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patient experience

Page 9 of 10

Thread
Suicidal ideation in non-depressed individuals: The effects of a chronic, misunderstood illness, Devendorf et al, 2018

Abstract Chronic illness is a risk factor for suicide but is often explained with depression. Research has shown an increased suicide rate in...

Thread by: Indigophoton, Jul 11, 2018, 31 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
Thread
'Chronic fatigue': The devastating illness that's so much worse than just tiredness - Honey Coach nine.com.au (July, 2018)

When Jenny Meagher, 54, got home from an hour at Chadstone shopping centre recently, she spent the rest of the day in bed feeling like she had a...

Thread by: Melanie, Jul 7, 2018, 4 replies, in forum: General ME/CFS news
Thread
Reports from participants in GET and CBT trials

This thread has been started as a place where reports from PACE trial participants can be recorded. Edit - the scope of the thread has since been...

Thread by: Hutan, Jun 25, 2018, 126 replies, in forum: Psychosomatic theories and treatments discussions
Thread
A Girl Behind Dark Glasses - Jessica Taylor-Bearman

Jessica Taylor-Bearman's kickstarter-funded book is out on 3rd July, [MEDIA]

Thread by: Indigophoton, Jun 23, 2018, 37 replies, in forum: General ME/CFS news
Thread
ME/CFS and the biopsychosocial model: a review of patient harm and distress in the medical encounter - Geraghty et al. 2018

[MEDIA] Objective: Despite the growing evidence of physiological and cellular abnormalities in myalgic encephalomyelitis (ME)/chronic fatigue...

Thread by: Cheshire, Jun 22, 2018, 93 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
Thread
Experiences with Insurance Companies

Moderator note: Please be aware that this thread is not in the Members Only Section and therefore content is available to search engines. I have...

Thread by: Sbag, Jun 16, 2018, 6 replies, in forum: Work, Finances and Disability Insurance
Thread
Book: Experiences of M.E. featured in Dear Chronic Illness

Our supporter Pippa Stacey has released a compilation book featuring multiple contributors sharing their experiences of varying severities of M.E....

Thread by: Indigophoton, Jun 15, 2018, 0 replies, in forum: General ME/CFS news
Thread
Medical abuse Facebook group for with ME to post stories

sorry I’m on my phone and can’t cut and paste the info from Facebook [MEDIA] Rough summary this is a place where people with can anonymously...

Thread by: NelliePledge, May 23, 2018, 9 replies, in forum: General ME/CFS news
Thread
Because Of ME, I Can Only Imagine Being The Mum That Others Get To Be

Downstairs, my two-year-old son, Lucas, is playing. He’s a beautiful, clever and sweet little boy who lights up my entire world. Upstairs, I lie...

Thread by: Andy, May 9, 2018, 1 replies, in forum: General ME/CFS news
Thread
"M.E. is a blight on my life, ..." by Corina Duyn

Here's one of the better personal stories about life with ME that I've read recently:...

Thread by: MsUnderstood, May 8, 2018, 1 replies, in forum: General ME/CFS news
Thread
Blog: The struggle continues….

One person's account of his experiences and consequences of forced GET. After the failure of my ill health retirement application in August i set...

Thread by: Indigophoton, Apr 28, 2018, 8 replies, in forum: General ME/CFS news
Thread
BBC Radio York, Jonathan Cowap, 45 min segment on ME

(Merged threads) Not listened to this yet, but saw it being praised on social media. Might only be available to UK listeners? [Although Mattie...

Thread by: Esther12, Apr 18, 2018, 4 replies, in forum: General ME/CFS news
Thread
Devastating ME leaves teen girl "unable to leave the house"

A 17-year-old girl has become virtually housebound because of ME, which at its worst leaves her unable to lift her head from the pillow. Rosie...

Thread by: John Mac, Apr 15, 2018, 8 replies, in forum: General ME/CFS news
Thread
I Am Stuck In The Prison That Is ME

I Am Stuck In The Prison That Is ME Ellie Bunce...

Thread by: Eagles, Apr 13, 2018, 3 replies, in forum: General ME/CFS news
Thread
Why I want to lie down in public - BBC

Raquel Meseguer suffers from chronic pain and, when it gets bad, the only way to relieve it is to lie down – no matter where she is. People often...

Thread by: TiredSam, Mar 26, 2018, 9 replies, in forum: Other health news and research
Thread
The Mighty: How My Life Has Changed Since I Developed ME/CFS

A short piece by Lisa Alioto about her ME experience When I was me… I always greeted you with a smile. I may have tried to say something funny...

Thread by: Skycloud, Mar 22, 2018, 25 replies, in forum: General ME/CFS news
Thread
My ME story on BBC Radio Jersey

Hi all. BBC Radio Jersey very kindly interviewed me about my ME, today. It’s an hour-long interview, and you’ll find it two hours into this...

Thread by: Gary Burgess, Mar 4, 2018, 21 replies, in forum: General ME/CFS news
Thread
The PRIME project 2010

The PRIME project: developing a patient evidence‐base Sophie Staniszewska, DPhil (Oxon) BSc (Hons), 1 Sally Crowe, Post Graduate Diploma, 2...

Thread by: Sly Saint, Feb 28, 2018, 2 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
Thread
(Scotland) North-east family speak of ME ordeal

North-east family speak of ME ordeal January 30, 2018...

Thread by: Dolphin, Feb 1, 2018, 18 replies, in forum: General ME/CFS news
Thread
Rivka Solomon: Disease nearly keeps winner from Jewish Women Who Dared Awards

Well-written and accurate awareness articles keep coming -- this one from the January 11, 2018 edition of the Arizona Jewish Post:...

Thread by: MsUnderstood, Jan 14, 2018, 1 replies, in forum: General ME/CFS news

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