Moving from the present to the future of Postural Tachycardia Syndrome – What we need
This is sort of related to ME as many, many of us have POTS as comorbidity. This article discusses the needs of the disease and as simple as this artile is, it is also very relevant for ME. In fact you could...
Includes an article co-written by Julia Newton.
All articles open access for 12 months.
https://www.sciencedirect.com/journal/autonomic-neuroscience/vol/215/suppl/C
ETA: Taken out reference to open access editorial, the only open access part is the list of board members.
ETA2: All articles...
Frontiers in Pediatrics: Blood volume status in CFS/ME correlates with the presence or absence of orthostatic symptoms
Introduction: Conflicting data have been published on the reduction of circulating blood volume in adults with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The...
I'm interested if anyone has any improved, cheap to make, hydration solutions, compared to Dr Bell's Gookinaid (mix of Salt and Potassium in water).
Ideally I'd want something less reliant on lots of sugar. The classic WHO recommendation was 1 tspn salt, 6 tspn of sugar in 1 litre of water...
Dr. David M. Systrom of Brigham and Women’s Hospital (Boston) is confident that his team has objective evidence of small-fiber polyneuropathy (SFPN) in 40-50% of ME patients.
Dr Systrom was interviewed by Llewelyn King in this video: . I put the timestamp at the part involved with SFPN but the...
Abstract
A patient with severe postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS) received immunotherapy with low-dose naltrexone (LDN) and intravenous immunoglobulin (IVIg) and antibiotic therapy for small intestinal bacterial overgrowth (SIBO). A dramatic...
Angiotensin II Type 1 Receptor Autoantibodies in Postural Tachycardia Syndrome
Authors:Xichun Yu, Hongliang Li, Taylor A. Murphy, Zachary Nuss, Jonathan Liles, Campbell Liles, Christopher E. Aston, Satish R. Raj, Artur Fedorowski, David C. Kem
(from Oklahoma, Sweden and Calgary)
Abstract...
American Journal of Respiratory and Critical Care Medicine 2018;197:A6146
Exercise Intolerance in Preload Failure Treated with Pyridostigmine
M. Faria Urbina 1, R. Oliveira 2, A.L. Oaklander 3, A.B. Waxman 1, D.M. Systrom 1...
This is related to ME but I didn't see where else this might belong. So it's here:
https://www.ncbi.nlm.nih.gov/pubmed/29618472
I would like to have some thoughts on this research if anyone is able.
@Jonathan Edwards perhaps?
POTS is such a huge co-morbid issue for many of us.
Though I...
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