International Journal of Qualitative Studies on Health and Wellbeing Patient's experiences and effects of non-pharmacological treatment for...
FYI useful summary from: [MEDIA]
Copied from this thread I haven't looked at the update myself yet https://www.actionforme.org.uk/resources/our-publications/booklets/ Pacing for...
Engaging stakeholders to refine an activity pacing framework for chronic pain/fatigue: A nominal group technique Abstract Objectives Due to the...
There's a new facebook group, replacing the old facebook group on the same topic: ME/CFS - Pacing with a Heart Rate Monitor #2...
Not a recommendation. Although there has been something published recently by the same people running this trial I think this is something...
There is a post today on MEA facebook - https://www.facebook.com/pg/meassociation/posts/?ref=page_internal one of the personal quotes...
This thread on pacing has been split from this thread: Consumer contested evidence: why the ME/CFS exercise dispute matters so much. Plos blog...
Personally, I come down as a nay on the side of spoons. I can see where people might find this a useful help, but it does not help me, or I guess...
Source: Disability and Rehabilitation Preprint Date: November 18, 2018 URL: https://www.tandfonline.com/doi/abs/10.1080/09638288.2018.1504994...
This is a self help book on pacing that has been doing very well in Norway and has just been printed in its 2. edition. From next month it will...
There have been several posts on other threads where pwME have mentioned particular ways they use to measure their state of health. Some of these...
This was apparently in the @Action for M.E. journal earlier this year....
hi all on the thread about GET being camouflaged as pacing we were looking at the actual patient handbook that the NHS CFS/ME clinics use nowadays...
So, I encountered something unusual and was wondering if anyone else had as well. I was talking to someone from Australia who has a sleep...
Physiotherapy. 2018 Mar;104(1):129-135. doi: 10.1016/j.physio.2017.07.005. Epub 2017 Aug 4. Symptoms of chronic fatigue syndrome/myalgic...
Free full text: Activity pacing: moving beyond taking breaks & slowing down https://link.springer.com/article/10.1007%2Fs11136-018-1794-7 It's...
Does anyone else use one? I've been doing mine for two years now, and I'm starting to wonder if it helps or not... Any thoughts out there ?
Severely affected ME (Myalgic Encephalomyelitis) analysis report on questionnaire 25% ME Group (UK) 2004 Link to survey ME 2008: What progress...
People with ME/CFS usually find pacing the best strategy to try to avoid crashes and give the best chance of improvement over time. Some use...
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