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pacing

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  1. SNT Gatchaman
    Thread

    Post-exertional Malaise in ME/CFS - Webinar for Health Professionals - Dr Cathy Stephenson

    Posts moved from News from Aotearoa/New Zealand and the Pacific Islands YouTube - Post-Exertional Malaise in ME/CFS - Management and Supports -...
    Thread by: SNT Gatchaman, Jun 23, 2023, 27 replies, in forum: Resources
  2. Sly Saint
    Thread

    The relevance of pacing strategies in managing symptoms of post-COVID-19 syndrome 2023, Ghali et al

    Abstract Background Post-COVID-19 syndrome (PCS) shares many features with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). PCS...
    Thread by: Sly Saint, Jun 8, 2023, 17 replies, in forum: Long Covid research
  3. Tom Kindlon
    Thread

    Self-Tracking to Do Less: An Autoethnography of Long COVID That Informs the Design of Pacing Technologies, 2023, Homewood

    Sarah Homewood Department of Computer Science, University of Copenhagen sfh@di.ku.dk Free fulltext:...
    Thread by: Tom Kindlon, Apr 26, 2023, 0 replies, in forum: Long Covid research
  4. Sly Saint
    Thread

    UK ME Association documents on pacing

    Moved posts In light of recent discussions on 'pacing' and 'energy management', here...
    Thread by: Sly Saint, Apr 19, 2023, 20 replies, in forum: Monitoring and pacing
  5. Sly Saint
    Thread

    Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/cfs 2017, Goudsmit

    Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/chronic fatigue...
    Thread by: Sly Saint, Apr 16, 2023, 30 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  6. Sly Saint
    Thread

    NHS Talk Plus Video Modules for people with Long Term Conditions (LTC)

    The diagram below displays the elements that we can call upon to build resilience. Each of the elements suggests which of our video modules may...
    Thread by: Sly Saint, Apr 15, 2023, 6 replies, in forum: Training courses
  7. Andy
    Thread

    An international survey of experiences and attitudes towards pacing using a heart rate monitor for people with ME/CFS 2023 Clague-Baker et al

    BACKGROUND: Myalgic encephalomyelitis (ME) is a complex, multi-system neurological condition. The defining feature of ME is post-exertional...
    Thread by: Andy, Mar 21, 2023, 0 replies, in forum: ME/CFS research
  8. SNT Gatchaman
    Thread

    A patient who recovered from post-COVID myalgic encephalomyelitis/chronic fatigue syndrome: a case report, 2023, Oka

    A patient who recovered from post-COVID myalgic encephalomyelitis/chronic fatigue syndrome: a case report. Oka T Background: Some patients...
    Thread by: SNT Gatchaman, Mar 2, 2023, 11 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  9. hibiscuswahine
    Thread

    WatchME and other HR/HRV monitoring apps

    I have been using a combination of apps for Pacing that utilise heart rate (HR) and heart rate variability (HRV) using Apple iWatch and iPhone. I...
    Thread by: hibiscuswahine, Jan 21, 2023, 12 replies, in forum: Monitoring and pacing
  10. Sly Saint
    Thread

    Leonard Jason's Energy Envelope Webinar for the Norwegian ME association

    Leonard Jason: "I gave a 40 min lecture on my work with Myalgic Encephalomyelitis (ME) over the decades. In particular, I focused on the Energy...
    Thread by: Sly Saint, Nov 12, 2022, 0 replies, in forum: Resources
  11. Sly Saint
    Thread

    Pacing and Management Guide for Pediatric ME/CFS and Long Covid: #MEAction, Aug 2022

    https://www.meaction.net/wp-content/uploads/2022/08/Pediatric-Guide-to-Pacing-2.pdf
    Thread by: Sly Saint, Aug 20, 2022, 3 replies, in forum: Resources
  12. Andy
    Thread

    Non-improvement in chronic fatigue syndrome: relation to activity patterns, uplifts and hassles, and autonomic dysfunction, 2022, Friedberg et al

    Abstract Objective To test a model of non-improvement in chronic fatigue syndrome (CFS) utilizing self-report activity patterns (e.g.,...
    Thread by: Andy, Apr 15, 2022, 17 replies, in forum: ME/CFS research
  13. leokitten
    Thread

    Do Nothing: How To Break Away From Overworking, Overdoing, and Underliving

    Do Nothing: How To Break Away From Overworking, Overdoing, and Underliving by Celeste Headlee https://celesteheadlee.com/do-nothing-book/
    Thread by: leokitten, Mar 1, 2022, 10 replies, in forum: Relationships and coping
  14. Haveyoutriedyoga
    Thread

    Testing a newly developed activity pacing framework for chronic pain/fatigue: a feasibility study, Antcliffe et al 2021

    Testing a newly developed activity pacing framework for chronic pain/fatigue: a feasibility study Antcliffe et al 2021 BMJ Open Abstract...
    Thread by: Haveyoutriedyoga, Dec 8, 2021, 17 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  15. Andy
    Thread

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    "Visible tracks your post-viral illness so you can manage your activity, avoid relapse and improve your health." https://makevisible.co/ [MEDIA]...
    Thread by: Andy, Nov 25, 2021, 91 replies, in forum: Monitoring and pacing
  16. Dolphin
    Thread

    Pacing for people with severe ME/CFS

    This thread has been renamed to include general discussion of pacing for people with severe ME/CFS as well as the leaflet linked in this first...
    Thread by: Dolphin, Oct 4, 2021, 14 replies, in forum: Monitoring and pacing
  17. Sly Saint
    Thread

    Gez Medinger videos: Part 1 Pacing - Ben Marsh, Part 2 GET - Todd Davenport et al.

    Video: Fatigue, Pacing and PEM Management | Lessons from ME/CFS - With Dr Ben Marsh I know this video has been mentioned on another thread but I...
    Thread by: Sly Saint, Jun 15, 2021, 16 replies, in forum: Resources
  18. Andy
    Thread

    “Pacing does help you get your life back”: The acceptability of a newly developed activity pacing framework for chronic pain/fatigue, 2021, Antcliff

    Abstract Objectives We have developed and feasibility tested an activity pacing framework for clinicians to standardise their recommendations of...
    Thread by: Andy, May 7, 2021, 10 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  19. Andy
    Thread

    Heart Rate Monitor Factsheet - Workwell Foundation

    Moderators note: This post has been copied from the "USA: News from the Workwell Foundation." thread. From an email. NEW RELEASE Heart Rate...
    Thread by: Andy, Mar 5, 2021, 17 replies, in forum: Monitoring and pacing
  20. Andy
    Thread

    Caught up in Care: Crafting Moral Subjects of Chronic Fatigue, Risor and Lillevoll, 2021

    They talk, in the abstract, about chronic fatigue only, but the patients they discuss have gone through a "CFS/ME" assessment, so may or may not...
    Thread by: Andy, Feb 18, 2021, 21 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
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