The Brain Charity - website content on ME/CFS

Just came across this charity which is for people with neurological illnesses.
So that's good that they recognise ME as a neurological condition.
However, under the charities (AYME is still there) section in Online resources it cites the Cochrane Exercise review and below that Crawleys SMILE trial.

anyone fancy contacting them to get them to update their info?

https://www.thebraincharity.org.uk/how-we-can-help?catid=0&id=159

 

The page linked to above has gone.

There is this page (not sure if it was there before), seems OK.
https://www.thebraincharity.org.uk/condition/chronic-fatigue-syndrome/

 

Wirral MP highlights findings in The Brain Charity’s report on diagnosis of neurological conditions

https://www.birkenhead.news/wirral-...port-on-diagnosis-of-neurological-conditions/

eta:
report here
It’s all in your head report: The Brain Charity calls for independent review into diagnosis of neurological conditions

http://www.thebraincharity.org.uk/its-all-in-your-head

 

ME being classified as a neurological condition will be news to 99% of neurologists.

Oof. Skimming through, overall this is a very bad look for neurology. Their general lack of understanding makes their obsession with psychosomatics, on the basis that if they don't know it it must be fake, looks especially bad.

 

Yeah, I remember seeing this consultation of patients that they ran. I thought they asked good questions, I also thought it was to their credit that they included people with ME in this.