Article - Craig's story - June 2019

Sly Saint · Jun 12, 2019

On AfME website

It took me a year and a half to get diagnosed with M.E. after I developed an infection that nearly killed me. I never really recovered from the affects afterwards. I am now pretty much house-bound and struggle to get around the house. I have periods where I am bedridden on and off and my wife and children have to check on me. I was put into a work program for ESA, which resulted in the deterioration off my condition.

At my worst, I was bed-ridden for a couple of weeks and at times have gone up to three days without being able to eat.

Sometimes, my wife has to phone the paramedics to take me to hospital due to malnutrition.

This occurs once every few months as there is no other support available. I get frequent brain fog and tiredness to the point that I cannot talk or move. I’m cognitively not what I was before and I have poor memory. I get aches and pains that move through my body and sensitivity to light and sound, which is very painful.
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The article is largely about more help for carers which is important but highlights other problems ie being put in WRAG for ESA resulted in worsening condition; (see AfMEs work leaflet
https://www.s4me.info/threads/actio...-and-work-and-and-employers-guide-to-me.8421/ )

also inability to eat/malnutrition; an issue that has recently arisen on thread re sectioning.

full article here:
https://www.actionforme.org.uk/news/craigs-story-more-could-be-done-for-carers/

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Article - Craig's story - June 2019

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Article - Craig's story - June 2019

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