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Recruiting: Developing an Activity Pacing Framework: Feasibility and Acceptability, Antcliff et al

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Andy, Sep 3, 2019.

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  1. Andy

    Andy Committee Member

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    Not a recommendation. Although there has been something published recently by the same people running this trial I think this is something different, albeit related.
    https://bepartofresearch.nihr.ac.uk/trial-details/trial-detail?trialId=2460&location=&distance=
     
    Andy, Sep 3, 2019
    #1
    JaneL, shak8, Sly Saint and 4 others like this.
  2. Trish

    Trish Moderator Staff Member

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    Looks like it's well under way and due to finish early next year.

    I see they are using the Chalder Fatigue Questionnaire as their measure of fatigue. Lots of other questionnaires. No doubt they will cherry pick any results that happen to improve a bit. No control group so completely meaningless outcomes.

    And the cohort is so broad as to be meaningless - anyone with chronic pain and/or fatigue, including ME/CFS.

    Their aim seems to be feasibility of using their methods, not effectiveness.

    Do these people have no idea how to do research.
     
    Trish, Sep 3, 2019
    #2
    JaneL, alktipping, rvallee and 10 others like this.
  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    I can't remember who said it but it was something along the lines of 'for a therapy to be accepted as valid it has to have a manual'.
    Take a common sense intuative approach to an illness/symptom and turn it into a marketable regime.

    so we had APT (invented to fail), now the 'Activity Pacing framework'. Book to follow no doubt.

    eta:
    Dr Deborah Antcliff
    https://medicinehealth.leeds.ac.uk/healthcare/staff/990/dr-deborah-antcliff

    The Development of an Activity Pacing Questionnaire for Chronic Pain and/or Fatigue
    Antcliff, Deborah Claire 2014
    or later to be called the Antcliff Pacing questionnaire?
    https://www.escholar.manchester.ac.uk/jrul/item/?pid=uk-ac-man-scw:227500
     
    Last edited: Sep 3, 2019
    Sly Saint, Sep 3, 2019
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  4. Annamaria

    Annamaria Senior Member (Voting Rights)

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    Annamaria, Sep 3, 2019
    #4
    Andy and Trish like this.
  5. Amw66

    Amw66 Senior Member (Voting Rights)

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    Amw66, Sep 3, 2019
    #5
    PhysiosforME and Andy like this.
  6. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    Following.
     
    adambeyoncelowe, Sep 3, 2019
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    JaneL and Andy like this.
  7. PhysiosforME

    PhysiosforME Senior Member (Voting Rights)

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    Thanks for the tag - we are looking at the detail of this and hoping to make contact with the authors. We will update as we know more
     
    PhysiosforME, Sep 3, 2019
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    Sly Saint, JaneL, oldtimer and 3 others like this.
  8. rvallee

    rvallee Senior Member (Voting Rights)

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    In what world do people live in that "pace yourself" could ever mean "go faster"?

    Newspeak was not an instruction manual. Just because some people use up when they mean down does not mean we should pay attention to this new inverted meaning.

    Just embarrassing. What a waste.
     
    rvallee, Sep 3, 2019
    #8
    Annamaria, JaneL, alktipping and 2 others like this.

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