CC: In The Invisible Kingdom, you write that if every age has its “signature disease,” ours is the type of chronic illness that tends to go...
Physicians depend on the measurability and empirical verifiability of symptoms. Still, some symptoms defy observation and measurement, which can...
Primary and specialty care clinicians strive to base diagnoses and treatment on specific, measurable abnormalities. Yet those with invisible,...
Merged thread: 'Stock photos are terrible at depicting illness' Stock photos are ubiquitous—and infamous. The concepts are often laugh-out-loud...
By other people’s standards my health is never Good. So it can be hard to convince them what I mean when I say things are Bad. There are no...
by Giada Da Ros Abstract: Since the end of the 20th century, the Myalgic Encephalomyelitis / Chronic Fatigue Syndrome community tried to create...
Before COVID-19, some members of our Australian community have been living with several health issues that do not allow them to leave their houses...
https://openscholarship.wustl.edu/cgi/viewcontent.cgi?article=1075&context=bfa The thesis contains some photographs. Washington University in St....
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in New Zealand affects about 0.4% of the population. There will be up to 100 affected...
Ragnhild Holmås has suffered from ME for nine years. She is now publishing a book where she challenges prejudice against chronic and invisible...
You may not be able to see Chloe’s medical conditions, but before you judge her she wants you to know they are there, they are real, and she’s not...
Lorna Bryson, 25, suffers from Myalgic Encephalomyelitis (ME) also known as chronic fatigue syndrome. The illness means she has a low immune...
The application for the Disability Tax Credit does not 'fit' our reality. I was receiving the DTC for over 25 years, but it appears that the...
Rates of suicidal ideation, attempts, and completion are alarmingly high in chronic invisible illness communities. Suicide is the second leading...
It doesn't actually mention ME, but it does apply, and is quite a good article. When you think about a disability, one that requires a mobility...
Tesco has taken steps to help shoppers with hidden disabilities by launching the sunflower lanyard scheme in stores across the UK. The...
Contibutions from Dr Sarah Jarvis, Charles Shepherd (MEA), Sonia Chowdhury(AfME), Leonard Jason. Muscle aches and four other signs your...
Not a particularly bad article that quotes #MEAction a lot (The Myalgic Encephalomyelitis Action Network). However, I question the bit at the end...
https://metro.co.uk/tag/you-dont-look-sick/ A weekly series published every Sunday telling the stories of people with invisible illness and...
Sunday Times publishes three readers accounts of their personal experiences of ME. y doctor told me never to say I had this condition, to be...
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