Agreed. It feels like it's been very much up to individual patients to take up the fight, and while many have done this extremely well I think we're all exhausted and deeply affected by the intense activity level and negative focus this week. I see so many pwME coming together to do their little bit by liking and retweeting when they can't manage to formulate polite and factual answers. We already feel abandoned by the health and social services, the general public, and the media, and now not even the charities came out in our defense. I realise it was a planned choice, but it wasn't the right one in my opinion, at least not when it became so much more than that first article.