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pacing

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  1. Andy
    Thread

    Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    "Visible tracks your post-viral illness so you can manage your activity, avoid relapse and improve your health." https://makevisible.co/ [MEDIA]...
    Thread by: Andy, Nov 25, 2021 at 10:12 PM, 10 replies, in forum: General ME/CFS News
  2. Dolphin
    Thread

    25% ME Group pacing leaflet (among other things, it differentiates between CFS and ME)

    https://25megroup.org/download/1796/?v=3222 It ends: --- The evidence which shows that some CFS patients are merely deconditioned and can be...
    Thread by: Dolphin, Oct 4, 2021, 14 replies, in forum: General ME/CFS News
  3. Sly Saint
    Thread

    Video: Fatigue, Pacing and PEM Management | Lessons from ME/CFS - With Dr Ben Marsh

    I know this video has been mentioned on another thread but I think it might have been missed by many and deserves a thread of its own. In Episode...
    Thread by: Sly Saint, Jun 15, 2021, 4 replies, in forum: General ME/CFS News
  4. Andy
    Thread

    Caught up in Care: Crafting Moral Subjects of Chronic Fatigue, Risor and Lillevoll, 2021

    They talk, in the abstract, about chronic fatigue only, but the patients they discuss have gone through a "CFS/ME" assessment, so may or may not...
    Thread by: Andy, Feb 18, 2021, 21 replies, in forum: PsychoSocial ME/CFS Research
  5. rvallee
    Thread

    Effect of a Tailored Activity Pacing Intervention on Fatigue and Physical Activity Behaviours in Adults with MS, 2020

    Effect of a Tailored Activity Pacing Intervention on Fatigue and Physical Activity Behaviours in Adults with Multiple Sclerosis...
    Thread by: rvallee, Dec 26, 2020, 5 replies, in forum: Other Health News and Research
  6. Sly Saint
    Thread

    #MEAction: PACING AND MANAGEMENT GUIDE FOR ME/CFS

    https://www.meaction.net/wp-content/uploads/2020/10/Pacing-and-Management-Guide-for-ME_CFS-8.pdf
    Thread by: Sly Saint, Oct 28, 2020, 11 replies, in forum: General ME/CFS News
  7. Sly Saint
    Thread

    The Effect of CBT, GET and Pacing Treatments on ME/CFS Symptoms: Analysis of a Patient Survey compared against Secondary Surveys - 2017 Geraghty et al

    Problem Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) severely impacts the quality of life of sufferers. Most ME/CFS patients will...
    Thread by: Sly Saint, Oct 18, 2020, 7 replies, in forum: PsychoSocial ME/CFS Research
  8. Andy
    Thread

    Video: Energy Management in Chronic Illness: Practical Tips, pts 1&2 [Workwell and Whittemore Peterson Institute]

    Join host Annette Whittemore with special guest Staci Stevens from the Workwell Foundation as Staci provides Practical Tips for Energy Management...
    Thread by: Andy, Oct 15, 2020, 4 replies, in forum: Lifestyle Management
  9. Andy
    Thread

    Pacing - what do you do/how would you describe it?

    Inspired by a number of conversations I've had recently, the increased interest in pacing from people suffering post-Covid19 issues and a tweet...
    Thread by: Andy, Jul 19, 2020, 59 replies, in forum: Lifestyle Management
  10. Andy
    Thread

    Blog: Frozen in Amber, "Energy systems and pacing in ME/CFS"

    Summary The aerobic energy system is “broken” in ME/CFS and cannot be fixed with exercise (i.e., graded exercise therapy, also known as GET). The...
    Thread by: Andy, Jul 2, 2020, 12 replies, in forum: General ME/CFS News
  11. ahimsa
    Thread

    Heart Rate Thresholds to Limit Activity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients (Pacing) - 2020 - van Campen, Rowe, Visser

    Heart Rate Thresholds to Limit Activity in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients (Pacing): Comparison of Heart Rate Formulae...
    Thread by: ahimsa, May 24, 2020, 5 replies, in forum: BioMedical ME/CFS Research
  12. InfiniteRubix
    Thread

    Heart rate pacing devices - accuracy and responsiveness

    FYI useful summary from: [MEDIA]
    Thread by: InfiniteRubix, Feb 19, 2020, 17 replies, in forum: Lifestyle Management
  13. Dolphin
    Thread

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    Copied from this thread I haven't looked at the update myself yet https://www.actionforme.org.uk/resources/our-publications/booklets/ Pacing for...
    Thread by: Dolphin, Jan 23, 2020, 133 replies, in forum: Lifestyle Management
  14. Sly Saint
    Thread

    Engaging stakeholders to refine an activity pacing framework for chronic pain/fatigue: A nominal group technique -Antcliff, Keenan et al Nov 2019

    Engaging stakeholders to refine an activity pacing framework for chronic pain/fatigue: A nominal group technique Abstract Objectives Due to the...
    Thread by: Sly Saint, Nov 22, 2019, 24 replies, in forum: Other Health News and Research
  15. Hutan
    Thread

    New facebook group for ME/CFS Pacing with a heart rate monitor

    There's a new facebook group, replacing the old facebook group on the same topic: ME/CFS - Pacing with a Heart Rate Monitor #2...
    Thread by: Hutan, Oct 3, 2019, 6 replies, in forum: General ME/CFS News
  16. Andy
    Thread

    Recruiting: Developing an Activity Pacing Framework: Feasibility and Acceptability, Antcliff et al

    Not a recommendation. Although there has been something published recently by the same people running this trial I think this is something...
    Thread by: Andy, Sep 3, 2019, 7 replies, in forum: PsychoSocial ME/CFS Research
  17. JemPD
    Thread

    GET/GAT being misrepresented as 'pacing'?

    There is a post today on MEA facebook - https://www.facebook.com/pg/meassociation/posts/?ref=page_internal one of the personal quotes...
    Thread by: JemPD, May 13, 2019, 19 replies, in forum: General ME/CFS News
  18. Hutan
    Thread

    Pacing - definitions and sources of information

    This thread on pacing has been split from this thread: Consumer contested evidence: why the ME/CFS exercise dispute matters so much. Plos blog...
    Thread by: Hutan, Feb 9, 2019, 95 replies, in forum: Lifestyle Management
  19. JohnTheJack
    Thread

    Article by Paul Worthley

    This was apparently in the @Action for M.E. journal earlier this year....
    Thread by: JohnTheJack, Jul 6, 2018, 40 replies, in forum: General ME/CFS News
  20. Sly Saint
    Thread

    Symptoms of chronic fatigue syndrome/myalgic encephalopathy are not determined by activity pacing when measured by the chronic pain coping inventory.

    Physiotherapy. 2018 Mar;104(1):129-135. doi: 10.1016/j.physio.2017.07.005. Epub 2017 Aug 4. Symptoms of chronic fatigue syndrome/myalgic...
    Thread by: Sly Saint, Apr 15, 2018, 4 replies, in forum: PsychoSocial ME/CFS Research
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