ME & Chronic Illness Podcast: Post-Exertional Mayonnaise

Sly Saint · Jun 10, 2023

didn't know where to post this

https://twitter.com/user/status/1659203752480624642

Ravn · Jul 26, 2023

They have a website now.

website about section said:

Post-Exertional Mayonnaise is a podcast hosted by Daniel Moore and Dov Zeller, two human primates with ME (Myalgic Encephalomyelitis, sometimes also referred to as ME/cfs.) We are both profoundly affected by ME, both mostly homebound, and we are interested in having conversations and connecting with our ME and chronic illness communities. Our main focus is on how we make meaning, how we cope, how we navigate life, relationships, and creative work.

Some Episodes will consist of Dan and Dov talking about topics of interest and some will include interviews with community members. We will share stories and experiences and art of many kinds, and of course we will do some kvetching.

This is one hundred percent NOT a place for: judging people, giving health-related advice of any kind; pushing toxic positivity; policing other people's attitudes; pedaling miracle cures or any products, supplements, or alternative or other treatments; pushing any kind of belief systems or ideologies related to "why" or "how" people get sick or "why" or "how" people are sick... Illness is a fact of life for many of us. It is not a failure nor a sign of weakness. "Illness" and "health" are not two distinct binaries. All of our bodies are vulnerable and vulnerable to illness. Our capacities and productivity do not make us valuable. Our humanity does.
Click to expand...

https://www.pempod.com/about

Have only listened to 1 episode of this (as a podcast, not on Youtube), the one called "Magical Thinking". Came across as a couple of level-headed pwME talking thoughtfully about difficult aspects of living with ME/chronic illness. Would happily recommend this episode to pwME feeling stuck in the stage of desperately chasing false hope from magical thinking, or struggling with pressure from the people around them to be seen to be actively trying all manner of nonsense

https://www.pempod.com/podcast

The podcast looks like a good fit for artistic pwME looking to connect and also feature some examples of their work, some nice ones here:

https://www.pempod.com/art-photography
https://www.pempod.com/poetry-music

Hutan · Jul 26, 2023

Thanks @Ravn, the podcast sounds good. I'll have to check it out.

I thought this poem from the poetry-music link described PEM so well.
The Day After
Nathalie Gravel
(Poem)

The day after
a good day
the hardest of days
the light goes out
silence returns
you’re swallowed
back
into the darkness
doors shut
on every possibility
imprisoned/shackled
to your bed
waiting
waiting
waiting
for the day
after
the suffering ends
and life begins
again

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ME & Chronic Illness Podcast: Post-Exertional Mayonnaise

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Ravn Senior Member (Voting Rights)

Hutan Moderator Staff Member

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