https://www.actionforme.org.uk/uploads/pdfs/Explaining%20M.E.%20CFS.pdf
Posts have been moved from 3 threads: UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward UK NICE 2021 ME/CFS Guideline, published...
This seems like a positive development (apologies if this has already been posted, I did look but couldn't find it anywhere)....
Post copied and some subsequent posts moved from United Kingdom: Action for ME (AfME) news Consultation on Media Guidelines for M.E. "This...
In November last year Action for ME invited people with ME to complete a questionnaire describing their experience of ME. The responses were...
Bristol M.E. Service: Supporting people with M.E./CFS and PVFS across Gloucestershire, Bristol and North Somerset We have renamed our Service...
[MEDIA]
A number of earlier threads have commented on AfME documents and webpages: 'Pacing for people with M.E.' Action for ME booklet - revised and...
A thread for updates and news from the UK charity, Action for ME (https://www.actionforme.org.uk/) Moderator note: Please use this thread to...
People with M.E. often ask us how they can get involved with research. If you haven't registered your interest to potentially take part in...
Following the success of our recent advocacy workshops for people in Bath and North East Somerset, we’re pleased to announce that we will repeat...
All are welcome to join us online for our 2020 Annual General Meeting. Action for M.E. staff and Trustees will give an overview of our services,...
Posting this as I'd imagine a huge number of us would be negatively affected by this tax if it comes in. Action for M.E. Chief Executive Sonya...
[ETA: The published version can be found here, Research priorities for ...(ME/CFS): the results of a James Lind alliance priority setting...
CFS/ME National Services Survey Feb 2018 Snap shot audit BACME National Services Workstream Report Published March 2019...
Copied from this thread I haven't looked at the update myself yet https://www.actionforme.org.uk/resources/our-publications/booklets/ Pacing for...
Emily Beardall, 44, had just qualified with a degree in pharmacy when she was diagnosed with myalgic encephalomyelitis (ME). “I couldn’t work. It...
Action for M.E. has raised serious concerns with every Local Medical Committee (LMC) following the announcement of a motion at their conference by...
this website https://web.archive.org/web/20190914091905/http://www.afme.org.uk/ we discussed it at the other place and some people thought it...
Mary-Jane Willows explains how schools can support pupils with ME What’s the biggest cause of health-related long-term school absence? The...
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