The following posts have been moved from the Reuters thread. Anybody else think that our UK charities have been rather lacklustre during the last week? A rare example https://twitter.com/user/status/1107995510152052736 I understand not wanting to fuel Sharpe's efforts by linking to his article more than necessary BUT of course it did blow up on social media and all the embedded SMC cronies made sure that their media channel amplified his message. All I've seen is AfME posting a statement, which I'll admit to not reading as I'm assuming it's their normal weak corporate speak, in response to the Liddle article, and this from the MEA, where they describe an article that conflates CF and CFS at the wave of a hand and also supports Sharpe's scare line of "driving the researchers away" as "more balanced"! Where are their messages acknowledging that there is shit being flung about, that patients are being made to feel shit, but they have this, this and this action/plan/effort to improve our situation in progress? At the moment, from what I've seen, I get the impression that they've just drawn the curtains, looked around their offices, and said, "yup, things are much calmer this way". If this is an example of the charities 'working' together, I'm less than impressed.