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afme

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  1. Sly Saint
    Thread

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    CFS/ME National Services Survey Feb 2018 Snap shot audit BACME National Services Workstream Report Published March 2019...
    Thread by: Sly Saint, Jan 26, 2020, 493 replies, in forum: News from organisations
  2. Dolphin
    Thread

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    Copied from this thread I haven't looked at the update myself yet https://www.actionforme.org.uk/resources/our-publications/booklets/ Pacing for...
    Thread by: Dolphin, Jan 23, 2020, 137 replies, in forum: Monitoring and pacing
  3. Sly Saint
    Thread

    Article in Guardian: UK benevolent funds hand out £216m as hardship grows - features Emily Beardall (AfME) Jan 2020

    Emily Beardall, 44, had just qualified with a degree in pharmacy when she was diagnosed with myalgic encephalomyelitis (ME). “I couldn’t work. It...
    Thread by: Sly Saint, Jan 20, 2020, 12 replies, in forum: General ME/CFS news
  4. Andy
    Thread

    Action for ME: GP home visits under threat

    Action for M.E. has raised serious concerns with every Local Medical Committee (LMC) following the announcement of a motion at their conference by...
    Thread by: Andy, Nov 20, 2019, 25 replies, in forum: General disability topics and advocacy
  5. Sly Saint
    Thread

    AFME - Association for Myalgic Encephalomyelitis website (not Action for ME)

    this website https://web.archive.org/web/20190914091905/http://www.afme.org.uk/ we discussed it at the other place and some people thought it...
    Thread by: Sly Saint, Oct 30, 2019, 28 replies, in forum: Advocacy Action Alerts
  6. Andy
    Thread

    SEN Magazine: "ME and you" by Mary-Jane Willows

    Mary-Jane Willows explains how schools can support pupils with ME What’s the biggest cause of health-related long-term school absence? The...
    Thread by: Andy, Oct 24, 2019, 7 replies, in forum: General ME/CFS news
  7. Trish
    Thread

    Open Letter to the Chief Executive of Action for ME about the AfME web page on Graded Exercise Therapy

    Following discussion on this thread I have now sent the following personal letter to Sonya Chowdhury, Chief Executive of the UK charity Action for...
    Thread by: Trish, Oct 20, 2019, 24 replies, in forum: Open Letters and Replies
  8. Sly Saint
    Thread

    Article in Bella magazine - 'Please Believe ME' 26 Sep 2019

    write up on AfME website: What's it like having a debilitating illness that some people don't believe exists? When it leaves you too unwell to...
    Thread by: Sly Saint, Sep 27, 2019, 29 replies, in forum: General ME/CFS news
  9. Sly Saint
    Thread

    The Sun article - INVISIBLE ILLNESS The 5 signs your constant tiredness is actually chronic fatigue syndrome – as 90% of cases are missed (Aug 2019)

    Contibutions from Dr Sarah Jarvis, Charles Shepherd (MEA), Sonia Chowdhury(AfME), Leonard Jason. Muscle aches and four other signs your...
    Thread by: Sly Saint, Aug 14, 2019, 8 replies, in forum: General ME/CFS news
  10. Sly Saint
    Thread

    Action for M.E. 2019 AGM and conference 15th October 2019

    Tuesday, 15 October 2019, 10:00 AM - 4:30 PM same venue as last year Bishops Square, London, E1 6AD, United Kingdom About the Event The...
    Thread by: Sly Saint, Aug 12, 2019, 95 replies, in forum: General ME/CFS news
  11. Sly Saint
    Thread

    Article - Craig's story - June 2019

    On AfME website It took me a year and a half to get diagnosed with M.E. after I developed an infection that nearly killed me. I never really...
    Thread by: Sly Saint, Jun 11, 2019, 0 replies, in forum: General ME/CFS news
  12. Sly Saint
    Thread

    The Independent - What are the symptoms of ME and how is it treated? May 2019

    Pretty awful article imo. Includes quotes from SC AfME, and the MEA making the psych vs physical point. Also links to MERUK and the CDC. Very...
    Thread by: Sly Saint, May 12, 2019, 19 replies, in forum: General ME/CFS news
  13. Andy
    Thread

    Action for M.E.'s big survey, 2019

    Action for M.E. is following-up its major 2014 survey, 'M.E. Time to Deliver' by looking, five years on, at health, welfare, employment and...
    Thread by: Andy, May 2, 2019, 42 replies, in forum: General ME/CFS news
  14. Andy
    Thread

    ME charities' response to the Reuters article

    The following posts have been moved from the Reuters thread. Anybody else think that our UK charities have been rather lacklustre during the last...
    Thread by: Andy, Mar 20, 2019, 134 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  15. Barry
    Thread

    AfME staffing and structure

    Split from this thread JD is excellent. The program was informative, even a lady severe but not in the worst severity was able to show without...
    Thread by: Barry, Mar 9, 2019, 22 replies, in forum: General Advocacy Discussions
  16. Sly Saint
    Thread

    BBC Radio Bristol - March 7 (available for 28 days)

    Starts around 2.11.00 John Darvall. Interview with ME sufferer (ME for 20 years) Liz, who participated in pre PACE Frenchay trial in 2002....
    Thread by: Sly Saint, Mar 9, 2019, 8 replies, in forum: General ME/CFS news
  17. Sly Saint
    Thread

    Action for ME on ME-pedia

    If anyone would like to add the following to the ME-pedia AfME pages: potted history:...
    Thread by: Sly Saint, Feb 10, 2019, 3 replies, in forum: MEpedia
  18. Hutan
    Thread

    Pacing - definitions and sources of information

    This thread on pacing has been split from this thread: Consumer contested evidence: why the ME/CFS exercise dispute matters so much. Plos blog...
    Thread by: Hutan, Feb 9, 2019, 95 replies, in forum: Monitoring and pacing
  19. daftasabrush
    Thread

    FITNET-NHS Esther Crawley - 5th protocol out now

    How many protocols does this harmful GET trial need exactly? There's 5 on the website now. Is Action for ME supporting this street merging with...
    Thread by: daftasabrush, Feb 7, 2019, 63 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Andy
    Thread

    AfME survey: Support in School for children with M.E./CFS, closes Mon 18th Feb 2019

    Action for M.E. wants all children living with M.E./CFS to get the support they need in school. We need to make sure we are focusing on the issues...
    Thread by: Andy, Feb 5, 2019, 10 replies, in forum: General ME/CFS news
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