pacing

BACKGROUND: Myalgic encephalomyelitis (ME) is a complex, multi-system neurological condition. The defining feature of ME is post-exertional malaise (PEM) with over 30 symptoms triggered by physical, cognitive, emotional and social activity. The cause of PEM is unclear but one area of research...

A patient who recovered from post-COVID myalgic encephalomyelitis/chronic fatigue syndrome: a case report. Oka T Background: Some patients infected with the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) complain of persistent fatigue, dyspnea, pain, and cognitive dysfunction...

I have been using a combination of apps for Pacing that utilise heart rate (HR) and heart rate variability (HRV) using Apple iWatch and iPhone. I have been using the watchME app and found it very useful, especially to monitor for conditions likely to induce PEM. Based on resting HR on waking...

Leonard Jason: "I gave a 40 min lecture on my work with Myalgic Encephalomyelitis (ME) over the decades. In particular, I focused on the Energy Envelope and Pacing, which I consider the best helping strategy for people withe ME."

https://www.meaction.net/wp-content/uploads/2022/08/Pediatric-Guide-to-Pacing-2.pdf

Abstract Objective To test a model of non-improvement in chronic fatigue syndrome (CFS) utilizing self-report activity patterns (e.g., “push-crash”), uplifts and hassles, and a biological measure of cardiac autonomic function. Activity pattern impacts on symptoms and objective measures of...

Do Nothing: How To Break Away From Overworking, Overdoing, and Underliving by Celeste Headlee https://celesteheadlee.com/do-nothing-book/

Testing a newly developed activity pacing framework for chronic pain/fatigue: a feasibility study Antcliffe et al 2021 BMJ Open Abstract Objectives To test the feasibility of using a new activity pacing framework to standardise healthcare professionals’ instructions of pacing, and explore...

"Visible tracks your post-viral illness so you can manage your activity, avoid relapse and improve your health." https://makevisible.co/ There's not a lot of detail on the website - it seems to be focused on heart rate monitoring and tracking of symptoms.

This thread has been renamed to include general discussion of pacing for people with severe ME/CFS as well as the leaflet linked in this first post. 25% ME Group pacing leaflet (among other things, it differentiates between CFS and ME) https://25megroup.org/download/1796/?v=3222 It ends: ---...

Video: Fatigue, Pacing and PEM Management | Lessons from ME/CFS - With Dr Ben Marsh I know this video has been mentioned on another thread but I think it might have been missed by many and deserves a thread of its own. In Episode 3 of our expert interviews series, Dr Asad Khan talks to Dr Ben...

Abstract Objectives We have developed and feasibility tested an activity pacing framework for clinicians to standardise their recommendations of activity pacing to patients with chronic pain/fatigue. This study aimed to explore the acceptability and fidelity to this framework in preparation for...

Moderators note: This post has been copied from the "USA: News from the Workwell Foundation." thread. From an email. NEW RELEASE Heart Rate Monitor Factsheet Workwell is pleased to announce our new factsheet on Activity Management with a Heart Rate Monitor! Heart rate monitoring provides...

They talk, in the abstract, about chronic fatigue only, but the patients they discuss have gone through a "CFS/ME" assessment, so may or may not have ME. Open access, https://www.tandfonline.com/doi/full/10.1080/01459740.2021.1883011 This part possibly explains a bit more clearly what the...

Effect of a Tailored Activity Pacing Intervention on Fatigue and Physical Activity Behaviours in Adults with Multiple Sclerosis https://www.mdpi.com/1660-4601/18/1/17/htm Not very relevant to us but always interesting to see how similar studies are run in other diseases. I am not aware if PEM...

https://www.meaction.net/wp-content/uploads/2020/10/Pacing-and-Management-Guide-for-ME_CFS-8.pdf

https://sapc.ac.uk/conference/2017/abstract/effect-of-cbt-get-and-pacing-treatments-mecfs-symptoms-analysis-of-patient

https://youtu.be/FqoIf11mY8Q https://youtu.be/NWLu1IfYYH0 ______________________ See also this thread on another Workwell team talk at about the same time: Preventing Post Exertional Malaise - online talk with Staci Stevens and Dr Mark Van Ness - Thurs 22nd Oct 2:30pm

Inspired by a number of conversations I've had recently, the increased interest in pacing from people suffering post-Covid19 issues and a tweet from a member of @PhysiosforME what is your best description of how you pace and how you know when to pace? N.B. I know pacing is a regular topic for...

https://chronicallycaroline.com/2020/06/29/energy-systems-and-pacing-in-me-cfs/