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Stockton woman reveals what it's like to live with ME (Really?)

Discussion in 'General ME/CFS News' started by MeSci, Sep 3, 2018.

  1. MeSci

    MeSci Senior Member (Voting Rights)

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    Cornwall, UK
    This starts with some Action for ME video that I've seen before. Then it goes on to discuss the young woman's case, and progression to full-time work!!!

    There is also a link to the NHS page which still recommends CBT and GET...

    Station: TeessideLive / AfME

    Date: September 2, 2018


    Toni Marie Sexton knows when her condition is getting worse because her “whole body feels like it’s on fire,” she goes “pale” and mixes words up.

    She heads into a quiet, dark room and goes to sleep, knowing she will be “alright” when she wakes up.

    The 25-year-old from Stockton remembers being at a sports day when she was five years old and feeling that her legs were “made of lead.”...

    ...She will be working full time as a staff nurse, after successfully completing a degree in adult nursing at Hull University.
  2. TiredSam

    TiredSam Moderator Staff Member

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    That's the second newpaper article on ME I've read today with no mention of "yuppie flu" and a passable (if less than perfect) description of ME uninfluenced by SMC unpleasantness. Things are looking up.

    EDIT: Didn't watch the video, no time.
  3. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    I'm sceptical of the 'sleep and then recover' bit. It's not usually that easy to escape PEM.
  4. MEMarge

    MEMarge Senior Member (Voting Rights)

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    The video is pretty good.

    It sounds as though this person may have gradually improved over the years.

    It is always tricky to get the full picture from this kind of article.

    I hope that she has "recovered" and can manage nursing.

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