"Research Opportunity for ME & Long COVID Patients in Toronto
York University is recruiting ME patients and longhaulers for a research protocol in Toronto. Patients' individual limitations will be respected. See below for more details.
Please contact Heather at edgell@yorku.ca or...
Moved from the UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion thread.
Dear Jonathan
Further to the email sent last week, please find attached the draft implementation statement in support of our guidance on the diagnosis and management of myalgic...
Hello,
Thank you for being so welcoming on this forum.
My name is Mariana, I'm currently doing a professional doctorate in Educational Psychology at the University of Bristol (School of Policy Studies), and I am researching the school experiences of teenagers with ME/CFS for my thesis.
A...
Abstract
This article examines the contestation of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Lacking consistent diagnostic definitions, agreed-on biological indicators, or approved treatments, ME/CFS is an incompletely medicalized condition. It is defined by intractable and...
Not sure where this should be posted. Please move if necessary.
Title of article : Perspective: Drawing on Findings From Critical Illness to Explain Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Link : https://www.frontiersin.org/articles/10.3389/fmed.2022.818728/full
Date published : 8th...
Thread split from UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion
For those who want to share personal experiences on this topic less publicly there is a thread in the members only area here.
______________
I used to think it was unique. But I am starting...
Webinar: “Implications Of ME/CFS Case Definitions For Long Covid”
Guest speaker: Dr. Leonard Jason
Wednesday, March 16, 2022, 4 p.m. EDT (1 p.m. PDT, 8 p.m. GMT)
Full announcement - https://usawg.wordpress.com/2022/02/26/special-event/
Click here to register
This thread has news updates from the BHC.
For threads on useful resources provided by BHC see the Resources forum.
Ever-Growing Awareness by Lucinda Bateman, MD
Mar 2, 2022
https://batemanhornecenter.org/evergrowing-awareness/
Moved post
This post may be taking the current discussion slightly off track, but I didn't intend it to as my first immediate thought when reading the opinion piece was the RCP's refusal to champion the new guidelines has influenced such propaganda, so I thought I would check to see if they...
What Is Chronic Fatigue Syndrome? Overlooked Condition Shares Symptoms With Long COVID
https://www.ibtimes.com/what-chronic-fatigue-syndrome-overlooked-condition-shares-symptoms-long-covid-3410892
Abstract
Background
Myalgic encephalitis or chronic fatigue syndrome (ME/CFS) has again come into focus as a result of coronavirus disease 2019 (COVID-19). Fundamentally problematic is the fact that ME/CFS is considered a separate entity; however, extreme fatigue is also a common symptom of an...
There is a lot of information relevant to the question of whether Long Covid is a subset of ME/CFS, or overlaps with it in
News about Long Covid including its relationship to ME/CFS 2020 to 2021 (thread now closed)
Abstract
Background
Chronic fatigue syndrome (CFS) is a complex and often disabling chronic condition emerging worldwide, with no curative or definitive therapy yet identified. Ginseng has been widely used to treat fatigue in other patient groups and conditions; however, a systematic review...
Tarjei Tørre Asprusten will be defending his thesis "Diagnosis of Chronic Fatigue Syndrome in Adolescents" for the degree of PhD 7th March 2022.
Principal supervisor is prof. Wyller.
Summary
Diagnostic labels as Chronic Fatigue Syndrome (CFS), Myalgic Encephalomyelitis (ME) and Systemic...
Abstract
Background
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious disorder of unknown aetiology. While the pathomechanism of ME/CFS remains elusive, reduced natural killer (NK) cell cytotoxic function is a consistent immunological feature. NK cell effector functions...
https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-022-03289-8
Benjamin H. Natelson
Jin-Mann S. Lin
Michelle Blate
Sarah Khan
Yang Chen
Elizabeth R. Unger
Open access
Background
Orthostatic intolerance-OI is common in Myalgic Encephalomyelitis/Chronic Fatigue...
Copied from ReCOVer: A RCT testing the efficacy of CBT for preventing chronic post-infectious fatigue among patients diagnosed with COVID-19.
You are probably much more on the money that I am. My mind initially went to even more cynical assumptions. Goodness knows why they need a less and...
Based on the theory of "brain-gut communication" and "heart-stomach disease simultaneously", the thinking and method of treating chronic fatigue syndrome (CFS) from yangming meridian were discussed. CFS is related to brain and heart. Based on the analysis of meridian circulation, zang-fu...
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