Living with an unsociable illness As I’m writing this post, I’m sat in bed, having to take time out to rest, whilst we have a family member...
https://2tired.weebly.com/home/dismissal-of-young-people-with-me-by-nhs-professionals [MEDIA] [MEDIA]
Spending two years mostly lying in bed, it really gives you the opportunity to think. And, naturally, I was thinking a lot about what had happened...
ME Association: Forward ME and Oxford Brookes University Announce Results of Patient Survey on CBT and GET in ME/CFS | 03 April 2019...
A woman who suffers from a crippling rare illness which has made her almost completely bedbound for two years has spoken of her struggle. KT...
Becky Hatfield is trying to get a bagful of letters together for Steve Brine (think he is still Under Secretary of State for Department of Health...
Sunday Times publishes three readers accounts of their personal experiences of ME. y doctor told me never to say I had this condition, to be...
a clinical research study by a third-year medical student at Cardiff University Aim of the project: The aim of this project is to gain a better...
https://www.tandfonline.com/doi/abs/10.1080/07399332.2018.1521811?journalCode=uhcw20 Journal: Health Care for Women International Dismissing...
https://blogs.bmj.com/bmj/2019/02/08/hilde-t-myrhaug-and-tone-hansen-co-producing-a-systematic-review-with-patients/ At least I wanted the...
Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much A biopsychosocial camp has contended since the 1990s that regardless...
https://inews.co.uk/news/real-life/disabled-man-left-humiliated-wet-himself-in-airport-after-begged-for-help/?fbclid=IwAR1VvnsRoqE4K1Cjmffc-72Kg1mY...
Worth a read. Considers how patient feedback is viewed by health professionals and managers and cultural problems that PWME will likely recognise....
An article about the young couple Jasmine and Alex. Jasmine has epilepsy, ME and POTS and uses a wheel chair. They talk about the prejudice they...
Abstract Background The Clinical Understanding and Research Excellence in ME/CFS group (CureME) at the London School of Hygiene & Tropical...
(I don't understand why it says 'The Telegraph' when it seems to be a Yahoo article, but I'm just copying what came) Source: The Telegraph Datd:...
I'm not writing this for me, I'm not writing this for Amy my wife either, today I was made aware of a lady who suffers not only from ME but also...
The late Dr. Ann Macintyre's Frontline television program from the 1990s. [MEDIA]
Devendorf, A. R., Brown, A. A., & Jason, L. A. Chronic Illness Objective There is no consensus on recovery from myalgic encephalomyelitis and...
Patient experience survey About our patient experience survey 2018–2019 We are currently undertaking our third biennial patient experience survey....
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