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pacing

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  1. Sly Saint
    Thread

    Leonard Jason's Energy Envelope Webinar for the Norwegian ME association

    Leonard Jason: "I gave a 40 min lecture on my work with Myalgic Encephalomyelitis (ME) over the decades. In particular, I focused on the Energy...
    Thread by: Sly Saint, Nov 12, 2022, 0 replies, in forum: Resources
  2. Sly Saint
    Thread

    Pacing and Management Guide for Pediatric ME/CFS and Long Covid: #MEAction, Aug 2022

    https://www.meaction.net/wp-content/uploads/2022/08/Pediatric-Guide-to-Pacing-2.pdf
    Thread by: Sly Saint, Aug 20, 2022, 3 replies, in forum: Resources
  3. Andy
    Thread

    Non-improvement in chronic fatigue syndrome: relation to activity patterns, uplifts and hassles, and autonomic dysfunction, 2022, Friedberg et al

    Abstract Objective To test a model of non-improvement in chronic fatigue syndrome (CFS) utilizing self-report activity patterns (e.g.,...
    Thread by: Andy, Apr 15, 2022, 17 replies, in forum: ME/CFS research
  4. leokitten
    Thread

    Do Nothing: How To Break Away From Overworking, Overdoing, and Underliving

    Do Nothing: How To Break Away From Overworking, Overdoing, and Underliving by Celeste Headlee https://celesteheadlee.com/do-nothing-book/
    Thread by: leokitten, Mar 1, 2022, 10 replies, in forum: Relationships and coping
  5. Haveyoutriedyoga
    Thread

    Testing a newly developed activity pacing framework for chronic pain/fatigue: a feasibility study, Antcliffe et al 2021

    Testing a newly developed activity pacing framework for chronic pain/fatigue: a feasibility study Antcliffe et al 2021 BMJ Open Abstract...
    Thread by: Haveyoutriedyoga, Dec 8, 2021, 17 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  6. Andy
    Thread

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    "Visible tracks your post-viral illness so you can manage your activity, avoid relapse and improve your health." https://makevisible.co/ [MEDIA]...
    Thread by: Andy, Nov 25, 2021, 28 replies, in forum: Monitoring and pacing
  7. Dolphin
    Thread

    25% ME Group pacing leaflet (among other things, it differentiates between CFS and ME)

    https://25megroup.org/download/1796/?v=3222 It ends: --- The evidence which shows that some CFS patients are merely deconditioned and can be...
    Thread by: Dolphin, Oct 4, 2021, 14 replies, in forum: General ME/CFS news
  8. Sly Saint
    Thread

    Video: Fatigue, Pacing and PEM Management | Lessons from ME/CFS - With Dr Ben Marsh

    I know this video has been mentioned on another thread but I think it might have been missed by many and deserves a thread of its own. In Episode...
    Thread by: Sly Saint, Jun 15, 2021, 4 replies, in forum: Resources
  9. Andy
    Thread

    “Pacing does help you get your life back”: The acceptability of a newly developed activity pacing framework for chronic pain/fatigue, 2021, Antcliff

    Abstract Objectives We have developed and feasibility tested an activity pacing framework for clinicians to standardise their recommendations of...
    Thread by: Andy, May 7, 2021, 10 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Andy
    Thread

    Heart Rate Monitor Factsheet - Workwell Foundation

    Moderators note: This post has been copied from the "USA: News from the Workwell Foundation." thread. From an email. NEW RELEASE Heart Rate...
    Thread by: Andy, Mar 5, 2021, 17 replies, in forum: Monitoring and pacing
  11. Andy
    Thread

    Caught up in Care: Crafting Moral Subjects of Chronic Fatigue, Risor and Lillevoll, 2021

    They talk, in the abstract, about chronic fatigue only, but the patients they discuss have gone through a "CFS/ME" assessment, so may or may not...
    Thread by: Andy, Feb 18, 2021, 21 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  12. rvallee
    Thread

    Effect of a Tailored Activity Pacing Intervention on Fatigue and Physical Activity Behaviours in Adults with MS, 2020

    Effect of a Tailored Activity Pacing Intervention on Fatigue and Physical Activity Behaviours in Adults with Multiple Sclerosis...
    Thread by: rvallee, Dec 26, 2020, 5 replies, in forum: Other health news and research
  13. Sly Saint
    Thread

    #MEAction: PACING AND MANAGEMENT GUIDE FOR ME/CFS

    https://www.meaction.net/wp-content/uploads/2020/10/Pacing-and-Management-Guide-for-ME_CFS-8.pdf
    Thread by: Sly Saint, Oct 28, 2020, 11 replies, in forum: General ME/CFS news
  14. Sly Saint
    Thread

    The Effect of CBT, GET and Pacing Treatments on ME/CFS Symptoms: Analysis of a Patient Survey compared against Secondary Surveys - 2017 Geraghty et al

    Problem Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) severely impacts the quality of life of sufferers. Most ME/CFS patients will...
    Thread by: Sly Saint, Oct 18, 2020, 7 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  15. Andy
    Thread

    Video: Energy Management in Chronic Illness: Practical Tips, pts 1&2 [Workwell and Whittemore Peterson Institute]

    Join host Annette Whittemore with special guest Staci Stevens from the Workwell Foundation as Staci provides Practical Tips for Energy Management...
    Thread by: Andy, Oct 15, 2020, 4 replies, in forum: Resources
  16. Andy
    Thread

    Pacing - what do you do/how would you describe it?

    Inspired by a number of conversations I've had recently, the increased interest in pacing from people suffering post-Covid19 issues and a tweet...
    Thread by: Andy, Jul 19, 2020, 59 replies, in forum: Monitoring and pacing
  17. Andy
    Thread

    Blog: Frozen in Amber, "Energy systems and pacing in ME/CFS"

    Summary The aerobic energy system is “broken” in ME/CFS and cannot be fixed with exercise (i.e., graded exercise therapy, also known as GET). The...
    Thread by: Andy, Jul 2, 2020, 12 replies, in forum: General ME/CFS news
  18. ahimsa
    Thread

    Heart Rate Thresholds to Limit Activity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients (Pacing) - 2020 - van Campen, Rowe, Visser

    Heart Rate Thresholds to Limit Activity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients (Pacing): Comparison of Heart Rate Formulae...
    Thread by: ahimsa, May 24, 2020, 5 replies, in forum: ME/CFS research
  19. Kalliope
    Thread

    Patient's experiences and effects of non-pharmacological treatment for ME/CFS - a scoping mixed method review - 2020 - Mengshoel et al

    International Journal of Qualitative Studies on Health and Wellbeing Patient's experiences and effects of non-pharmacological treatment for...
    Thread by: Kalliope, May 20, 2020, 19 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  20. InfiniteRubix
    Thread

    Heart rate pacing devices - accuracy and responsiveness

    FYI useful summary from: [MEDIA]
    Thread by: InfiniteRubix, Feb 19, 2020, 17 replies, in forum: Monitoring and pacing
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