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Closure of reMEmber (the Chronic Fatigue Syndrome Society) effective from 31st March 2023.

Closure of reMEmber We are announcing the planned closure of reMEmber (the Chronic Fatigue Syndrome Society) effective from 31st March 2023....

Thread by: Sly Saint, Feb 19, 2023, 5 replies, in forum: General ME/CFS news
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What are the best UK charities for ME?

My birthday is coming up and I'm wondering what you lot think the best charity would be to ask my loved ones to donate to - the ME association?...

Thread by: V.R.T., Oct 20, 2022, 2 replies, in forum: Organisations relevant to ME/CFS and Long Covid
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Walktober for ME Action: A Day To Walk For You (October 30)

https://www.mightycause.com/story/Walktober A nonprofit fundraiser supporting Myalgic Encephalomyelitis Action Network Inc Welcome to Greg...

Thread by: ahimsa, Oct 30, 2021, 2 replies, in forum: Fundraising
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Article: Gifts to make Severe ME sufferers smile posted in Merryn Crofts' memory by Smile for ME charity

Thirty ‘Smile’ gifts have been posted in Merryn Crofts’ memory to fellow Severe ME sufferers. Merryn, of Norden, sadly died in 2017, just days...

Thread by: Sly Saint, May 13, 2021, 2 replies, in forum: General ME/CFS news
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Best ME charity to support on Amazon Smile?

I'm currently supporting Invest In ME on Amazon Smile. Do you think this is the best ME research charity to support, or is there a better one I...

Thread by: Sarah94, Feb 2, 2021, 18 replies, in forum: Fundraising
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UK: Haywards Heath ME charity announces new patron

Mid Sussex ME charity reMEmber has announced its newest patron alongside important news about the after-effects of Covid-19 and new funding for a...

Thread by: Andy, Jun 26, 2020, 0 replies, in forum: General ME/CFS news
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"Salus Fatigue Foundation marks 10-year milestone with national roll out" (in UK)

Midlands fatigue charity marks 10-year milestone with national roll out A Birmingham-based charity which has been providing fatigue sufferers in...

Thread by: Dolphin, Nov 21, 2019, 5 replies, in forum: General ME/CFS news
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Should ME organisations do more direct action to get more funding for ME research?

The following posts have been moved or copied from this thread. With all due respect, don't you all think it's more important that orgs like...

Thread by: Guest 2176, Oct 30, 2019, 55 replies, in forum: General Advocacy Discussions
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The future and funding of UK ME/CFS charities

This thread has been split from https://www.s4me.info/threads/jk-rowling-donates-£15-3m-to-edinburgh-ms-research-centre.11260/ ...I feel a...

Thread by: Dx Revision Watch, Sep 12, 2019, 50 replies, in forum: General Advocacy Discussions
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Why do you +/or your family donate and/or fundraise for research?

I thought it might be useful to have a thread where people could post on this issue. Edited to add: if you plan to leave a bequest, that counts also.

Thread by: Dolphin, Aug 14, 2019, 21 replies, in forum: General Advocacy Discussions
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It'd be great if research funds could be set up in more countries, either as part of existing groups, stand-alone or affiliates of other charities

It'd be great if ME/CFS research funds could be set up in more countries, either as part of existing groups, stand-alone or affiliates of other...

Thread by: Tom Kindlon, Aug 6, 2019, 9 replies, in forum: General Advocacy Discussions
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ME Research UK - funding opportunity

Hopefully this hasn't already been linked to, ME Research UK are asking for votes to secure a research donation [ETA: actually it's a £10k...

Thread by: ringding, Jun 24, 2019, 4 replies, in forum: Fundraising
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The ME Patient Foundation

Registered Charity 1181205 I came across this charity that doesn't seem to have had a lot of activity for a while. advisors Dr Amy Proal @Amy...

Thread by: Sly Saint, Jun 23, 2019, 43 replies, in forum: Advocacy Projects and Campaigns
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Vote for Invest in ME - Charity Acclamation award - voting closes 24th June

Have you been overwhelmed by the support you’ve received from a charity? Have they helped you or a loved one in a truly meaningful way, and you...

Thread by: Sly Saint, Jun 17, 2019, 3 replies, in forum: Fundraising
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The Brain Charity - website content on ME/CFS

Just came across this charity which is for people with neurological illnesses. So that's good that they recognise ME as a neurological condition....

Thread by: Sly Saint, Jun 17, 2019, 0 replies, in forum: General Advocacy Discussions
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Charity funding

Interesting link from Twitter - [MEDIA]

Thread by: Amw66, May 27, 2019, 4 replies, in forum: Other health news and research
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United Kingdom: reMEmber news

Merged threads "The charity, reMEmber, for people with ME (Chronic Fatigue Syndrome), has been awarded the grant by the Sussex Community...

Thread by: Sly Saint, Apr 24, 2019, 29 replies, in forum: News from organisations
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ME charities' response to the Reuters article

The following posts have been moved from the Reuters thread. Anybody else think that our UK charities have been rather lacklustre during the last...

Thread by: Andy, Mar 20, 2019, 134 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
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Academy of Medical Sciences - UK

I had not heard of this 'charity' before. Who we are We are the independent body in the UK representing the diversity of medical science. Our...

Thread by: Sly Saint, Feb 8, 2019, 2 replies, in forum: General Advocacy Discussions
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Association of Medical Research Charities in the UK fund nearly half of the publicly-funded medical research

I think one or more people have claimed that funding by the MRC and NIHR dwarves money raised privately for research in the UK. This shows that...

Thread by: Tom Kindlon, Dec 26, 2018, 20 replies, in forum: Other health news and research

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