SequenceME: first of a kind genetic study December 16, 2024 A groundbreaking partnership has launched today. The partners are working together...
Suggestions welcome. I will be raising the very severe care problems, e-learning, and the Government Delivery Plan in general. I will also thank...
Link to post with a brief description of the workshops and a link to the recordings ************ "Please join us for this online workshop...
I have just sent the following letter to AfME, signed by 15 forum members, including the 5 available committee members To discuss the document...
Moderation note: The overwhelming response from members has been that this document is not fit for purpose. If people are considering using the...
https://www.actionforme.org.uk/uploads/pdfs/Explaining%20M.E.%20CFS.pdf
Posts have been moved from 3 threads: UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward UK NICE 2021 ME/CFS Guideline, published...
This seems like a positive development (apologies if this has already been posted, I did look but couldn't find it anywhere)....
event Living with ME and Chronic Fatigue Syndrome Sept 22 About this event Chronic Fatigue conditions are some of the most frustrating and...
Post copied and some subsequent posts moved from United Kingdom: Action for ME (AfME) news Consultation on Media Guidelines for M.E. "This...
In November last year Action for ME invited people with ME to complete a questionnaire describing their experience of ME. The responses were...
Bristol M.E. Service: Supporting people with M.E./CFS and PVFS across Gloucestershire, Bristol and North Somerset We have renamed our Service...
[MEDIA]
A number of earlier threads have commented on AfME documents and webpages: 'Pacing for people with M.E.' Action for ME booklet - revised and...
A thread for updates and news from the UK charity, Action for ME (https://www.actionforme.org.uk/) Moderator note: Please use this thread to...
People with M.E. often ask us how they can get involved with research. If you haven't registered your interest to potentially take part in...
Following the success of our recent advocacy workshops for people in Bath and North East Somerset, we’re pleased to announce that we will repeat...
All are welcome to join us online for our 2020 Annual General Meeting. Action for M.E. staff and Trustees will give an overview of our services,...
Posting this as I'd imagine a huge number of us would be negatively affected by this tax if it comes in. Action for M.E. Chief Executive Sonya...
[ETA: The published version can be found here, Research priorities for ...(ME/CFS): the results of a James Lind alliance priority setting...
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