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afme

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  1. Trish
    Thread

    Open Letter to the Chief Executive of Action for ME about the AfME web page on Graded Exercise Therapy

    Following discussion on this thread I have now sent the following personal letter to Sonya Chowdhury, Chief Executive of the UK charity Action for...
    Thread by: Trish, Oct 20, 2019, 24 replies, in forum: Open Letters and Replies
  2. Sly Saint
    Thread

    Article in Bella magazine - 'Please Believe ME' 26 Sep 2019

    write up on AfME website: What's it like having a debilitating illness that some people don't believe exists? When it leaves you too unwell to...
    Thread by: Sly Saint, Sep 27, 2019, 29 replies, in forum: General ME/CFS news
  3. Sly Saint
    Thread

    The Sun article - INVISIBLE ILLNESS The 5 signs your constant tiredness is actually chronic fatigue syndrome – as 90% of cases are missed (Aug 2019)

    Contibutions from Dr Sarah Jarvis, Charles Shepherd (MEA), Sonia Chowdhury(AfME), Leonard Jason. Muscle aches and four other signs your...
    Thread by: Sly Saint, Aug 14, 2019, 8 replies, in forum: General ME/CFS news
  4. Sly Saint
    Thread

    Action for M.E. 2019 AGM and conference 15th October 2019

    Tuesday, 15 October 2019, 10:00 AM - 4:30 PM same venue as last year Bishops Square, London, E1 6AD, United Kingdom About the Event The...
    Thread by: Sly Saint, Aug 12, 2019, 95 replies, in forum: General ME/CFS news
  5. Sly Saint
    Thread

    Article - Craig's story - June 2019

    On AfME website It took me a year and a half to get diagnosed with M.E. after I developed an infection that nearly killed me. I never really...
    Thread by: Sly Saint, Jun 11, 2019, 0 replies, in forum: General ME/CFS news
  6. Sly Saint
    Thread

    The Independent - What are the symptoms of ME and how is it treated? May 2019

    Pretty awful article imo. Includes quotes from SC AfME, and the MEA making the psych vs physical point. Also links to MERUK and the CDC. Very...
    Thread by: Sly Saint, May 12, 2019, 19 replies, in forum: General ME/CFS news
  7. Andy
    Thread

    Action for M.E.'s big survey, 2019

    Action for M.E. is following-up its major 2014 survey, 'M.E. Time to Deliver' by looking, five years on, at health, welfare, employment and...
    Thread by: Andy, May 2, 2019, 42 replies, in forum: General ME/CFS news
  8. Andy
    Thread

    ME charities' response to the Reuters article

    The following posts have been moved from the Reuters thread. Anybody else think that our UK charities have been rather lacklustre during the last...
    Thread by: Andy, Mar 20, 2019, 134 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  9. Barry
    Thread

    AfME staffing and structure

    Split from this thread JD is excellent. The program was informative, even a lady severe but not in the worst severity was able to show without...
    Thread by: Barry, Mar 9, 2019, 22 replies, in forum: General Advocacy Discussions
  10. Sly Saint
    Thread

    BBC Radio Bristol - March 7 (available for 28 days)

    Starts around 2.11.00 John Darvall. Interview with ME sufferer (ME for 20 years) Liz, who participated in pre PACE Frenchay trial in 2002....
    Thread by: Sly Saint, Mar 9, 2019, 8 replies, in forum: General ME/CFS news
  11. Sly Saint
    Thread

    Action for ME on ME-pedia

    If anyone would like to add the following to the ME-pedia AfME pages: potted history:...
    Thread by: Sly Saint, Feb 10, 2019, 3 replies, in forum: MEpedia
  12. Hutan
    Thread

    Pacing - definitions and sources of information

    This thread on pacing has been split from this thread: Consumer contested evidence: why the ME/CFS exercise dispute matters so much. Plos blog...
    Thread by: Hutan, Feb 9, 2019, 95 replies, in forum: Monitoring and pacing
  13. daftasabrush
    Thread

    FITNET-NHS Esther Crawley - 5th protocol out now

    How many protocols does this harmful GET trial need exactly? There's 5 on the website now. Is Action for ME supporting this street merging with...
    Thread by: daftasabrush, Feb 7, 2019, 63 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  14. Andy
    Thread

    AfME survey: Support in School for children with M.E./CFS, closes Mon 18th Feb 2019

    Action for M.E. wants all children living with M.E./CFS to get the support they need in school. We need to make sure we are focusing on the issues...
    Thread by: Andy, Feb 5, 2019, 10 replies, in forum: General ME/CFS news
  15. Andy
    Thread

    Trial By Error: Action For ME’s Employment Advice

    Action For ME is the largest charity for this disease in the UK. It is also the charity responsible for enabling the PACE trial through its...
    Thread by: Andy, Jan 23, 2019, 19 replies, in forum: General ME/CFS news
  16. Trish
    Thread

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    Following discussion on this thread, I contacted Action for ME to express concern about the document and ask for the research evidence on which...
    Thread by: Trish, Jan 12, 2019, 209 replies, in forum: Open Letters and Replies
  17. Sly Saint
    Thread

    (not a recommendation) What it’s like to live with chronic fatigue and depression

    As retweeted by AfME [MEDIA] Chronic fatigue is categorised as mild, moderate, or severe. There may be times when symptoms get better or worse....
    Thread by: Sly Saint, Jan 11, 2019, 7 replies, in forum: General ME/CFS news
  18. Sly Saint
    Thread

    "This is M.E." booklet by Action for ME - Feedback survey

    This post and the four following ones have been split from this thread: Action for M.E. hosts DWP spotlight training [MEDIA]...
    Thread by: Sly Saint, Jan 11, 2019, 20 replies, in forum: Advocacy Projects and Campaigns
  19. Robert 1973
    Thread

    Action for M.E. Walk with M.E. 2019

    @Action for M.E. has launched Walk with M.E. 2019: https://www.actionforme.org.uk/make-a-difference/fundraise/walk-with-me-2019/ It has received...
    Thread by: Robert 1973, Jan 10, 2019, 25 replies, in forum: Fundraising
  20. Sly Saint
    Thread

    Dr Gabrielle Murphy - UK BPS ME/CFS doctor

    Taken from a blog originally from 2011 but the comments go on to 2018; Saturday, 3 September 2011 The Hospital Appointment... so a little...
    Thread by: Sly Saint, Dec 1, 2018, 48 replies, in forum: UK clinics and doctors
Showing results 21 to 40 of 79
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