The Brain Charity - website content on ME/CFS

Discussion in 'General Advocacy Discussions' started by Sly Saint, Jun 17, 2019.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Just came across this charity which is for people with neurological illnesses.
    So that's good that they recognise ME as a neurological condition.
    However, under the charities (AYME is still there) section in Online resources it cites the Cochrane Exercise review and below that Crawleys SMILE trial.

    anyone fancy contacting them to get them to update their info?

    https://www.thebraincharity.org.uk/how-we-can-help?catid=0&id=159
     
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  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Ash and bobbler like this.
  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Wirral MP highlights findings in The Brain Charity’s report on diagnosis of neurological conditions

    https://www.birkenhead.news/wirral-...port-on-diagnosis-of-neurological-conditions/

    eta:
    report here
    It’s all in your head report: The Brain Charity calls for independent review into diagnosis of neurological conditions

    http://www.thebraincharity.org.uk/its-all-in-your-head
     
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  4. rvallee

    rvallee Senior Member (Voting Rights)

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    ME being classified as a neurological condition will be news to 99% of neurologists.
    Oof. Skimming through, overall this is a very bad look for neurology. Their general lack of understanding makes their obsession with psychosomatics, on the basis that if they don't know it it must be fake, looks especially bad.
     
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  5. Ash

    Ash Senior Member (Voting Rights)

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    Yeah, I remember seeing this consultation of patients that they ran. I thought they asked good questions, I also thought it was to their credit that they included people with ME in this.
     
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