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afme

Page 3 of 5

Thread
Trial By Error: Action For ME’s Employment Advice

Action For ME is the largest charity for this disease in the UK. It is also the charity responsible for enabling the PACE trial through its...

Thread by: Andy, Jan 23, 2019, 19 replies, in forum: General ME/CFS news
Thread
Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

Following discussion on this thread, I contacted Action for ME to express concern about the document and ask for the research evidence on which...

Thread by: Trish, Jan 12, 2019, 209 replies, in forum: Open Letters and Replies
Thread
(not a recommendation) What it’s like to live with chronic fatigue and depression

As retweeted by AfME [MEDIA] Chronic fatigue is categorised as mild, moderate, or severe. There may be times when symptoms get better or worse....

Thread by: Sly Saint, Jan 11, 2019, 7 replies, in forum: General ME/CFS news
Thread
"This is M.E." booklet by Action for ME - Feedback survey

This post and the four following ones have been split from this thread: Action for M.E. hosts DWP spotlight training [MEDIA]...

Thread by: Sly Saint, Jan 11, 2019, 20 replies, in forum: Advocacy Projects and Campaigns
Thread
Action for M.E. Walk with M.E. 2019

@Action for M.E. has launched Walk with M.E. 2019: https://www.actionforme.org.uk/make-a-difference/fundraise/walk-with-me-2019/ It has received...

Thread by: Robert 1973, Jan 10, 2019, 25 replies, in forum: Fundraising
Thread
Dr Gabrielle Murphy - UK BPS ME/CFS doctor

Taken from a blog originally from 2011 but the comments go on to 2018; Saturday, 3 September 2011 The Hospital Appointment... so a little...

Thread by: Sly Saint, Dec 1, 2018, 48 replies, in forum: UK clinics and doctors
Thread
Action for M.E. hosts DWP spotlight training

A range of people from the Department for Work and Pensions had the opportunity to learn more about M.E. and its impact on claimants, in a...

Thread by: Andy, Jan 7, 2019, 78 replies, in forum: Advocacy Projects and Campaigns
Thread
Action for ME: Our new years resolutions

Now that 2018 has come to an end here are some of the things that we have achieved over the last year: [IMG] continues at...

Thread by: Andy, Jan 1, 2019, 34 replies, in forum: Advocacy Projects and Campaigns
Thread
Action for ME: "We need your help! Connect M.E. survey"

Action for M.E. are testing out an idea we have for a new project that could potentially help support people with M.E. nationwide. This project...

Thread by: Andy, Nov 20, 2018, 33 replies, in forum: General ME/CFS news
Thread
Action for M.E.'s AGM and Conference 2018

Source: EventBee / Action for ME Date: October 8, 2018 URL: https://www.eventbee.com/v/actionforme2018conference Action for M.E.'s AGM and...

Thread by: MeSci, Oct 8, 2018, 27 replies, in forum: General ME/CFS news
Thread
Neurophysiology of pain in ME and FM - unpublished study by White and Bourke - CFS research Foundation/AfME

This thread has been split from a thread about a new study: UK: Brighton and Sussex University Hospital and Medical School - Chronic Pain and...

Thread by: obeat, Oct 7, 2018, 15 replies, in forum: ME/CFS research
Thread
Stockton woman reveals what it's like to live with ME (Really?)

This starts with some Action for ME video that I've seen before. Then it goes on to discuss the young woman's case, and progression to full-time...

Thread by: MeSci, Sep 3, 2018, 3 replies, in forum: General ME/CFS news
Thread
Action for ME: The PACE trial and behavioural treatments for M.E. [position statement]

@Cheshire first posted about this here, but I thought it was important enough to warrant its own thread. This statement sets out our position on...

Thread by: Andy, Aug 29, 2018, 161 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
Thread
BBC Radio London show focusing on ME, 23/08/18

I know no more about this than what AfME have posted on Facebook about it. Making M.E. the focus of his Drivetime show today on BBC Radio London,...

Thread by: Andy, Aug 23, 2018, 5 replies, in forum: General ME/CFS news
Thread
Action for ME GP webinars

Action for ME have instigated and delivered a series of webinars for GPs and Health professionals; most are accessed via the Webinars for GP...

Thread by: Amw66, Jul 12, 2018, 47 replies, in forum: General ME/CFS news
Thread
AFME seeking feedback on NICE

[MEDIA] Action for ME have a survey on the NICE draft which they say will inform their feedback. 120 people have done it

Thread by: Cinders66, Jul 9, 2018, 25 replies, in forum: Advocacy Action Alerts
Thread
Article by Paul Worthley

This was apparently in the @Action for M.E. journal earlier this year....

Thread by: JohnTheJack, Jul 6, 2018, 40 replies, in forum: General ME/CFS news
Thread
Action for ME have "reworked our treatment and symptom management page" and "updated our pages on GET and CBT"

Text from their Facebook post While there might not be a proven pharmaceutical cure for M.E. yet, there are a number of treatment approaches that...

Thread by: Andy, Jun 18, 2018, 46 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
Thread
InterAction AfME now available in audio format

In case anyone is interested! Source: InterAction 98, Spring 2018 Date: April 25, 2018 WebRadio: https://soundcloud.com/actionformeaudio URL:...

Thread by: MeSci, Jun 15, 2018, 0 replies, in forum: General ME/CFS news
Thread
Correspondence from the DWP for 2005

I have this week received these from the DWP. I've had a quick look through. The two things that strike me are that they confirm Aylward...

Thread by: JohnTheJack, Jun 7, 2018, 30 replies, in forum: General ME/CFS news

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