me/cfs

  1. Wyva

    Alcohol intolerance and myalgic encephalomyelitis/chronic fatigue syndrome, 2023, Maciuch, Jason

    Abstract BACKGROUND The literature is mixed about the occurrence of alcohol intolerance among patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Surveys that asked respondents with ME/CFS whether they experienced alcohol intolerance within a recent time frame might...
  2. Andy

    Comparison of a 20 degree and 70 degree tilt test in adolescent ME/CFS patients, 2023, van Campen, Rowe, Visser

    Introduction: During a standard 70-degree head-up tilt test, 90% of adults with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) develop an abnormal reduction in cerebral blood flow (CBF). A 70-degree test might not be tolerated by young ME/CFS patients because of the high incidence...
  3. Sly Saint

    Hypothesis [ME/CFS] and Comorbidities: Linked by Vascular Pathomechanisms and Vasoactive Mediators? 2023, Wirth and Löhn

    Wirth and Lohn Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is often associated with various other syndromes or conditions including mast cell activation (MCA), dysmenorrhea and endometriosis, postural tachycardia (POTS) and small fiber neuropathy (SFN). The causes of...
  4. InitialConditions

    Austria: WE&ME Foundation (formerly TEMPI-Stiftung, TEMPI-Foundation)

    "Our foundation supports nationally and internationally recognized research projects, non-profit organizations to support those affected and charity projects to combat diseases such as myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) and related diseases. "We can build on a network...
  5. Andy

    Proteomics and cytokine analyses distinguish myalgic encephalomyelitis/chronic fatigue syndrome cases from controls, 2023, Giloteaux et al

    Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex, heterogenous disease characterized by unexplained persistent fatigue and other features including cognitive impairment, myalgias, post-exertional malaise, and immune system dysfunction. Cytokines are present in...
  6. V

    ME/CFS Pathophysiology Investigated by Invasive Cardiopulmonary Exercise Testing and Autonomic Function Testing, 2023, Squires, ..Systrom et. al.

    ME/CFS Pathophysiology Investigated by Invasive Cardiopulmonary Exercise Testing and Autonomic Function Testing. J. Squires 2, K. Wichmann Madsen 2, M.C. Stovall 2, S. Al-Zayer 2, W. Xiao 3, C.-J. Chang 3, P. Novak 1, D.M. Systrom 2...
  7. Andy

    Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): A preliminary survey among patients in Switzerland 2023 Tschopp et al

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a multi-factorial systemic chronic debilitating disease of poorly understood etiology and limited systematic evidence. The questionnaire and interview-based survey included 169 ME/CFS patients from the Swiss ME/CFS association. The...
  8. T

    Exploring the Genetic Contribution to Oxidative Stress in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2023, Hampilos et al

    Abstract (only): Exploring the Genetic Contribution to Oxidative Stress in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Nicholas Henry Hampilos1 , Arnaud Germain2 , Xiangling Mao1 , Maureen R. Hanson2 , Dikoma C. Shungu1 1 Weill Cornell Medicine 2 Cornell University...
  9. ahimsa

    USA: Ask your Members of Congress to support the CARE for Long COVID Act! (from Solve M.E.)

    From Solve M.E. - a call to action for Advocacy Week: "Ask your Members of Congress to support the CARE for Long COVID Act!" https://p2a.co/Xpr5nVf This link goes to a form that sends an email to your government officials with one click. If you like you can modify their sample message before...
  10. Sly Saint

    Exercise Pathophysiology in ME/CFS and Post-Acute Sequelae of SARS-CoV-2: More in Common Than Not? 2023, Joseph, Systrom et al.

    ABSTRACT Topic Importance Post-Acute Sequelae of SARS-CoV-2 (PASC) is a long-term consequence of acute infection from coronavirus disease 2019 (COVID-19). Clinical overlap between PASC and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) has been observed, with shared symptoms...
  11. Paulie

    Sleep pattern and symptom severity over the course of the day.

    Wasn't sure where to post this. Does anyone know if there is research into sleeping patterns and changes in symptom severity during the course of the day? Here's my general sleep and symptom profile: Main sleep: 4am - 2pm Symptoms on waking: Paralysis, whole body stiffness, restricted movement...
  12. Sly Saint

    LC, POTS, and ME/CFS: Lifting the Fog 2023, Chambers

    preprint Abstract These three syndromes - long covid (LC), postural orthostatic tachycardia syndrome (POTS), and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) - have many symptoms in common. The common denominator remains elusive. The blood brain barrier (BBB) has been a barrier...
  13. ahimsa

    UK: Campaign called #MPDoYourJobForME

    I saw this post by @MEFoggyDog on Mastodon so I thought I'd share. This same hashtag - #MPDoYourJobForME - is also being used on twitter so you can search for it there. I did not watch the whole video, but the title of the document linked in the post is: Politician's Guide: How To Advocate...
  14. Andy

    Developing a blood cell-based diagnostic test for ME/CFS using peripheral blood mononuclear cells, 2023, Xu, Morten et al

    Preprint. Paper now published, see this post Abstract A blood-based diagnostic test for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and multiple sclerosis (MS) would be of great value in both conditions, facilitating more accurate and earlier diagnosis, helping with current...
  15. Sly Saint

    Recovery from Exercise in Persons with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) 2023, Moore, Hanson et al

    Abstract: Background and Objectives: Post-exertional malaise (PEM) is the hallmark of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), but there has been little effort to quantitate the duration of PEM symptoms following a known exertional stressor. Using a Symptom Severity Scale...
  16. Peter T

    Petition: UK Funding for ME & Long Covid research into treatment

    The MEA shared this UK Parliamentary petition on their Facebook page recently, it may have been shared elsewhere, so sorry if this is a duplicate Urgent funding for research into Long Covid and ME/CFS treatments and cures “Around a quarter of a million people are suffering with ME/CFS in the...
  17. SNT Gatchaman

    My experience with ME/CFS and implications: A personal narrative, 2023, Sirotiak

    My experience with ME/CFS and implications: A personal narrative Sirotiak Z Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic, debilitating health condition characterized by overwhelming fatigue and post-exertional malaise, or exacerbation of symptoms following physical...
  18. Andy

    Open Protocol: Multimodal MRI of myalgic encephalomyelitis/chronic fatigue syndrome: A cross-sectional neuroimaging study 2022 Shan et al

    Full title: Multimodal MRI of myalgic encephalomyelitis/chronic fatigue syndrome: A cross-sectional neuroimaging study toward its neuropathophysiology and diagnosis Introduction: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), is a debilitating illness affecting up to 24 million...
  19. Sly Saint

    "Scottish Good Practice Statement on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME-CFS)"

    Published 28 February 2023 This guidance is intended to support the diagnosis and management of ME/CFS in primary care, and was originally published in 2010. The Scottish Government has partially updated it to insert key recommendations from the NICE Guideline on ME/CFS published in October...
  20. Wyva

    ME/CFS and fibromyalgia: PR3-versus MPO-ANCA-associated vasculitis, an exploratory cross-sectional study, 2023, van Eeden et al

    Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and fibromyalgia: PR3-versus MPO-ANCA-associated vasculitis, an exploratory cross-sectional study Summary Background Persistent fatigue is a common complaint in ANCA-vasculitis (AAV) patients and has a profound impact on patient's...
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