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Sunday Times readers comments: "The ‘invisible illness’: what it feels like to live with chronic fatigue syndrome or ME"

Discussion in 'General ME/CFS News' started by Andy, Mar 24, 2019.

  1. Andy

    Andy Committee Member & Outreach

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    Sunday Times publishes three readers accounts of their personal experiences of ME.
    https://www.thetimes.co.uk/magazine...yelitis-me-chronic-fatigue-syndrome-7ghbwdkbj

    And at the bottom
    Shame they don't tackle their own ignorance..
     
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  2. hinterland

    hinterland Senior Member (Voting Rights)

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  3. JellyBabyKid

    JellyBabyKid Established Member (Voting Rights)

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    Is there a way to access this avoiding the pay wall at all? Thanks!
     
  4. hinterland

    hinterland Senior Member (Voting Rights)

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    If you register I think you can view two free articles a week. Or, sometimes the ME Association reprints a full copy of newspaper articles on their website.
     
  5. Robert 1973

    Robert 1973 Senior Member (Voting Rights)

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    There were also 3 letters in response to Liddle’s article.

    There are many adjectives which come to mind when thinking about how to describe Liddle but brave is not among them.


    176DEA16-06D0-4167-B91C-C357EB428A0B.jpeg

    8CC6437D-519C-4AD8-AEFE-1DFFA04AC543.jpeg
     
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  6. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    the Times or AfME?
     
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  7. Andy

    Andy Committee Member & Outreach

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    Yes.
     
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  8. wigglethemouse

    wigglethemouse Senior Member (Voting Rights)

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  9. chrisb

    chrisb Senior Member (Voting Rights)

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    I guess that that is to be interpreted in the same way as "courageous" in Yes Minister.
     
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  10. EzzieD

    EzzieD Senior Member (Voting Rights)

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    Arrghh, I'm unable to like that post because that Dr Colin Johnstone who wrote the first letter is the doctor I saw who told me my devastating bring-you-to-your-knees symptoms could just be me mistaking normal everyday bodily functions for symptoms, as I recounted in my post no. 19 here: https://www.s4me.info/threads/lette...ice-re-cbt-and-get-feb-2019.8306/#post-146498 . Funny how he comes across sounding halfway reasonable in the letter; it's certainly not what he was like when I saw him. After my visit with him, he wrote my GP that because my routine tests had come back normal, I should 'move on and accept' that 'the cause lies elsewhere', obviously a code phrase for 'it's psychological, then'. He was also so rude to a friend's girlfriend with ME that he made her cry. He is definitely no ME expert. It gives me PTSD just to see that letter! :ill:
     
  11. Snowdrop

    Snowdrop Senior Member (Voting Rights)

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    I'm inclined to consider CJ's lovely letter as just more gaslighting of PwME.
    It's always nastier when they couch their ignorance in sweet sounding waffle that could mean anything.
     
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  12. EzzieD

    EzzieD Senior Member (Voting Rights)

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    Yes, I think you're absolutely right about that! Ugh.
     
  13. Ruth

    Ruth Established Member (Voting Rights)

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  14. Ruth

    Ruth Established Member (Voting Rights)

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    You have confirmed my suspicions about Dr Johnstone, who I have not heard of. He couches and qualifies like the best of the BPS crowd. 'Predominantly'physical etc. And to hope that Liddle's outpouring of bile could 'generate a more rational debate' was certainly not his intention.
     
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  15. Esther12

    Esther12 Senior Member (Voting Rights)

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    Rod Liddle was brave?!
     
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  16. Michiel Tack

    Michiel Tack Senior Member (Voting Rights)

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    Reminds me of this:
     
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  17. TiredSam

    TiredSam Moderator Staff Member

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    Damn! I was looking for a good pun on Liddle and couldn't come up with one.
     
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  18. Griffin

    Griffin Established Member

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    You mean Rod Little?
     
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  19. chrisb

    chrisb Senior Member (Voting Rights)

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  20. Trish

    Trish Moderator Staff Member

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    It does list BACME as one of his professional memberships, but his main work is not ME.
     

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