Andy
Retired committee member
Sunday Times publishes three readers accounts of their personal experiences of ME.
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https://www.thetimes.co.uk/magazine...yelitis-me-chronic-fatigue-syndrome-7ghbwdkbjy doctor told me never to say I had this condition, to be careful talking about it, because I would face stigma and people may not employ me in the future,” said Lucy, 29. “Imagine being 15 years old and being told you can’t talk about something that is taking over your life. I felt so ashamed.” Lucy’s is just one story from the many we received last week after The Sunday Times published a comment piece by Rod Liddle on ME (myalgic encephalomyelitis), the so-called “invisible illness”, which affects about 190,000 women in the UK. The accounts we heard from those who were affected all shared common themes: not being listened to by doctors; unsupportive employers; being misunderstood by even close friends and family; periods of depression; and anxiety from the feeling of helplessness that comes with this condition. “I’ve been made to feel a burden by former boyfriends and friends,” Lucy added. “It has made me afraid to open up.”
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Shame they don't tackle their own ignorance..For those struggling with ME or CFS, help and support can be found at Action for ME, a British charity that tackles ignorance, injustice and neglect for people whose lives have been stolen by the disease. actionforme.org.uk