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Article/personal account: My Wife isn't Tired

Discussion in 'Advocacy Projects and Campaigns' started by Andy, Jan 3, 2019.

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  1. Andy

    Andy Committee Member

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    https://spark.adobe.com/page/uNLWHP6la8KmK/
     
    Andy, Jan 3, 2019
    #1
    Little Bluestem, Louie41, EzzieD and 16 others like this.
  2. Trish

    Trish Moderator Staff Member

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    A good article to show someone who doesn't believe ME is real, but not particularly helpful in terms of advice. His wife is still in the early stages of the illness, so he doesn't have a full picture of the long term prospects. He seems very trusting of the clinic she's being treated by. I wonder if it's an NHS clinic.

    I looked on Amazon for the book the writer recommends. It's written by an NHS OT who runs a CBT based clinic it seems. It sounds from the reviews as though it's the usual start people on pacing, but then follow NHS guidelines to increase activity, in other words CBT/GET.
     
    Trish, Jan 3, 2019
    #2
    Little Bluestem, JaimeS, Hutan and 11 others like this.
  3. NelliePledge

    NelliePledge Moderator Staff Member

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    Yes I thought the same @Trish i guess people at that stage are entitled to document their experience but most likely haven’t yet cottoned on to the big picture about ME so it is a limited perspective.
     
    NelliePledge, Jan 3, 2019
    #3
    Little Bluestem, JaimeS, Hutan and 6 others like this.
  4. Barry

    Barry Senior Member (Voting Rights)

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    I can empathize with this a lot, given it is my wife who has had ME over 10 years now. When we first found out and saw a specialist, we were completely in his hands, and believed all he said and recommended. Thankfully he was very aware I think, and advised my wife she was already doing all the right things, and there was nothing more beyond that that would help. He spent a lot of time with my wife discussing how her life had previously been, how it was then at that point and how she managed things. I realise now her pacing instincts were good, and he could tell from talking to her that she already pushed herself far enough.

    Given where the author and his wife are at, it is incredibly tricky to get everything right. He is obviously trying hard to do the right thing. Let's hope the clinic does not screw things up for them
     
    Barry, Jan 3, 2019
    #4
    Little Bluestem, EzzieD, JaimeS and 9 others like this.
  5. ladycatlover

    ladycatlover Senior Member (Voting Rights)

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    The book is currently on special price on amazon for January. They seem to be running a "healthy lifestyle" type promo with reduced prices - presumably to snag people who have made New Year Resolutions. :rofl:
     
    ladycatlover, Jan 3, 2019
    #5
    Little Bluestem, JaimeS, Barry and 2 others like this.

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