me/cfs

A couple ME/CFS patients on twitter have mentioned "getting long Covid" after being infected with SARS‑CoV‑2. Does anyone have a longer explanation for what it might mean to "get Long Covid" if you're already an ME/CFS patient? Long Covid is a pretty big umbrella term. Does it mean these...

Full title: Impact of myalgic encephalomyelitis/chronic fatigue syndrome /ME/CFS) on the quality of life of people with ME/CFS and their partners and family members: an online cross-sectional survey Jui Vyas, Nina Muirhead et al Abstract Objectives The aim of this study was to assess the impact...

The Why: The Historic ME/CFS Call To Arms Paperback – April 26, 2022 by Hillary J Johnson (Author) If you have acquired Myalgic Encephalomyelitis (a.k.a. “chronic fatigue syndrome”) in recent years, you may have wondered why the U.S. government has done so little to promote research or...

Just wanted to recommend this Instagram profile with excellent and professionally made illustrations in both Norwegian and English versions. Description of profile: Illustrating the debate, science and politics about ME to raise awareness. https://www.instagram.com/illustrating_me/

Full title: EBV/HHV-6A dUTPases contribute to Myalgic Encephalomyelitis/Chronic-Fatigue-Syndrome pathophysiology by enhancing TFH cell differentiation and extrafollicular activities Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a chronic, debilitating multisystem illness of...

For the abstract of the published paper, go to post #9 Preprint Abstract Myalgic Encephalomyelitis and chronic fatigue syndrome is a multisystem illness characterized with extreme muscle fatigue associated with pain, neurocognitive impairment, and chronic inflammation. Despite intense...

Abstract After the acute phase of COVID-19, some patients have been reported to have persistent symptoms including general fatigue. We have established a COVID-19 aftercare clinic (CAC) to provide care for an increasing number of these patients. Here, we report the case of a 36-year-old man...

Myalgic Encephalomyelitis/Chronic fatigue syndrome (ME/CFS) patients suffer from neurocognitive impairment. In this study, we investigated cortical volumetric and thickness changes in ME/CFS patients and healthy controls (HC). We estimated mean surface-based cortical volume and thickness from...

https://ntnuopen.ntnu.no/ntnu-xmlui/handle/11250/2991015 Health-related quality of life in Young People with Chronic fatigue syndrome/ Myalgic encephalomyelitis Similä, Wenche Ann Doctoral thesis View/Open Wenche Ann Similä Phd.pdf (7.176Mb) URI https://hdl.handle.net/11250/2991015 Date 2022...

Abstract Introduction Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) is a complex multisystem disease characterised by severe and disabling new-onset symptoms of post-exertional malaise (PEM), fatigue, brain fog, and sleep dysfunction that lasts for at least six months...

Abstract Danggui Buxue Tang (DBT), a traditional Chinese medicine formula for “invigorating qi and enriching blood”, has been reported to produce a good effect on chronic fatigue syndrome (CFS). However, the related mechanism remains largely unresolved. In this study, a metabolomics approach...

2005 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1280928/ Abstract In a previous study we demonstrated that while people with CFS had lower daily activity levels than control subjects, they were able to increase daily activity via a daily walking program. We reanalyzed our data to determine...

Opening the black box: the researchers trying to find treatments for long COVID March 17, 2022 I did not read the whole thing but I noticed this section on ME/CFS:

Full title: Diagnosis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome With Partial Least Squares Discriminant Analysis: Relevance of Blood Extracellular Vesicles Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a chronic disease characterized by long-lasting persistent...

Abstract This study aimed to contribute to the development of a research case definition for post-acute sequelae of SARS CoV-2 infection (PASC) using a PASC data set and experiences from case definitions developed for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Our database...

Edwards JC, McGrath S, Baldwin A, Livingstone M, Kewley A. The biological challenge of myalgic encephalomyelitis/chronic fatigue syndrome: a solvable problem. Fatigue. 2016;4(2):63-69. doi:10.1080/21641846.2016.1160598 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4867862/ Abstract Myalgic...

Split from Eye movements may be key to chronic fatigue syndrome diagnosis Bansal uses an eye reaction test I believe as part of his diagnosis process .

“What we’re trying to do is generate a unique ME/CFS signature based on characteristic changes to eye movements, a behaviourial signature that is specific to the disorder that can be used to help diagnose it and monitor the effects of any treatments.” “Tentatively, what we’ve found already...

https://www.frontiersin.org/articles/10.3389/fimmu.2022.841910/full Myalgic encephalomyelitis, or chronic fatigue syndrome (ME/CFS) is a serious disease whose cause has yet to be identified. Objective markers of the disease are also not well understood and would serve as important tools in...

Largest ME/CFS genetic study to date. Three different cohorts totaling more than 2500 patients. First Immunochip study in ME/CFS. Possible implication of TPPP genetic region https://www.sciencedirect.com/science/article/pii/S0889159122000782 TPPP plays a key role in myelination of nerve cells...