Discussion in 'General ME/CFS News' started by Indigophoton, Jun 23, 2018.
Jessica Taylor-Bearman's kickstarter-funded book is out on 3rd July,
I hope it’s good. Has the potential to be but I have a slight concern it might focus on her rehabilitation and claim it made a huge difference when to me she still seems very ill. Nothing personal, I just don’t like the impression going out that our disabilities are due to a lack of rehab.
I'm interested if she documents any mistreatment.
Hi, it does focus on the honest approach of having very severe M.E. and not the quick recovery that is expected of M.E Units like the one I was taken to. There is also bits of mistreatment too. It’s from the approach of the voiceless. I hope you will find it of interest.
Welcome, @jayletay, I'm looking forward to reading your book. Well done for writing it. A fantastic achievement.
I hope your publication helps inform NICE and future Parliamentary actions. Thank you sharing here at S4ME, @jayletay! I will be purchasing your book.
10 Things About Living With M.E. That You Want People To Know By Jessica Taylor-Bearman
"I have been suffering with a chronic neuro immune disease for over twelve years called M.E. It stands for Myalgic Encephalomyelitis and remains very misunderstood in all aspects. You may have heard of it called by a multitude of different names including Chronic Fatigue Syndrome and sadly still, Yuppie Flu."
"I’m bedridden activist, which means I do most of my advocacy from my bed. It makes a difference to know you’ve helped someone or by writing a book like A Girl Behind Dark Glasses, I can change someone’s perspective on M.E. We all need to live in hope, that’s really important."
A Girl Behind Dark Glasses (Book) – A Review From a Fellow ME Sufferer
July 7, 2018 by Jo Moss
Steve Topple again
I have just finished reading 'A Girl Behind Dark Glasses'.
@jayletay congratulations, it's a very good book. You write clearly and well and don't hold back anything. Thank you.
For those unable to read it, Steve Topple does it justice in his review.
I think it is a very important book that should be read by everyone who treats people with ME, especially those with very severe ME - therapists, nurses, doctors, carers, physiotherapists etc.
I would not recommend it for pwME who are in a vulnerable state - it is pretty horrific in places and some people will find it too distressing.
Author Interview - Jessica Taylor-Bearman
Dec 7, 12:57 PM
Interview on RNIB radio
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