pacing

This information is from the ME Action website, see http://www.meaction.net/2017/10/30/new-living-w-me-support-group-2/ The November and December schedule for the Living w/ ME Support Group has just been announced: Sunday, November 12: Avoiding Crashes Sunday, December 10: Surviving the...

Hi all. I’ve made the plunge and invested in an Oura Ring 4. Reason was, I lacked confidence in the HRV readings taken by my Visible App and armband each morning - I wanted to see in more detail what is going on overnight. It’s early days, but I’ve seen some very revealing trends (that I...

Mixed methods study of views and experience of non-hospitalised individuals with long COVID of using pacing interventions Christel McMullan, Shamil Haroon, Grace Turner, Olalekan Lee Aiyegbusi, Sarah E Hughes, Sarah Flanagan, Anuradhaa Subramanian, Krishnarajah Nirantharakumar, Elin Haf...

A Digital Platform with Activity Tracking for Energy Management Support in Long COVID: A Randomised Controlled Trial Lawrence Hayes, Nilihan Sanal-Hayes, Jacqueline Mair, Antonio Dello Iacono, Joanne Ingram, Jane Ormerod, David Carless, Natlie Hilliard, Marie Mclaughlin, Rachel Meach, Nicholas...

Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex, debilitating condition characterised by severe fatigue that is not relieved by rest and is often exacerbated by physical or mental activity. A key challenge for individuals with ME/CFS is energy management and...

I am very concerned that some ME/CFS clinicians, clinics and charities are recommending various versions of pacing up, and claiming it's NICE guidelines compliant because it's not GET and it is 'symptom contingent' therefore safe. I was asked by someone who recommends pacing up to explain my...

“It’s a moving target”: Experiences of pacing to reduce symptom exacerbation among adults living with Long COVID – Results from an international community-engaged qualitative research study Kiera McDuff; Darren A Brown; Natalie St. Clair-Sullivan; Soo Chan Carusone; Kristine M Erlandson; Lisa...

https://www.researchsquare.com/article/rs-5389182/v1 Wearable Technology in the Management of Complex Chronic Illness: Preliminary Survey Results on Self-Reported Outcomes Abstract Chronic illnesses like Long Covid and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome involve fluctuating...

https://www.tandfonline.com/doi/full/10.1080/21641846.2024.2433390 ABSTRACT Background Pacing typically comprises regulating activity to avoid post-exertional neuroimmune exhaustion, the worsening of symptoms after an activity. Yet, the efficacy of pacing to improve symptomology is unclear...

Discussion split from United Kingdom: ME Association news One question I have that is prompted by the Riley editorial but is not about the Riley editorial. I've had a couple of people tell me that, after many years never exceeding what they believed was their level of activity for triggering...

#MEAction and Patient-led Research Collaborative have created a four-part video series focusing on post-exertional malaise and pacing. Each video includes an interview with an expert conducted by Chimére L. Sweeney, a Long COVID author, speaker, filmmaker, and writer. We are thankful for the...

Randomised controlled trial of graded exercise in chronic fatigue syndrome Karen E Wallman, Alan R Morton, Carmel Goodman, Robert Grove and Andrew M Guilfoyle Med J Aust 2004; 180 (9): 444-448. || doi: 10.5694/j.1326-5377.2004.tb06019.x Published online: 3 May 2004 Abstract Objective: To...

I’ve never seen this mentioned anywhere else but here goes: I track my spo2 levels all the time (curiosity I guess) and ive noticed something interesting: When I feel like I’m overdoing it cognitively my spo2 jumps to 99% When I feel like I’m overdoing it physically my spo2 dips below 94% When...

Abstract Background: Controversy over treatment for people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a barrier to appropriate treatment. Energy management or pacing is a prominent coping strategy for people with ME/CFS that involves regulating activity to avoid post...

Posts moved from News from Aotearoa/New Zealand and the Pacific Islands YouTube - Post-Exertional Malaise in ME/CFS - Management and Supports - Webinar for Health Professionals (24 mins) Dr Cathy Stephenson for ME Awareness NZ on World ME Day. I think this is a good resource for GPs and...

Abstract Background Post-COVID-19 syndrome (PCS) shares many features with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). PCS represents a major health issue worldwide because it severely impacts patients’ work activities and their quality of life. In the absence of treatment for...

Sarah Homewood Department of Computer Science, University of Copenhagen sfh@di.ku.dk Free fulltext: https://dl.acm.org/doi/pdf/10.1145/3544548.3581505 ABSTRACT Long COVID is a post-viral illness where symptoms are still experienced more than three months after an infection of COVID 19. In...

Moved posts In light of recent discussions on 'pacing' and 'energy management', here https://www.s4me.info/threads/bias-misleading-information-and-lack-of-respect-for-alternative-views-have-distorted-perceptions-of-myalgic-encephalomyelitis-cfs-2017-goudsmit.32906/#post-470664 I've had a look...

Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/chronic fatigue syndrome and its treatment Abstract The PACE trial is one of the most recent studies evaluating cognitive behavioural therapy and graded exercise...

https://www.talkplus.org.uk/long-term-condition-video-modules in each module you can access a pdf of all the slides. first one on pacing by accident I got to this page https://www.talkplus.org.uk/the-boom-and-bust-cycle-video-module Most of the videos are from around 2018. I didn't realise...