“I feel like a ghost.” How included to children and young people with chronic conditions feel in their education, and what can we learn from their...
Presentation Name of the event: 19th Biennial European Society for Health and Medical Sociology Conference Sted: Forli, Italy Date from: 25...
authors: Siobhan O’Dwyer, senior lecturer in ageing and family care1, Sarah Boothby, former carer2, Georgia Smith, research fellow1, Lucy Biddle,...
Baroness [Jane] Campbell secured cross-party backing for her amendments to the government’s domestic abuse bill when they were debated during its...
Severe ME: More Notes for Carers by Greg Crowhurst https://www.stonebird.co.uk/
I’m not really posting for discussion but more for information as I don’t think people know about it. We certainly didn’t. My daughter just found...
Hi all, Just flagging the "MECFS Patient Researcher Accolade Portfolio" @mecfspatientresearchers on Facebook at...
Eight stories comprise this paper: Stories were written in 2019 from caregivers, parents, and spouses, most of whom live with a pwME (person with...
This edition of WORK: A Journal of Prevention, Assessment and Rehabilitation features research, recommendations and lived/personal experience with...
A woman with Myalgic Encephalomyelitis (ME) has opened up about her struggle with the condition and her fears during the coronavirus pandemic....
According to the last census, there are 166,000 young carers in England, but recent research suggests that the actual figure may be as many as...
I’m interested in any paper(s) which mentions the challenge for people with ME/CFS who have to juggle their demands of their illness as well as...
On AfME website It took me a year and a half to get diagnosed with M.E. after I developed an infection that nearly killed me. I never really...
Source: Journal of Health Psychology Preprint Date: March 21, 2019 URL: https://journals.sagepub.com/doi/full/10.1177/1359105319834678...
[MEDIA] Poster Presentations Page | 212 15:30 - 17:00 Acceptance and identity change: an interpretative phenomenological analysis of carers‘...
My 33 yr old daughter is 95% bed bound. Ill for 2-3 years, and progressively getting worse though we are trying treatments with a ME specialist...
I saw this in the ME Global Chronicle. I haven't watched it myself. I am interested to hear people's thoughts about whether it is worth sharing....
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