SIBO). A dramatic...
    • adreno
    • Thread
    • 2018 immunology ivig low-dose naltrexone mcas me/cfs paper pots t-cells treatment
    • Replies: 2
    • Forum: ME/CFS research
  14. M

    Angiotensin II Type 1 Receptor Autoantibodies in Postural Tachycardia Syndrome (2018) Yu et al

    Angiotensin II Type 1 Receptor Autoantibodies in Postural Tachycardia Syndrome Authors:Xichun Yu, Hongliang Li, Taylor A. Murphy, Zachary Nuss, Jonathan Liles, Campbell Liles, Christopher E. Aston, Satish R. Raj, Artur Fedorowski, David C. Kem (from Oklahoma, Sweden and Calgary) Abstract...
    • Milo
    • Thread
    • 2018 immunology me/cfs paper pots satish raj
    • Replies: 9
    • Forum: ME/CFS research
  15. Dolphin

    Exercise Intolerance in Preload Failure Treated with Pyridostigmine (2018) Faria Urbina et al (mentions ME/CFS & POTS)

    American Journal of Respiratory and Critical Care Medicine 2018;197:A6146 Exercise Intolerance in Preload Failure Treated with Pyridostigmine M. Faria Urbina 1, R. Oliveira 2, A.L. Oaklander 3, A.B. Waxman 1, D.M. Systrom 1...
  16. Snowdrop

    Angiotensin II type 1 receptor autoantibodies in POTS (2018) Yu et al

    This is related to ME but I didn't see where else this might belong. So it's here: https://www.ncbi.nlm.nih.gov/pubmed/29618472 I would like to have some thoughts on this research if anyone is able. @Jonathan Edwards perhaps? POTS is such a huge co-morbid issue for many of us. Though I...
  17. V

    Angiotensin II Type 1 Receptor Autoantibodies in Postural Tachycardia Syndrome, 2018, Yu et. al.

    https://www.ncbi.nlm.nih.gov/pubmed/29618472 other authors include Dr. Satish Raj and Dr. Kem of the University of Oklahoma.
    • voner
    • Thread
    • 2018 autoantibodies me/cfs paper pots satish raj university of oklahoma
    • Replies: 0
    • Forum: ME/CFS research
  18. adambeyoncelowe

    The aetiologic relation between disequilibrium and orthostatic intolerance in patients with myalgic encephalomyelitis (CFS), 2018, Miwa & Inoue

    http://www.journal-of-cardiology.com/article/S0914-5087(18)30058-3/fulltext#.WrzVHiFZs-E.twitter
    • adambeyoncelowe
    • Thread
    • 2018 cardiology disequilibrium kunihisa miwa me/cfs orthostatic intolerance paper pots symptoms
    • Replies: 2
    • Forum: ME/CFS research
  19. Andy

    Gastrointestinal symptoms in postural tachycardia syndrome: a systematic review, 2018, Shibao et al

    Available in PDF format here
  20. Jenny TipsforME

    What does your crash feel like?

    I’m currently crashing and I’m just curious about how you would describe your crashes/flares/PEM/bust phases? What does it feel like? (Bearing in mind I won’t be able to read long answers ;)) To me it feels like the top of my spine is inflamed and also the area which is likely my spleen. Light...
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