me/cfs

  1. Andy

    2022 Brian Hughes on the NICE Guideline and what it means for care of people with ME/CFS

    Copied post Video is now available https://youtu.be/D8ayxBSsk_M
  2. Andy

    Open Canada: Breathing Protocol for Covid-19 Long Haul and ME/CFS, Toronto

    "Research Opportunity for ME & Long COVID Patients in Toronto York University is recruiting ME patients and longhaulers for a research protocol in Toronto. Patients' individual limitations will be respected. See below for more details. Please contact Heather at edgell@yorku.ca or...
  3. Andy

    United Kingdom: Isle of Man ME/CFS and Long Covid services (Manx, ME Support IOM)

    Merged thread David Tuller seems to be on a tour of the UK :) http://www.iomtoday.co.im/article.cfm?id=37206
  4. Jonathan Edwards

    Implementation statement in support of ME/CFS diagnosis and management, NICE, draft published for consultation

    Moved from the UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion thread. Dear Jonathan Further to the email sent last week, please find attached the draft implementation statement in support of our guidance on the diagnosis and management of myalgic...
  5. MarianaLewis

    Closed 2022 UK Recruiting: narrative inquiry exploring the school experiences of teenagers with ME/CFS (doctoral research)

    Hello, Thank you for being so welcoming on this forum. My name is Mariana, I'm currently doing a professional doctorate in Educational Psychology at the University of Bristol (School of Policy Studies), and I am researching the school experiences of teenagers with ME/CFS for my thesis. A...
  6. Andy

    Recursive Debility: Symptoms, Patient Activism, and the Incomplete Medicalization of ME/CFS, 2022, Lim Rogers

    Abstract This article examines the contestation of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Lacking consistent diagnostic definitions, agreed-on biological indicators, or approved treatments, ME/CFS is an incompletely medicalized condition. It is defined by intractable and...
  7. Arnie Pye

    Perspective: Drawing on Findings From Critical Illness to Explain ME/CFS, 2022, Stanculescu, Bergquist

    Not sure where this should be posted. Please move if necessary. Title of article : Perspective: Drawing on Findings From Critical Illness to Explain Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Link : https://www.frontiersin.org/articles/10.3389/fmed.2022.818728/full Date published : 8th...
  8. L

    Traumatic brain injury - similarities with and differences to ME/CFS, including PEM

    Thread split from UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion For those who want to share personal experiences on this topic less publicly there is a thread in the members only area here. ______________ I used to think it was unique. But I am starting...
  9. ahimsa

    Webinar: Implications of ME/CFS Case Definitions for Long-COVID, Dr. Leonard Jason

    Webinar: “Implications Of ME/CFS Case Definitions For Long Covid” Guest speaker: Dr. Leonard Jason Wednesday, March 16, 2022, 4 p.m. EDT (1 p.m. PDT, 8 p.m. GMT) Full announcement - https://usawg.wordpress.com/2022/02/26/special-event/ Click here to register
  10. ahimsa

    USA: News from the Bateman Horne Center

    This thread has news updates from the BHC. For threads on useful resources provided by BHC see the Resources forum. Ever-Growing Awareness by Lucinda Bateman, MD Mar 2, 2022 https://batemanhornecenter.org/evergrowing-awareness/
  11. L

    UK: Specialist Rehabilitation Medicine Services for ME/CFS and Long Covid

    Moved post This post may be taking the current discussion slightly off track, but I didn't intend it to as my first immediate thought when reading the opinion piece was the RCP's refusal to champion the new guidelines has influenced such propaganda, so I thought I would check to see if they...
  12. ahimsa

    International Business Times: What Is Chronic Fatigue Syndrome? Overlooked Condition Shares Symptoms With Long COVID

    What Is Chronic Fatigue Syndrome? Overlooked Condition Shares Symptoms With Long COVID https://www.ibtimes.com/what-chronic-fatigue-syndrome-overlooked-condition-shares-symptoms-long-covid-3410892
  13. Andy

    Post-corona fatigue-a familiar picture in a new guise?, 2022, Buchberger et al

    Abstract Background Myalgic encephalitis or chronic fatigue syndrome (ME/CFS) has again come into focus as a result of coronavirus disease 2019 (COVID-19). Fundamentally problematic is the fact that ME/CFS is considered a separate entity; however, extreme fatigue is also a common symptom of an...
  14. Hutan

    Is Long Covid a type of ME/CFS?

    There is a lot of information relevant to the question of whether Long Covid is a subset of ME/CFS, or overlaps with it in News about Long Covid including its relationship to ME/CFS 2020 to 2021 (thread now closed)
  15. Andy

    Ginseng for the Treatment of Chronic Fatigue Syndrome: A Systematic Review of Clinical Studies, 2022, Yang et al

    Abstract Background Chronic fatigue syndrome (CFS) is a complex and often disabling chronic condition emerging worldwide, with no curative or definitive therapy yet identified. Ginseng has been widely used to treat fatigue in other patient groups and conditions; however, a systematic review...
  16. Kalliope

    (Coming) thesis: Tarjei Tørre Asprusten "Diagnosis of Chronic Fatigue Syndrome in Adolescents" - 2022

    Tarjei Tørre Asprusten will be defending his thesis "Diagnosis of Chronic Fatigue Syndrome in Adolescents" for the degree of PhD 7th March 2022. Principal supervisor is prof. Wyller. Summary Diagnostic labels as Chronic Fatigue Syndrome (CFS), Myalgic Encephalomyelitis (ME) and Systemic...
  17. Andy

    Impaired TRPM3-dependent calcium influx and restoration using Naltrexone in natural killer cells of [ME/CFS], 2022, Eaton-Fitch et al

    Abstract Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious disorder of unknown aetiology. While the pathomechanism of ME/CFS remains elusive, reduced natural killer (NK) cell cytotoxic function is a consistent immunological feature. NK cell effector functions...
  18. Hutan

    Physiological assessment of orthostatic intolerance in chronic fatigue syndrome, 2022, Natelson et al

    https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-022-03289-8 Benjamin H. Natelson Jin-Mann S. Lin Michelle Blate Sarah Khan Yang Chen Elizabeth R. Unger Open access Background Orthostatic intolerance-OI is common in Myalgic Encephalomyelitis/Chronic Fatigue...
  19. B

    The process of CBT for CFS: Which changes in perpetuating cognitions and behaviour are related to a reduction in fatigue?, 2013, Knoop et al.

    Copied from ReCOVer: A RCT testing the efficacy of CBT for preventing chronic post-infectious fatigue among patients diagnosed with COVID-19. You are probably much more on the money that I am. My mind initially went to even more cynical assumptions. Goodness knows why they need a less and...
  20. Andy

    Treatment of chronic fatigue syndrome from yangming meridian, 2022, Xue and Cui

    Based on the theory of "brain-gut communication" and "heart-stomach disease simultaneously", the thinking and method of treating chronic fatigue syndrome (CFS) from yangming meridian were discussed. CFS is related to brain and heart. Based on the analysis of meridian circulation, zang-fu...
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