me/cfs

  1. Sly Saint

    Unravelling the nature of postexertional malaise in ME/CFS: the role of elastase, complement C4a and interleukin-1β 2010, Nijs et al

    Unravelling the nature of postexertional malaise in myalgic encephalomyelitis/chronic fatigue syndrome: the role of elastase, complement C4a and interleukin-1β Abstract Abstract. Nijs J, Van Oosterwijck J, Meeus M, Lambrecht L, Metzger K, Frémont M, Paul L (Vrije Universiteit Brussel...
  2. Samuel

    Circadian skin temperature rhythm and dysautonomia in [ME/CFS]: ... endothelin-1 in vascular dysregulation, 2023, Cambras et al

    Post with a link to the final paper here ******** Source: Research Square Preprint Date: September 21, 2022 URL: https://www.researchsquare.com/article/rs-2044838/v1 Circadian skin temperature rhythm and dysautonomia in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the role...
  3. Peter T

    Commentary: Graded Exercise Therapy and Cognitive Behaviour Therapy Do Not Improve Employment Outcomes in ME/CFS, 2022, Tuller and Vink

    This post has been copied from this thread: Percentage of people with ME/CFS able to work or attend school The latest Virology blog: “Trial By Error: Research From GET/CBT Ideological Brigades Shows No Improvements in Work Status” see...
  4. Hutan

    Percentage of people with ME/CFS able to work or attend school

    Recently the percentage of people able to work came up in a forum thread. A statistic of 75% of people with ME/CFS not being able to work was mentioned. This may have come from the CDC's February 2016 Public Health Grand Rounds bank of slides. Slide 22, part of Elizabeth Unger's presentation...
  5. Kalliope

    The Atlantic - Long COVID Has Forced a Reckoning for One of Medicine's Most Neglected Diseases - by Ed Yong

    - Only a couple dozen doctors specialize in chronic fatigue syndrome (ME/CFS). Now their knowledge could be crucial to treating millions more patients. https://www.theatlantic.com/health/archive/2022/09/mecfs-chronic-fatigue-syndrome-doctors-long-covid/671518/
  6. Andy

    Long-term neuromuscular consequences of SARS-Cov-2 and their similarities with ME/CFS: results of the retrospective CoLGEM study, 2022, Retornaz et al

    Abstract Background Patients with long-COVID often complain of continuous fatigue, myalgia, sleep problems, cognitive dysfunction, and post-exertional malaise. No data are available on EMG recording of evoked myopotentials (M-waves) or exercise-induced alterations in long-COVID patients...
  7. ahimsa

    San Francisco Chronicle (opinion): Biden says the COVID pandemic is over. He could have fooled me

    Not sure exactly where to post this article since it covers a lot of things! This forum seemed best because of the title (pandemic), but please move if there's a better place. Perhaps the forum for Long Covid news? This article is a response to Biden's statement on 60 Minutes that the pandemic...
  8. Dolphin

    Understanding the experiences of caring for a partner with myalgic encephalopathy: a qualitative study of men in Norway, Torp, 2022 (Master’s Thesis)

    Source: Inland Norway University Date: September 20, 2022 URL: https://brage.inn.no/inn-xmlui/handle/11250/3019314 Understanding the experiences of caring for a partner with myalgic encephalopathy: a qualitative study of men in Norway ----------------------------------------------- Elise...
  9. Sly Saint

    OP72 Myalgic encephalomyelitis/chronic fatigue syndrome and pregnancy: a mixed-methods systematic review 2022, Pearce et al

    Abstract Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a fluctuating complex condition. More common in women than men, it tends to develop between mid-20s and mid-40s, including the main childbearing age (15–45 years). There are currently no systematic reviews...
  10. T

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and mitochondria: A review, 2022, Pandey (M.Sc. Thesis)

    via Dr. Marc-Alexander Fluks Source: Cornell University Date: May 2022 URL: https://ecommons.cornell.edu/handle/1813/111644 https://ecommons.cornell.edu/bitstream/handle/1813/111644/Pandey_cornell_0058O_11430.pdf Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and mitochondria: A...
  11. ahimsa

    USA: 2022 Sep 19: Long COVID, ME/CFS Patients Protest in Front of White House

    Threads about different articles have been merged Article about today's protest at the White House from MedPage Today: "Long COVID, ME/CFS Patients Protest in Front of White House" https://www.medpagetoday.com/infectiousdisease/longcovid/100806 There was also a mention of the protest, and...
  12. Sly Saint

    Bioinformatics and systems biology approach to identify the pathogenetic link of Long COVID and ME/CFS, 2022, Lv et al

    Bioinformatics and systems biology approach to identify the pathogenetic link of Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Background: The COVID-19 pandemic, caused by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), is a global crisis. Although many people...
  13. ahimsa

    USA: News from #MEAction

    This information is from the ME Action website, see http://www.meaction.net/2017/10/30/new-living-w-me-support-group-2/ The November and December schedule for the Living w/ ME Support Group has just been announced: Sunday, November 12: Avoiding Crashes Sunday, December 10: Surviving the...
  14. John Mac

    Long COVID Was a Preventable Tragedy. Some of Us Saw It Coming, Brian Vastag

    Not sure where to post this but it is mainly about ME/CFS https://www.webmd.com/lung/news/20220915/long-covid-preventable-tragedy-some-saw-it-coming
  15. Sly Saint

    The key to demystifying long COVID-19 could come from studying another chronic condition : Article: Chicago Tribune: Leonard Jason

    https://www.chicagotribune.com/opinion/commentary/ct-opinion-chronic-fatigue-syndrome-long-covid-19-20220912-42gktniwobbcbblcbs56l6r7zu-story.html
  16. Dolphin

    Cognitive-communication difficulties in adults with Long COVID, 2023, Cummings (has ME/CFS control group)

    Free full text: https://library.oapen.org/bitstream/handle/20.500.12657/58162/9781003257318_10.4324_9781003257318-5.pdf?sequence=1
  17. ahimsa

    USA - 2022 Millions Missing protest: Online training session for those taking action from home

    Reminder for anyone who wants to help out with the 2022 Millions Missing protest scheduled for Monday, September 19. There's an online training session tomorrow - Sunday, September 11, 12 pm Pacific Time, 3 pm Eastern Time - for people who will be taking action from home. I believe that...
  18. Sly Saint

    Genetic Risk Factors for ME/CFS Identified using Combinatorial Analysis, 2022, Das et al

    published paper posted on this thread here Preprint Abstract Background: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating chronic disease that lacks known pathogenesis, distinctive diagnostic criteria, and effective treatment options. Understanding the genetic...
  19. Kalliope

    Finland: Conference "ME/CFS + Long COVID" (with Systrom, Keller, Rowe and more) Can be streamed 7 October 2022

    The Finnish Association of Orthopaedic Manual Therapy organises a conference in October in Tempere, Finland. From the program: Friday, October 7, 2022 Finnish Time (+1 Hour CET/ +3 Hours UTC) 8.30 Registration, Coffee 9.00-9.05 Conference Opening 9.05-9.15 Welcoming, President of FIAOMT...
  20. Andy

    The importance of school in the management of (ME/CFS): issues identified by adolescents and their families, 2022, Cleary, Crawley et al

    Full title: The importance of school in the management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): issues identified by adolescents and their families Abstract Paediatric Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) is a disabling condition. Schools play a...
Back
Top Bottom