me/cfs

  1. ME/CFS Science Blog

    Which scientists and research groups would you want to bring to the ME/CFS research field

    Suppose that you could lure research groups into studying ME/CFS, who would you like to bring to this field? Are there any top biomedical researchers who stand out or who have an expertise that might particularly suited in studying ME/CFS? Or: who are the most respected medical researchers that...
  2. Sly Saint

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Vocabulary 2022 Vasudevan et al

    Research Objectives To capture symptom experiences of persons living with ME/CFS to increase clinicians’ understanding of this complex illness. Design Case Series. Setting Multi-institutional collaboration. Participants A convenience sample of 12 persons with mild (n=16.7%), moderate...
  3. Sly Saint

    Severe myalgic encephalomyelitis/chronic fatigue syndrome in children and young people: a British Paediatric Surveillance Unit study 2022 Crawley et a

    Abstract Objectives Primary objective: to determine the point prevalence and incidence rate of severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in children aged 5–16 years over 13 months. Secondary objectives: to describe the demographic features, symptoms, impact on activities...
  4. Sly Saint

    United Kingdom: Cornwall ME/CFS services

    This post has been copied and following discussion moved from ME/CFS services in the United Kingdom job ad Royal Cornwall Hospitals Specialist Occupational Therapist...
  5. ahimsa

    Medscape: ME/CFS and Long COVID: Q&A With the CDC's Dr Jennifer Cope

    ME/CFS and Long COVID: Q&A With the CDC's Dr Jennifer Cope https://www.medscape.com/viewarticle/984122
  6. Dolphin

    Circulating Leptin Levels in Patients with Myalgic Encephalomyelitis Chronic Fatigue Syndrome and/or Fibromyalgia: a Systematic Review, 2021, Musker

    Master of Clinical Science Thesis Circulating Leptin Levels in Patients with Myalgic Encephalomyelitis Chronic Fatigue Syndrome and/or Fibromyalgia: a Systematic Review Submitted for the degree of Master of Clinical Science By Michael Musker March 2021 The University of Adelaide JBI...
  7. Dolphin

    PET/SPECT/MRI/fMRI Studies in the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2020, Watanabe

    https://link.springer.com/chapter/10.1007/978-3-030-57231-0_32 PET/SPECT/MRI/fMRI Studies in the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Yasuyoshi Watanabe Chapter First Online: 15 December 2020 547 Accesses 3 Citations Abstract Myalgic encephalomyelitis/chronic fatigue...
  8. ahimsa

    Medscape: Do Fatigue and Exercise Intolerance Post-COVID-19 Indicate a Chronic Disease? (CME & Education)

    [note: I just got this via a Medscape alert, I have not read it yet, just grabbed a few sections for the quote below] Do Fatigue and Exercise Intolerance Post-COVID-19 Indicate a Chronic Disease? Authors: News Author: Miriam E. Tucker; CME Author: Charles P. Vega, MDFaculty and Disclosures CME...
  9. T

    Support Experiences of Children and Youth with ME/CFS and Epilepsy in New Zealand Schools: A Parental Perspective, 2022, Bierre (thesis)

    Support Experiences of Children and Youth with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Epilepsy in New Zealand Schools: A Parental Perspective A thesis presented in partial fulfilment of the requirements for the degree of Master of Science with an Endorsement in Health...
  10. T

    Works of fiction where characters have ME/CFS

    I thought I would set up a thread on this
  11. Sly Saint

    Unravelling the nature of postexertional malaise in ME/CFS: the role of elastase, complement C4a and interleukin-1β 2010, Nijs et al

    Unravelling the nature of postexertional malaise in myalgic encephalomyelitis/chronic fatigue syndrome: the role of elastase, complement C4a and interleukin-1β Abstract Abstract. Nijs J, Van Oosterwijck J, Meeus M, Lambrecht L, Metzger K, Frémont M, Paul L (Vrije Universiteit Brussel...
  12. Samuel

    Circadian skin temperature rhythm and dysautonomia in [ME/CFS]: ... endothelin-1 in vascular dysregulation, 2023, Cambras et al

    Post with a link to the final paper here ******** Source: Research Square Preprint Date: September 21, 2022 URL: https://www.researchsquare.com/article/rs-2044838/v1 Circadian skin temperature rhythm and dysautonomia in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the role...
  13. Peter T

    Commentary: Graded Exercise Therapy and Cognitive Behaviour Therapy Do Not Improve Employment Outcomes in ME/CFS, 2022, Tuller and Vink

    This post has been copied from this thread: Percentage of people with ME/CFS able to work or attend school The latest Virology blog: “Trial By Error: Research From GET/CBT Ideological Brigades Shows No Improvements in Work Status” see...
  14. Hutan

    Percentage of people with ME/CFS able to work or attend school

    Recently the percentage of people able to work came up in a forum thread. A statistic of 75% of people with ME/CFS not being able to work was mentioned. This may have come from the CDC's February 2016 Public Health Grand Rounds bank of slides. Slide 22, part of Elizabeth Unger's presentation...
  15. Kalliope

    The Atlantic - Long COVID Has Forced a Reckoning for One of Medicine's Most Neglected Diseases - by Ed Yong

    - Only a couple dozen doctors specialize in chronic fatigue syndrome (ME/CFS). Now their knowledge could be crucial to treating millions more patients. https://www.theatlantic.com/health/archive/2022/09/mecfs-chronic-fatigue-syndrome-doctors-long-covid/671518/
  16. Andy

    Long-term neuromuscular consequences of SARS-Cov-2 and their similarities with ME/CFS: results of the retrospective CoLGEM study, 2022, Retornaz et al

    Abstract Background Patients with long-COVID often complain of continuous fatigue, myalgia, sleep problems, cognitive dysfunction, and post-exertional malaise. No data are available on EMG recording of evoked myopotentials (M-waves) or exercise-induced alterations in long-COVID patients...
  17. ahimsa

    San Francisco Chronicle (opinion): Biden says the COVID pandemic is over. He could have fooled me

    Not sure exactly where to post this article since it covers a lot of things! This forum seemed best because of the title (pandemic), but please move if there's a better place. Perhaps the forum for Long Covid news? This article is a response to Biden's statement on 60 Minutes that the pandemic...
  18. Dolphin

    Understanding the experiences of caring for a partner with myalgic encephalopathy: a qualitative study of men in Norway, Torp, 2022 (Master’s Thesis)

    Source: Inland Norway University Date: September 20, 2022 URL: https://brage.inn.no/inn-xmlui/handle/11250/3019314 Understanding the experiences of caring for a partner with myalgic encephalopathy: a qualitative study of men in Norway ----------------------------------------------- Elise...
  19. Sly Saint

    OP72 Myalgic encephalomyelitis/chronic fatigue syndrome and pregnancy: a mixed-methods systematic review 2022, Pearce et al

    Abstract Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a fluctuating complex condition. More common in women than men, it tends to develop between mid-20s and mid-40s, including the main childbearing age (15–45 years). There are currently no systematic reviews...
  20. T

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and mitochondria: A review, 2022, Pandey (M.Sc. Thesis)

    via Dr. Marc-Alexander Fluks Source: Cornell University Date: May 2022 URL: https://ecommons.cornell.edu/handle/1813/111644 https://ecommons.cornell.edu/bitstream/handle/1813/111644/Pandey_cornell_0058O_11430.pdf Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and mitochondria: A...
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